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Jo Ann K

Posts: 357
Joined: Jun 23, 2017

Discussion with the FDA

Posted by @jkiemen, Wed, Jan 10 1:10pm

I sent an email to the FDA last evening and I received a phone call from them just now. I was told they cannot discuss actual studies because all information was confidential etc. I asked what can we do as a group. Her response was the our best recourse is to send communications directly to the sponsors of any companies that are working on research in this area. So I guess we continue to research what is out there and communicate frequently and in mass to the companies I listed in a prior post. I will continue to look for what is out there and I hope you all do to. I also send an email to the CDC to see what they are doing related to MAC.


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