1. < Gynecologic Cancers

Diagnosed with Uterine Cancer (Leiomyosarcoma)

Posted by cjacobs99 @cjacobs99, Mar 4, 2022

I was diagnosed with Uterine Cancer (Leiomyosarcoma) this month. Two months ago large mass was found in my uterus. Prior to that, there were no signs or symptoms of large mass. I received my Covid vaccine on 12/9/21 on the first day of my cycle. My period went from being very heavy to light spotting that month. This never happens. Ten days later I went into the ER due to severe pelvic and abdominal pain. A CT scan confine a large tumor (tennis ball) growing in my uterus. I have no history of fibroids and a recent Ultrasound confirms that. Less than a month later I developed Covid(delta/omicron unknown) and my recovery time over three weeks. During that time my uterus/tumor doubled in size, as if I was in my last trimester of pregnancy. A full hysterectomy was performed and biopsy confirms uterine cancer (lmsarcoma). I believe the Covid vaccine and infection triggered the cancerous tumor to grow rapidly in a short period of time causing the pain and discomfort to manifest. Curious if anyone else has experience with the impact of Covid and cancer.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

marchelle | @marchelle | Nov 6, 2023
In reply to @joan450 "What was done for post surgery treatment. My drs are recommended radiation. I’m having a consultation..." + (show)
@joan450

What was done for post surgery treatment. My drs are recommended radiation. I’m having a consultation on the 14th.

Jump to this post

I started chemo a month after my diagnosis.

REPLY
1 reply
marchelle | @marchelle | Nov 6, 2023
In reply to @smcquaig "Hi @marchelle, I was wondering how you are doing after your treatment. My husband lost his..." + (show)
@smcquaig

Hi @marchelle, I was wondering how you are doing after your treatment. My husband lost his leg to LMS in March then found that is had spread to his lungs. He is set to start chemo next week where they plan to do 2 rounds then another CT to see if it is working. I'm praying that the treatment you received has worked for you and that you are feeling better. I'm very interested in the Covid vaccine aspect as we are suspicious of that as well. Any updates on your heath and the vaccine link?

Jump to this post

I am so sorry the late response. The doctor said that treatment is working, tumors are shrinking. I got covid the first week in October and they stopped my treatments until November 2nd. The doctor said that hopefully there was no growths because of me not having treatments for 3wks. I fully trust God.

REPLY
1 reply
Mentor
Helen, Volunteer Mentor | @naturegirl5 | Nov 5, 2023
In reply to @joan450 "Mot with Covid and cancer, but I just had my second surgery (previous one was the..." + (show)
@joan450

Mot with Covid and cancer, but I just had my second surgery (previous one was the hysterectomy to get rid of a big leiomyosarcoma that had a myxoid component). This second tumor grew to the size of an egg in a month and a half. I’ve read that it’s a very rare, very aggressive cancer, the tumor is capable of doubling in size in 4 weeks.

Jump to this post

@joan450 This is so difficult. Your post that follows this indicates that you will meet with the radiation oncologist on November 14.

This is so much to take in. Are you getting your care close to home? How are you feeling about all of this?

REPLY
2 replies
joan450 | @joan450 | Nov 5, 2023
In reply to @joan450 "Mot with Covid and cancer, but I just had my second surgery (previous one was the..." + (show)
@joan450

Mot with Covid and cancer, but I just had my second surgery (previous one was the hysterectomy to get rid of a big leiomyosarcoma that had a myxoid component). This second tumor grew to the size of an egg in a month and a half. I’ve read that it’s a very rare, very aggressive cancer, the tumor is capable of doubling in size in 4 weeks.

Jump to this post

Wish I’d reread my previous post. I meant to sat - Not about Covid and cancer- and my drs are recommending..

REPLY
1 reply
joan450 | @joan450 | Nov 5, 2023
In reply to @marchelle "Thank you. I'm not sure if you will see this, but you encouraged me. I was..." + (show)
@marchelle

Thank you. I'm not sure if you will see this, but you encouraged me. I was diagnosed with leiomyosarcoma in January 2023, after having a total hysterectomy. It metastasized to my lungs, on my 2nd round of treatment. Trusting God and staying positive, all the way. I

Jump to this post

What was done for post surgery treatment. My drs are recommended radiation. I’m having a consultation on the 14th.

REPLY
1 reply
joan450 | @joan450 | Nov 5, 2023

Mot with Covid and cancer, but I just had my second surgery (previous one was the hysterectomy to get rid of a big leiomyosarcoma that had a myxoid component). This second tumor grew to the size of an egg in a month and a half. I’ve read that it’s a very rare, very aggressive cancer, the tumor is capable of doubling in size in 4 weeks.

REPLY
2 replies
smcquaig | @smcquaig | Aug 29, 2023
In reply to @marchelle "Thank you. I'm not sure if you will see this, but you encouraged me. I was..." + (show)
@marchelle

Thank you. I'm not sure if you will see this, but you encouraged me. I was diagnosed with leiomyosarcoma in January 2023, after having a total hysterectomy. It metastasized to my lungs, on my 2nd round of treatment. Trusting God and staying positive, all the way. I

Jump to this post

Hi @marchelle, I was wondering how you are doing after your treatment. My husband lost his leg to LMS in March then found that is had spread to his lungs. He is set to start chemo next week where they plan to do 2 rounds then another CT to see if it is working. I'm praying that the treatment you received has worked for you and that you are feeling better. I'm very interested in the Covid vaccine aspect as we are suspicious of that as well. Any updates on your heath and the vaccine link?

REPLY
1 reply
dfflores | @dfflores | Aug 12, 2023
In reply to @marchelle "You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total..." + (show)
@marchelle

You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total hysterectomy, now spread to my lungs. I'm in my 2nd round of treatment. I pray that God send His healing angels to touch us all. I pray for no more spreading, only shrinking tumors and they are all destroyed to their core, in Jesus name. Bless you, and stay encouraged.

Jump to this post

Keeping you and yours in thoughts and prayers😇

REPLY
rdm62 | @rdm62 | Aug 11, 2023
In reply to @marchelle "You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total..." + (show)
@marchelle

You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total hysterectomy, now spread to my lungs. I'm in my 2nd round of treatment. I pray that God send His healing angels to touch us all. I pray for no more spreading, only shrinking tumors and they are all destroyed to their core, in Jesus name. Bless you, and stay encouraged.

Jump to this post

Hi Michelle. I'm sorry to hear that LMS had spread to your lungs. I do hope that your treatments and your faith eradicate the cancer. Staying positive is so important in healing. Cancer can be physically and emotionally draining, but I hope that you have a strong support system around you that can help you get through this physically and mentally. I will keep you in my prayers.

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 11, 2023
In reply to @marchelle "You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total..." + (show)
@marchelle

You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total hysterectomy, now spread to my lungs. I'm in my 2nd round of treatment. I pray that God send His healing angels to touch us all. I pray for no more spreading, only shrinking tumors and they are all destroyed to their core, in Jesus name. Bless you, and stay encouraged.

Jump to this post

Hi @marchelle, a belated welcome to you and I'm hoping @azhotpets @karynk @dfflores @rdm62 @designer22 will join me in my welcome.

May I ask what treatment you're now on Marchelle? How are you doing?

REPLY
View MoreView Less
Please sign in or register to post a reply.