Mayo Clinic Connect
MRI is normal of brain. She’s walking, social, has had dystonia since birthg.
If anyone has had a child with this condition, please post a reply.
We have taken her to many doctors and no answers were given. She only takes a bottle and is of normal weight.
I have had swallowing problems all my life, one problem was I have celiacs, the second is blepharospasms plus and generalized dystonia, I had a lot of speech therapy however I finally found one who was able to help me swallow without freaking out because it felt like I was choking and dehydrated from not drinking water, milk and other things were okay if it was thick but the thin stuff was hard, i have to go though retraining again because I am aspirating on water I just think I forgot how to do it, got lazy and drank from the bottles instead of a cup, I carry straws with me, the botox shots help. but for a baby this is hard i remember how hard it was for me.
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