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aspieron

Dementia perhaps

Posted by @aspieron in Brain & Nervous System, Apr 4, 2012

Wife of 42 years, upbeat, highly functional, healthy, vibriant, happy, has shown a progressive downhill course in the past year or so. Now sleeps most of the day, likes the temp cold, eats more...has gained 10 to 12 pounds in past 6 months, stopped exercising, loss of interest, three minor MVA in 2011, has not made a meal in over 4 months (was an excellent cook), no desire to go out ...to dinner or movies, etc. Begins to focus on one illness and then another to explain her problems. I feel she has memory loss and/or confusion yet she refuses to be tested. PET/CT reveals frontal-paritiall hypo- metabolism, MRI reveals mild cortical atrophy. Recent Neuro consult...Dx. Depression. My impression after living with her for the past 42 years is "He is way off base." Need help?

Posted by Anonymous-0a844ca3, Apr 4, 2012

I don't know the answer, but this must be devastating for you. I assume she's had a myriad of blood tests to rule out various conditions? Perhaps if she is able to comprehend how this is affecting you, she may agree to further testing? The only thing I can suggest is to get another opinion....and another...and another, until you get answers. I wish you the best.

aspieron

Posted by @aspieron, Apr 5, 2012

Devastating is the word....I am finding out that everyone has an opinion....and they are all different .....even the neurologists. Glad I am not confused....is this Monday?

Posted by Anonymous-027c6019, Apr 7, 2012

Dear Ron............I can sure sympathize with you!! I have been trying to get a diagnosis for several years for my husband without any success. It is horribly frustrating and discouraging. I absolutely can state #1 your wife MUST get on antidepressants immediately. Depression acts out in so many ways, it often is hard to separate it from other illnesses. I absolutely believe in "neuro-psych testing" It gives you a good baseline of memory, cognitive etc issues. hard to fool a neuro psych person! I also encourage you to absolutely find a compassionate therapist FOR YOU. I don't think I could have made it this far if it hadn't been for my therapist. She is an ADVOCATE FOR ME, and tries to look out for my best interests while being a caregiver. good luck.Nancy
A "PS"................I have had NO luck with Neurogists. My husband, a family physician,and me an ex nurse, can judge medical things quite well. His neurologist of 5 year, told me several weeks ago when I pushed him about a diagnosis of what kind of dementia he had........................said "if he'd just wear his c-pap every night, he wouldn't have memory issues." Thru my own research, I KNOW it is Vascular Dementia.

aspieron

Posted by @aspieron, Apr 8, 2012

Well here we have a totally new development. I went to work Friday at 7 and she was in bed...as per usual. Came home at 6 and she was up, had make-up on, had used the vaccum, washing cloths, staightend up the apartment and has basically been her "old self" for the past 3 days. Says she had Chronic Fatique Syndrome...looked it up on the computer and is now over it. I am just blown away... happy yes but very confused about why for the past 4 to 6 months she has been confused, sleeping, keeping the AC on 70, drinking ice water. no energy, and eating...gained 10 to 12 pounds and was prev. a picky eater. I know it's Easter so maybe I should go to church....and proclaim..."She has Risen". This is so bizarre. I have been giving her an antidepressant for the past 3 days but I have never seen anything like this. I am just blown away.....I'll take it tho.

nancyoneil

Posted by @nancyoneil, Apr 8, 2012

WOW RON!! "SHE HAS RISEN." I'M SO HAPPY FOR YOU BOTH, BUT SURE UNDERSTAND THE AWFUL CONFUSION. I WILL HAVE TO GOOGLE CFS
AND READ ABOUT IT. DID YOU GO TO CHURCH??? HOPE YOU GAVE THANKS.
KEEP UP THE ANTIDEPRESSANTS AND OVERSEETHEM. WISH YOU HAD A REALLY GOOD FAMILY DOCTOR. I GET MORE HELP AND COMPASSION FROM
HER THAN ALL THE SPECIALISTS. STAY HOPEFUL THAT YOU ARE GETTING YOUR LIFE BACK AGAIN.....DO KEEP ME UP-Dated.......................NANCY

piglit

Posted by @piglit, Apr 4, 2012

Hi Aspie Ron. To me maybe this could be signs of early dementia, I say this because I work in the field as a carer in aged care I work high care only. So of the symptons that you have described I have seen in early stage dementia. I can't make a diagnosis as you know as we can't do that. Maybe if you can get the Dr to home visit and take tests there. Maybe that may help. Please let me know how you get along Take care Piglit

aspieron

Posted by @aspieron, Apr 5, 2012

Piglit...This total lack of energy with her staying in bed all day is confusing for me....what is that all about? and she drinks ice water all day and keeps the temp at 70!!!!! I'm freezing and she sweats. now the doctor we were referred to does not take our insurance. I still work 3 days a week and a co-worker asked how I was doing...said okay and cried the entire drive home. Why am I not having fun in our later years?????? Bummmer.

piglit

Posted by @piglit, Apr 5, 2012

Hi you really need to get a definite diagnosis on this. You can' get many different opinions but they may not be the answer that you need.Ican tell this is very frustrating for you, but once you know what's going on things will improve Not sure about your insurance over there, but maybe you can find a dr that can help you. The more questions that go unanswered for you the more confusing it will become.It's okay to cry it helps alot sometimes/ Please let me know how you get along. Yours wife's change in behaviour will be a worry to you. Can't give you the answers about ice water etc. obviously something is not right here and needs to be checked out. Take care here if you need me Piglit

aspieron

Posted by @aspieron, Apr 6, 2012

This early period is certainly very frurstrating...even the neurologist have given me three different opinions. Thanks Piglit

piglit

Posted by @piglit, Apr 6, 2012

Hi just curious have any of the three opinions of the neuriologists think that it may be dementia? This must so be adding to your frustation. Let me know please Take care here as you know if you need me Piglit

aspieron

Posted by @aspieron, Apr 6, 2012

One was dementia (type unknown), one was "hypometabolism in the pre-frontal and temporal areas, and one was depression. Settting up visit this next week with another "sharp" neurologist.....wondering if I should come to Mayo's for an eval. She is in bed most of the day....how long does that last...we are into our 4 th month here. more later.

piglit

Posted by @piglit, Apr 6, 2012

Thanks for the reply as you know I'm concerned for you , and your wife's condition. I would definelty make an appoinment with Mayo, it may help . I think an evaluation is very necessary. If it is dementia related it can be common for them to stay in bed and not have the inclination to get up. Take care Let me know how you get along here if you need me Piglit/

aspieron

Posted by @aspieron, Apr 7, 2012

Hi, Well don't this beat all...I leave for work today at 7:30AM and get home at 6....guess what she is up, make-up on, like her old self, cleaned her closlet and had the washing maching on!!!!!! She says, "I just woke up...I'm feeling better, I looked on the internet and I must have Chronic Fatique syndrome." She is now on the sofa watching Law and Order; says she has been up for most of the day.....now I really am confused. Not at all sure of what is going on....now I am the confused one. Will keep you informed. AR

piglit

Posted by @piglit, Apr 7, 2012

Hi I too am confused by it all. So that makes the two of us. I will still get all of this checked out though. Take care let me know Piglit

aspieron

Posted by @aspieron, Apr 8, 2012

Easter Sunday...And she has risen!!!! Seems to be functioning normally for the past 3 days....not staying in bed, went for a ride yesterday, not as verbal as before but seems to answer all my questions, knows we meet the Elder Attorney tomorrow. She suddenly came alive the last few days. This is the most bizarre turn of events that I have ever seen....I should be happy and I am but I am also even more confused....I just don't understand. She now feels she had Chronic Fatique Syndrome...and has just come out of it. Who cares? AR

piglit

Posted by @piglit, Apr 8, 2012

HiAR I care. The past few months have been out of character and know everything has seemed to have returned to some form of normality. I too would be confused and still would get an assesment done of your wife's conditon. Hope all goes okay for you. Keep in touch Piglit

kathryn04

Posted by @kathryn04, Apr 5, 2012

Sounds very familiar; my husband, 58 yoa now- started acting different in Spring of 2010; very active and heathly and then started to lose interest in day to day activities, didn't want to do anything, extreme fatgue, rigidity in torso, blank expression, memory decline ...have been going to dr's for almost 2 years now and still do not have a dagnosis. One says progressive supranuclear palsy, another days dimential with lewy bodies and yet another says frontal lobe dimentia. He has symptoms of each but doens't fit into any one...one sympton that he doesnt have is the falling that are common with all of these and his memory is awful but they say it isn't alzheimers...so maybe suggest each of these and look into symtpons to see if they fit your wife

marytea13 likes this
aspieron

Posted by @aspieron, Apr 5, 2012

Hi Kathryn04, Sounds close...extreme fttgue...she sleeps most of the day, tries to get up and do something but then gets really tired and goes back to bed....not sure if she is sleeping but just lays there. This so different, it's like night and day....and she doesn't want to do anything....a total loss of interest basically. And the blank expression...I mean we look at each other and it's like I don't know her....huh...after 42 years!!!! She refuses to do any psych type of testing. a totally different person and of course each night I get blamed for whatever. Been to 3 different neurologists and guess what? Yep, 3 different diagnosis.

marytea13

Posted by @marytea13, Apr 11, 2012

KATHRYN04 u dont mention any medications is your husband on any?

kathryn04

Posted by @kathryn04, Apr 11, 2012

he is on levadopa., exelon, namenda , serequel and wellburtrin

stardisc

Posted by @stardisc, Apr 7, 2012

I'm sure you will have the tests sometime but sounds like possible depression or I would review medication first statins which are known to cause dementia in small population of women and some men
Review all meds first

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