Hello. I am looking for other patients with the diagnosis of Diabetic Autonomic Neuropathy or other autonomic issues, My objective is to find:
1. conducting a national search for an internist willing and able to coordinate my care with a facility such as Mayo, Cleveland Clinic, Johns Hopkins, etc. Must be willing to collaborate with a team of specialists vs. making referrals to local physicians. My case goes across 6 to 7 different specialties.
2. Support group for people with my condition or similar type of autonomic problems. A support group for DAN patients is preferred.
3. A non profit or private resource to provide financial assistance with paying medical related bills, cost of relocation/ subsidies towards housing- I have tried HUD resources- no such luck due to long waiting lists-5 to 8 years from now.
If you know of anyone or a patient advocate resource please email me:
firstname.lastname@example.org and email@example.com