Does anyone else have Gastroparesis not caused by diabetes?

Posted by Darlia @darlia, Nov 9, 2017

Looking for suggestions on diet, alternative treatments, etc that are being used by others. I cannot use the Reglan as it is a bad drug in my opinion. I can tell you that it caused me to go into major depression in 2008

As I have written before,my gastroparesis was caused by my narcotics. Many medications can do this. Before botox was more popular and my Reglan was discontinued (I had Parkinson-like symptoms), doctors in Philadelphia wanted nto place a pacemaker in my stomach. A lawyer I knew told me about "botox" trials that were starting at another hospital in Philadelphia and his daughter had it…was doing great! Not wanting to travel into the city and so far away…but getting sicker and sicker…the erythromycin wasn't really helping as a prokinetic (making my stomach contract and emptying it)…my local GI doctor told me Hershey Medical Center was starting to use botox to the pyloric sphincter. I had it done January 2014 and still am 80% better! A God send!

Liked by nikkig

Where did they give you the shot? I had them in my head for migraines a few years ago….not much luck with that then.

@jlfisher56

As I have written before,my gastroparesis was caused by my narcotics. Many medications can do this. Before botox was more popular and my Reglan was discontinued (I had Parkinson-like symptoms), doctors in Philadelphia wanted nto place a pacemaker in my stomach. A lawyer I knew told me about "botox" trials that were starting at another hospital in Philadelphia and his daughter had it…was doing great! Not wanting to travel into the city and so far away…but getting sicker and sicker…the erythromycin wasn't really helping as a prokinetic (making my stomach contract and emptying it)…my local GI doctor told me Hershey Medical Center was starting to use botox to the pyloric sphincter. I had it done January 2014 and still am 80% better! A God send!

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Since you believe yours was caused by Narcotics did you stop the pain meds and if so how long ago did you stop?

Hi, I am also looking for help with the same problems,also something for the nausea I have tried all the meds.I was just diagnosed with small fiber neuropathy. How do all these neuropathy's play in with all these GI problems?

Hi,its Lori again. I just found your post. I need help!! I do go to Cleveland Clinic,and I know I'm a complicated case with overlapping diseases. I have ben getting worse each year and hope to pick up info that can help me.
Darli can you tell me what Failed Nissen w/gastroparesis and possible Mals would be? Thank You, Lori

@loricarey

Hi,its Lori again. I just found your post. I need help!! I do go to Cleveland Clinic,and I know I'm a complicated case with overlapping diseases. I have ben getting worse each year and hope to pick up info that can help me.
Darli can you tell me what Failed Nissen w/gastroparesis and possible Mals would be? Thank You, Lori

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Hi Lori you said you have a failed Nissan? Can you tell me more? I had a nissen done I'm not sure if it helped me or hurt me more. Was diagnosed with a nutcracker it's where your esophagus goes into spasms very painful. Looking for someone going through the same thing.

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