Denied by Neurology and Internal Medicine, what now?
I requested an appointment primarily for Numbness/Tingling/Cold/Pain/Burining in all my fingers, hands, lower arms, toes, feet and lower legs. Figured if I’m going to shell out the money to travel to MN I’d also get seen for a Meningioma or Schwannoma they recently discovered and my rare chronic disorder Idiopathic Hypersomnia diagnosed in 2011. Neurology recommended Internal Medicine instead, but the next day I received a denial (part of which follows):
“Unfortunately, we are unable to offer you an appointment at this time. We recommend you continue your care locally.”
If I could I would continue my care locally, I’ve been trying since January both locally and regionally but am no closer than when I started, I’m still on a “waitlist”. There is a shortage of neurologists in the area and here they have no interest in numbness/tingling issues. Every time it seems like there is hope – something happens like this denial from Mayo. I feel like I have neurology repellent and that neurologists don’t care about my problems. I realize we may never know what it is, but I’d at least like to have someone really try. I don’t feel like I can have the surgery for the Meningioma/Schwannoma until I’ve talked to a specialist about my arms and legs.
Did I get denied because I was asking for too many things? How can I make them understand that I wouldn’t send the money to fly to Mayo if I could find care within 300 miles? I know I can also try other Mayo locations but what can I do to have the best chance at being offered an appointment? I don’t want to be seen as a “problem” or “attention seeker” and burn bridges. Is there a limit to how many times you can request an appointment? Per condition or per patient? Time limits between requests? Could I try applying again with only one of the issues? Which would have the best luck? If I go with the Meningioma or Hypersomnia would that get me in the door to be able to see Neurology about the arms and legs?
I also wondered if Insurance played a role in the denial – the lady in Internal Medicine commented to me that my insurance info was causing red flags and wanted my Medicaid number. I’m 43 and told her I wasn’t on Medicaid or Medicare but it was the only option on her computer. My insurance is part of the First Health Network, wondering if she had run it under First Health instead if that would have made any difference.