XALKORI (crizotinib)

Posted by 2onlow8 @2onlow8, Oct 19, 2019

I’m getting switched off of Keytruda and Alimta to targeted therapy Crizotinib. Does anyone have any experience with this? Side effects? Success/failure? I’m told I have few options available.

Interested in more discussions like this? Go to the Lung Cancer group.

2onlow8 | @2onlow8 | Feb 26, 2020

In reply to @merpreb "@2onlow8- WHile we wait for someone to help with your questions about Xalkori I am wondering..." + (show)

I am doing seated yoga and COPD breathing exercises to increase my lung capacity and weights to exercise my arms, exercise bands to move my legs.

Merry, Volunteer Mentor | @merpreb | Feb 26, 2020

@2onlow8– Good morning. Good for you. You seem to have everything covered. There are also a number of good exercise videos on youtube if you get bored or run out of ideas. I'd also like to invite you to a new virtual walking group on Connect.
https://connect.mayoclinic.org/discussion/lets-go-walking-join-me-for-a-virtual-walking-support-group/
Do you get out and walk? If not there are exercises for people who can't walk outside or who need to sit in a chair. Is this something that you might be interested in?

2onlow8 | @2onlow8 | Feb 29, 2020

In reply to @merpreb "@2onlow8- Good morning. Good for you. You seem to have everything covered. There are also a..." + (show)

Yes I’ll check these links out. Thanks. Results of my most recent blood work this week show no change in my CEA. That may signal that Xalkori (Crizotinib) has stopped its effectiveness. My dr has no further treatment suggestions if this is confirmed by a CAT scan next month.

Merry, Volunteer Mentor | @merpreb | Feb 29, 2020

@2onlow8– Oh those are words none of us want to hear, "no further treatment suggestions". Do you think that you will seek more opinions?

rca55tjk | @rca55tjk | Mar 21, 2020

In reply to @ethanmcconkey "Hi @2onlow8 here is some more information on crizotinib (Xalkori) https://www.cancerresearchuk.org/about-cancer/cancer-in-general/treatment/cancer-drugs/drugs/crizotinib What has your doctor told..." + (show)

Regarding crizotinib (Zalkori), how much is this drug if your insurance is Medicare?

2onlow8 | @2onlow8 | Mar 21, 2020

I have Medicare and AARP UHC and it would have cost me an additional $9600/mo.

Merry, Volunteer Mentor | @merpreb | Mar 23, 2020

In reply to @merpreb "@2onlow8- Oh those are words none of us want to hear, "no further treatment suggestions". Do..." + (show)

@2onlow8–- Good morning. I am checking in to see how you are doing and if you have made any decisions about treatments given your last post!

2onlow8 | @2onlow8 | Mar 23, 2020

In reply to @merpreb "@2onlow8- Oh those are words none of us want to hear, "no further treatment suggestions". Do..." + (show)

I have a 2nd opinion oncologist at MD Anderson, Jacksonville, who has been very supportive of me and my local oncologist's suggestions over the past 2 years of my treatments. I'm awaiting results of a PT scan I had on Friday and he will also get those scan results so I'm sure we'll have a conversation this week.

Merry, Volunteer Mentor | @merpreb | Mar 23, 2020

In reply to @2onlow8 "I have a 2nd opinion oncologist at MD Anderson, Jacksonville, who has been very supportive of..." + (show)

@2onlow8– This is good to hear. Please keep us updated! Keep safe.

2onlow8 | @2onlow8 | Mar 23, 2020

You too — as well as all of us with this horrible 'underlying condition'.

2onlow8 | @2onlow8 | Mar 30, 2020

In reply to @merpreb "@2onlow8- Oh those are words none of us want to hear, "no further treatment suggestions". Do..." + (show)

Very happy to report that last week’s PT scan showed remarkable improvements to my lungs after 3.5 months of Xalkori! But I am still very short of breath due to fluid build up and damage to my lungs. Thoracentisis being scheduled. So far so very very good 😷.

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