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Crohn's Disease

Posted by @hopex in Digestive Health, Jan 13, 2012

I'm a 22 yr old female who was just diagnosed with Crohn's after suffering for four years with horrible abdominal issues. My doctor is a trip and has lost her sympathy for patients. I've never been so depressed in my life and I would like to think that I have been through alot of hard times already. I stay away from dairy, tomato based foods, cream based foods, spicey foods, and really sugary foods. I throw up every day and have random bouts of diarrhea. The pain is mostly gone (thank goodness) but I'm on horribly expensive medication, that you would hope would be worth it (Mesalamine and Budesonide). I'm losing hope that one day I will be ok. I used to be a pretty positive fun person but this disease has ruined me. Please anyone give me input on what more I could do to keep my chin up......

Tags: chrohns disease


Posted by @jennyj, Jan 15, 2012

I know exactly how you feel. I have been suffering for over 5 yrs now and they still can't figure out what's wrong with me. I've had surgeries for Endometriosis and cycsts then just recently had a hysterectomy. I am still having a ton of stomach pain, nausea and vomitting, diahrrea. They thought I had Celiac Disease but after closely watching my diet and changing what I eat I am still not doing well. I've missed so much work because of this and have this hopeless feeling. I feel that nobody will ever be able to figure this out. I feel like I will never feel good again. I really hope things get better for you soon! Stay in close contact with friends and family, that seems to help me. and just remember you're not alone. best of luck to you and I hope blue skies are on the way for you!


Posted by @hopex, Jan 16, 2012

oh wow you really lifted my spirits! thanks so much!


Posted by @catherineremi, Jan 19, 2012

I also was just diagnosed with crohns after 11years of chronic secretory idiopathic diarrhea. I had my first camera endoscopy test and that is what showed the crohns in my small intestine which could not be seen by either regular endoscopy or colonoscopy. I've had a rough time, I only have 1/3 of my small intestine left and 2/3 of my colon. I had total fecal incontinence so in 2007 I had surgery for a colostomy. I am 53 and I keep my chin up by wanting to be here for my husband, children, and grandchildren. I don't want my grandchildren to remember me as their "sick" grandma. I strive every day to make good and happy memories for all of us. I hope your doctor can come up with some treatment that will lesson your symptoms and improve your quality of life. If you're not happy with your doc, find a new one. It's your body and your life, you are your own best advocate. Hang in there! I'll be praying for you!


Posted by @jenniferperkins, Jan 21, 2012

I hear u....just went to mayo and still I suffer! I am on my third gastro doc here at hm! I am on Humira injections and Mesalamine enema. Hate it!
Have faith...keep trying...we can't give up!


Posted by @holly12, Jan 28, 2012

I highly recommend reading "Kitchen Table Wisdom" by Rachel Naomi Remen. She is an MD who sort of change careers mid-life to working with people with chronic and serious illnesses from a psychological perspective and learning to cope and make meaning. The cool part is she has Chron's Disease herself and has had 15 surgeries at the time she writes the book, so she knows what it's like to be on the other side of things!

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Posted by @eddiesrp, Aug 24, 2012

Join a Crohs support group! It will help you learn about our disease and you will meet others with the same condition and that will help you stay positive. Thats my best advice to you....... I had ulcerative colitis and went trouhgt some bad times...doing better now.....good luck.......

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