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Diagnosed with sarcoma? Let's share
Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.
As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.
Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?
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Do anyone knows if Zantac Medication cause GIST CANCER
I went to a general surgeon for a mass/bump on the back of my upper left shoulder. He believed it to be a harmless lipoma & it was elective to remove it. I chose to remove & he ordered an ultrasound. It was removed as outpatient. The pathology took extra time yo come back. The doctors front desk staff called telling me it was a benign lipoma sarcoma & not to Google it due to it would scare me. They said he got it all but I would need to return every 6 months for 2 years. I returned February 2023. He stopped in the room for a short time and took a quick look. I don’t understand the term benign lipoma sarcoma. I assume it means it’s not cancerous. But it’s a sarcoma? Any thoughts on the diagnosis would be appreciated. Thank you
Rhabdomyosarcoma Cancer in right thigh. Has anyone out there had this type?
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1 ReactionThank you. I’ll check them out.
My husband was doing better after surgery on Jan 9th. Though the last 10 days recently due having a spinal fluid leak and had to be in the hospital for 5 days with heavy packing in his nose and lumbar drain, he has been miserable.
. We pray 🙏 today when they final remove packing from his nose , he will get some relief . Now we hope the plug holds . We won’t know for 5 weeks . Then we will have to meet with oncologist. Going day to day . This was a major serious set back and complication. It has been extremely difficult for me to see him more miserable then after brain surgery . One day at a time . His tumor is rare , especially since it was in the skull.
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4 ReactionsThinking of you❤️
Hi @skullbasecancer4, you can see your previous post to @stin26 here: https://connect.mayoclinic.org/comment/832208/
How is your partner doing? How are you?
Have you had the same tumor and location? Did you ever do additionally treatment? How frequent was yours? What grade was yours? May I ask your age? Thank you
Where do I find that . This is patient’s wife. Just learning how to do this.
blessings!
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