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Diagnosed with Uterine Cancer (Leiomyosarcoma)
I was diagnosed with Uterine Cancer (Leiomyosarcoma) this month. Two months ago large mass was found in my uterus. Prior to that, there were no signs or symptoms of large mass. I received my Covid vaccine on 12/9/21 on the first day of my cycle. My period went from being very heavy to light spotting that month. This never happens. Ten days later I went into the ER due to severe pelvic and abdominal pain. A CT scan confine a large tumor (tennis ball) growing in my uterus. I have no history of fibroids and a recent Ultrasound confirms that. Less than a month later I developed Covid(delta/omicron unknown) and my recovery time over three weeks. During that time my uterus/tumor doubled in size, as if I was in my last trimester of pregnancy. A full hysterectomy was performed and biopsy confirms uterine cancer (lmsarcoma). I believe the Covid vaccine and infection triggered the cancerous tumor to grow rapidly in a short period of time causing the pain and discomfort to manifest. Curious if anyone else has experience with the impact of Covid and cancer.
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Hi...thanks for your reply. Just curious as to which chemo drugs that you had? How was the chemo experience? I didn't have chemotherapy before and don't know what to expect. Sending positive thoughts and prayers to you too. 🙂
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2 ReactionsYours sounds just like what I’m going through. It returned to the liver and lungs. Chemo took care of it and a year later it is back in the lungs. I’m doing radiation and then a chemo pill this time.. Prayers for you.
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1 ReactionNew treatments have changed every year.
@azhazhotpets Since you are looking for a physician who specializes in LMS, I’m wondering if your doctor will make a referral to Mayo Clinic in Arizona.
Mayo Clinic Appointment Request
— https://www.mayoclinic.org/appointments
There are also hospitals and physicians in Arizona who are affiliated with Mayo through the Mayo Network. Here is a link to read about it and to see if there is a clinic near you.
Mayo Network:
— https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members
Have you or your doctor been in contact with Mayo Clinic or the Mayo Network?
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3 ReactionsThank you. I do agree I need a dr. That specializes in LMS. In arizona, I have not found one yet. Wishing you no more spreading only shrinking!💕
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2 ReactionsHi...I too have LMS, was found 2 years ago in my IVC vein, stage 2. Did surgery to remove it and right kidney. It has now returned to my liver and lung now at stage 4. Dr. reviewing options of liver surgery and then follow-up with chemo. Its best to find a specialist who has experience with this type of cancer. Wishing you well...
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5 ReactionsAlso, can I communicate with this Dr.? Are you in arizona?
Is Dr. Monsoon the retired Dr?
Dr. Monson told me chemo does not treat a sarcoma cancer. My mother also had a sarcoma many years ago and all they could do at the time was remove it.. I was a child but I don't think she had radiation.
I would get radiation before they remove it if you have that option.
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2 ReactionsThank you for your response. I hope I’m as lucky as you. My dr. Doesn’t specialize in LMS so he’s given me the choice of radiation or chemo first. I didn’t catch the symptoms as fast. But we’re moving fast now on the attack plan. Thank you for your support. I wish you well!
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