Dementia perhaps

Posted by Aspie Ron @aspieron, Apr 4, 2012

Wife of 42 years, upbeat, highly functional, healthy, vibriant, happy, has shown a progressive downhill course in the past year or so. Now sleeps most of the day, likes the temp cold, eats more…has gained 10 to 12 pounds in past 6 months, stopped exercising, loss of interest, three minor MVA in 2011, has not made a meal in over 4 months (was an excellent cook), no desire to go out …to dinner or movies, etc. Begins to focus on one illness and then another to explain her problems. I feel she has memory loss and/or confusion yet she refuses to be tested. PET/CT reveals frontal-paritiall hypo- metabolism, MRI reveals mild cortical atrophy. Recent Neuro consult…Dx. Depression. My impression after living with her for the past 42 years is “He is way off base.” Need help?

@piglit

Hi Aspie Ron. To me maybe this could be signs of early dementia, I say this because I work in the field as a carer in aged care I work high care only. So of the symptons that you have described I have seen in early stage dementia. I can’t make a diagnosis as you know as we can’t do that. Maybe if you can get the Dr to home visit and take tests there. Maybe that may help. Please let me know how you get along Take care Piglit

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Easter Sunday…And she has risen!!!! Seems to be functioning normally for the past 3 days….not staying in bed, went for a ride yesterday, not as verbal as before but seems to answer all my questions, knows we meet the Elder Attorney tomorrow. She suddenly came alive the last few days. This is the most bizarre turn of events that I have ever seen….I should be happy and I am but I am also even more confused….I just don’t understand. She now feels she had Chronic Fatique Syndrome…and has just come out of it. Who cares? AR

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@brigid

I don’t know the answer, but this must be devastating for you. I assume she’s had a myriad of blood tests to rule out various conditions? Perhaps if she is able to comprehend how this is affecting you, she may agree to further testing? The only thing I can suggest is to get another opinion….and another…and another, until you get answers. I wish you the best.

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Well here we have a totally new development. I went to work Friday at 7 and she was in bed…as per usual. Came home at 6 and she was up, had make-up on, had used the vaccum, washing cloths, staightend up the apartment and has basically been her “old self” for the past 3 days. Says she had Chronic Fatique Syndrome…looked it up on the computer and is now over it. I am just blown away… happy yes but very confused about why for the past 4 to 6 months she has been confused, sleeping, keeping the AC on 70, drinking ice water. no energy, and eating…gained 10 to 12 pounds and was prev. a picky eater. I know it’s Easter so maybe I should go to church….and proclaim…”She has Risen”. This is so bizarre. I have been giving her an antidepressant for the past 3 days but I have never seen anything like this. I am just blown away…..I’ll take it tho.

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@brigid

I don’t know the answer, but this must be devastating for you. I assume she’s had a myriad of blood tests to rule out various conditions? Perhaps if she is able to comprehend how this is affecting you, she may agree to further testing? The only thing I can suggest is to get another opinion….and another…and another, until you get answers. I wish you the best.

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WOW RON!! “SHE HAS RISEN.” I’M SO HAPPY FOR YOU BOTH, BUT SURE UNDERSTAND THE AWFUL CONFUSION. I WILL HAVE TO GOOGLE CFS
AND READ ABOUT IT. DID YOU GO TO CHURCH??? HOPE YOU GAVE THANKS.
KEEP UP THE ANTIDEPRESSANTS AND OVERSEETHEM. WISH YOU HAD A REALLY GOOD FAMILY DOCTOR. I GET MORE HELP AND COMPASSION FROM
HER THAN ALL THE SPECIALISTS. STAY HOPEFUL THAT YOU ARE GETTING YOUR LIFE BACK AGAIN…..DO KEEP ME UP-Dated…………………..NANCY

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@piglit

Hi Aspie Ron. To me maybe this could be signs of early dementia, I say this because I work in the field as a carer in aged care I work high care only. So of the symptons that you have described I have seen in early stage dementia. I can’t make a diagnosis as you know as we can’t do that. Maybe if you can get the Dr to home visit and take tests there. Maybe that may help. Please let me know how you get along Take care Piglit

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HiAR I care. The past few months have been out of character and know everything has seemed to have returned to some form of normality. I too would be confused and still would get an assesment done of your wife’s conditon. Hope all goes okay for you. Keep in touch Piglit

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@kathryn04

Sounds very familiar; my husband, 58 yoa now- started acting different in Spring of 2010; very active and heathly and then started to lose interest in day to day activities, didn’t want to do anything, extreme fatgue, rigidity in torso, blank expression, memory decline …have been going to dr’s for almost 2 years now and still do not have a dagnosis. One says progressive supranuclear palsy, another days dimential with lewy bodies and yet another says frontal lobe dimentia. He has symptoms of each but doens’t fit into any one…one sympton that he doesnt have is the falling that are common with all of these and his memory is awful but they say it isn’t alzheimers…so maybe suggest each of these and look into symtpons to see if they fit your wife

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KATHRYN04 u dont mention any medications is your husband on any?

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@kathryn04

Sounds very familiar; my husband, 58 yoa now- started acting different in Spring of 2010; very active and heathly and then started to lose interest in day to day activities, didn’t want to do anything, extreme fatgue, rigidity in torso, blank expression, memory decline …have been going to dr’s for almost 2 years now and still do not have a dagnosis. One says progressive supranuclear palsy, another days dimential with lewy bodies and yet another says frontal lobe dimentia. He has symptoms of each but doens’t fit into any one…one sympton that he doesnt have is the falling that are common with all of these and his memory is awful but they say it isn’t alzheimers…so maybe suggest each of these and look into symtpons to see if they fit your wife

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he is on levadopa., exelon, namenda , serequel and wellburtrin

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