Does anyone else have Gastroparesis not caused by diabetes?

Posted by Darlia @darlia, Nov 9, 2017

Looking for suggestions on diet, alternative treatments, etc that are being used by others. I cannot use the Reglan as it is a bad drug in my opinion. I can tell you that it caused me to go into major depression in 2008

So sorry you are not well. I have many stomach problems too and nothing seems to work for me

Perhaps we can all pray for relief for one another. Until medicine catches up with our IBS or other serious stomach there is limited options. My heart goes out to all who are suffering pain today.

I have idiopathic gastroparesis and don’t have diabetes. I tried Reglan and didn’t work plus my Dr told me to stop it because it can cause Parkinson’s. I had a gastric pacemaker implanted in my stomach which has leads that go directly into my stomach to stimulate it so I can eat and the food will digest. I have to eat several small meals and avoid raw vegetables, fruit, nuts and high fiber. Also only eat chicken, fish and hamburger. I have had the pacemaker since April 2012 and it’s a life saver. Hopes this helps you. Kathy

@katmandoo

I have idiopathic gastroparesis and don’t have diabetes. I tried Reglan and didn’t work plus my Dr told me to stop it because it can cause Parkinson’s. I had a gastric pacemaker implanted in my stomach which has leads that go directly into my stomach to stimulate it so I can eat and the food will digest. I have to eat several small meals and avoid raw vegetables, fruit, nuts and high fiber. Also only eat chicken, fish and hamburger. I have had the pacemaker since April 2012 and it’s a life saver. Hopes this helps you. Kathy

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I’m glad to hear that the pacemaker is successful. I m not to that point YET! But I did take Raglan from 2007 till 2010 approx. It contributed to clinical severe depression and I weaned off in 2010 when a friend who also has Gastroparesis educated me that she’d read that Raglan could CAUSE depression. She said she would continue to try to control it with diet. So since 2010 I’ve struggled with it and attempting to use diet as the only control.
I don’t always succeed.
Recently now I saw a new Gastroenterologist and she seems very educated on it. She is suggesting an Endoscopy at which time she would inject Botox to open up the sphincter and cause the food to empty quicker. Has anyone else ever heard of this or had it done?
Darlia

Yes I had the Botox done 3 times before it quit working for me. It would last about 4-5 months. The last one didn’t work at all that’s why I got the gastric pacemaker implanted in my stomach.

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@katmandoo

Yes I had the Botox done 3 times before it quit working for me. It would last about 4-5 months. The last one didn’t work at all that’s why I got the gastric pacemaker implanted in my stomach.

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Wow! I thought it was a brand new treatment. Now I’m wondering why the dr’s didn’t suggest it prior.

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When you did use the botox treatment I am wondering about that.
1. Are there any side effects?
2. Complications or issues later on?
3. Does the botox make it so you no longer have a. Acid reflux b. Regurgitation c. Can you eat more variety?
4. Does the Pace maker make it so you’re eating more”normal”? And are there any problems with the pacemaker?
Thank you!!
Darlia

Liked by blackoutthesun

I recommend the pacemaker.

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a friend has it and doesn’t have diabetes. she is on reglan. she already had depression before starting it. I am trying to help with diet etc.

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@pendragonart

a friend has it and doesn’t have diabetes. she is on reglan. she already had depression before starting it. I am trying to help with diet etc.

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Welcome to Connect, @pendragonart. We look forward to getting to know you. Do you have gastroparesis?

Liked by blackoutthesun

I eat several small meals a day, but sometimes the food just sits in my stomach. A walk usually helps. I also gently massage my stomach to help stimulate it. I lay a microwavable heating pad on my stomach when it gets painful and do more gentle massaging. My doctors advise me not to take reglan. I tried the domperidone (may not be spelled correctly) and I had several side effects and it was no help for me. Propulsid did work, but it went off market shortly after I started taking it. What works for one person may not work for another. Sometimes you deal with several differrent conditions and it makes it difficult to figure out what will work for you or your loved one.

Liked by Darlia

@pendragonart

a friend has it and doesn’t have diabetes. she is on reglan. she already had depression before starting it. I am trying to help with diet etc.

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no I don’t have it but a dear friend almost certainly does, and I have been trying to help. she has had every sort of test I can think of done due to her crippling condition and nothing else shows up. I told hewr reglan is risky but she has lost so much weight and is malnourished from it. has no other options that they share with her so I came here.

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@pendragonart

a friend has it and doesn’t have diabetes. she is on reglan. she already had depression before starting it. I am trying to help with diet etc.

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@pendragonart If she has not tried domperidone I would recommend she try it before reglan. I had to go to a compounding pharmacy for it. It does not have side effects that are permanent like reglan. I have other issues that contribute to me trying to maintain weight and was not causing the problem I had when they tried me on it. Liquids or pureed foods and low fiber also help. If her gastropareis is severe her best option may be the pacemaker.

@pendragonart

a friend has it and doesn’t have diabetes. she is on reglan. she already had depression before starting it. I am trying to help with diet etc.

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she is on reglan. I just told her about the domperidone and pureed foods. she couldn’t go to thanksgiving dinner because of her stomach and bowel issues. she is miserable always feeling like she needs to “go” and cant. yes she is avoiding fiber.

When I first was having problems with my idiopathic gastroparesis they put me on Reglan. My family Dr told me to stop it because it can cause Parkinson’s disease. I’m doing quite well on the pacemaker I’ve had since April 2012.

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