Digestive issues and fibromyalgia
I have a bunch of digestive issues gastreoparasis, acid reflux, hiatal hernia, and IBS, along with chronic constipation. Recently I was diagnosed with fibromyalgia. I was wondering if the fibromyalgia makes my digestive issues worse because of my low pain tolerance, and was wondering if others have digestive issues with this? Praying I'm not alone, not that I wish this on anyone.
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Instead of psyllium, my GI Dr recommended Citrucel, which he said is easier on the digestive system and causes less gas. It comes in flavored power form or capsules. I stopped taking it though because it seemed to give me a stomach ache. I take Miralax every day, which usually works.
I also have fibro and constipation issues, as well as diviticulitis. I have been putting the metamucil in my morning smoothies. Works great but you can’t let it sit too long! Still not able to manage more than half a teaspoon. Another tip from my dr on constipation was that kiwis are good ! Haven’t tried those yet. I have been very reliant on miralax.
I have both fibromyalgia and chronic reflux disease. Plus I have chronic pain in my low back and my neck. Both areas have stenosis, degenerative disc, bulging disc and bone spurs along with arthritis. So I am a patient of pain management, a gastroenterologist at UVA, hormonal specialist in Charlottesville VA as well as my PCP. I am on pain medication that causes constipation and or diarrhea. (Associated with IBS) what works for me is Mirilax but the generic version sold at Sam's club called ClearLAX. It looks just like the bottle of MiraLAX but is a fraction of the cost. I use 1 capful every morning in my coffee. You can't taste it at all. I also take 1 capsule of Dr Schulze's intestinal Formula #1 at night. I do drink 2 liters of water daily. Along with a high fiber diet. I have no problems with constipation.
@refusisgolden57 Welcome to Mayo Clinic Connect. Your story is similar to mine!
Oh! my goodness. I have skipped over all these messages the last few days, thinking they don't apply to me, how can I contribute? Well, you all are helping me out so much, to read your experiences, let me tell you that!
Yep, I have fibromyalgia, diagnosed back in 2010, but also deal with a number of other issues including active blood cancer, and am a kidney dialysis patient. Multiple medications for chemo and kidney concerns. Digestive issues include constipation and diarrhea, doing the whole pendulum as I bet you all can relate to, right?! My dialysis clinic recommends Miralax, and I did get name brand at Costco, but will go to generic at Walmart next time. It seems like when I am going through a diarrhea phase last thing I want is Miralax! There are times I have even taken one of the anti-nausea meds for chemo to relax my large muscles in the gut to get relief. There is no rhyme or reason for timing on the constipation or diarrhea, meals eaten, time of day, etc. I never considered my fibromyalgia as a factor.
Thank you, everyone. Definitely following this thread, now.
Ginger, Costco also has a generic brand of their own for Miralax at about half the cost 🙃 It's worked great following my hernia surgery.
Did your Dr recommend the Dr Schulze product? Instead of Miralax, I use a brand sold at Target that is cheaper. Do you take anything for your fibromyalgia? I have been having bad all-over body muscle pain off and on for months but Drs can't find anything wrong with me through blood tests etc. I am wondering if I might have it. I've also had chronic insomnia for months. Both started after I got Covid in late January. Thank you.
To clarify, are you sometimes taking two doses of Miralax a day? My GI Dr told me that was okay once in a while, but I am nervous about doing so. Thanks.
Yes, I sometimes take two doses a day – if needed. With the neuropathy, it seems like no two days are the same, including my digestion. The Miralax is pretty mild, and I can easily split the amount I use in half.
However, I did read about the Colon Max, and I’m going to try it! I get ridiculously bloated and gassy, which is sometimes worse after Miralax. This Colon Max might help with that.
Thanks. Did you see my other question about what meds you take for fibromylagia?
I actually think the fibromyalgia diagnosis was a catch-all term for what was actually small fiber neuropathy. I was diagnosed seven years ago with fibromyalgia by a rheumatology after an extensive work-up that ruled out many other reasons for my sudden onset of pain, joint swelling, weakness and fatigue. I tried all the recommended seizure medications – Cymbalta, Savella, Neurontin – and settled on Lyrica . I also have a small dose of Percocet from a pain doctor.
When a neurologist recently went a step further, and ordered skin biopsies, I was finally diagnosed with SFN. I am now taking Tegretol for that with great results, as far as my neuropathy symptoms and pain. However SFN is progressive, and mine is progressive.
I don’t really know any more if I actually have fibro, and my doctors have not made a final decision on that topic.