Diagnosed with Uterine Cancer (Leiomyosarcoma)

Posted by cjacobs99 @cjacobs99, Mar 4, 2022

I was diagnosed with Uterine Cancer (Leiomyosarcoma) this month. Two months ago large mass was found in my uterus. Prior to that, there were no signs or symptoms of large mass. I received my Covid vaccine on 12/9/21 on the first day of my cycle. My period went from being very heavy to light spotting that month. This never happens. Ten days later I went into the ER due to severe pelvic and abdominal pain. A CT scan confine a large tumor (tennis ball) growing in my uterus. I have no history of fibroids and a recent Ultrasound confirms that. Less than a month later I developed Covid(delta/omicron unknown) and my recovery time over three weeks. During that time my uterus/tumor doubled in size, as if I was in my last trimester of pregnancy. A full hysterectomy was performed and biopsy confirms uterine cancer (lmsarcoma). I believe the Covid vaccine and infection triggered the cancerous tumor to grow rapidly in a short period of time causing the pain and discomfort to manifest. Curious if anyone else has experience with the impact of Covid and cancer.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

azhotpets | @azhotpets | Nov 9, 2023

In reply to @marchelle "Did you have a hysterectomy? You are in my prayers 🙏🏿" + (show)

Yes. That is how they found the LMS

marchelle | @marchelle | Nov 9, 2023

In reply to @joan450 "I’m trying to constantly acknowledge that, today, I’m completely healthy. I have my baseline of fear..." + (show)

Bless your heart. You are not alone my sistah, we are on this battle field fighting with you. I am praying for your strength and faith.

marchelle | @marchelle | Nov 9, 2023

In reply to @joan450 "Wow! My doctor told me about the possibility of it traveling to my lungs. That scared..." + (show)

Yes. More chemotherapy is scheduled until February 2024. I am battling extreme leg swelling and leg pain. Any suggestions on this for relief?

marchelle | @marchelle | Nov 9, 2023

In reply to @azhotpets "I was diagnosed 4/10/23 with LMS. Chemo started 7/21. I’ve had 6 treatments and a ct..." + (show)

Did you have a hysterectomy? You are in my prayers 🙏🏿

jm | @jodimj | Nov 8, 2023

In reply to @joan450 "I’m trying to constantly acknowledge that, today, I’m completely healthy. I have my baseline of fear..." + (show)

I love your first words, I am healthy! That’s a powerful affirmation, and you have a realistic, and honest awareness. I too choose not to allow negativity to rule. Lonleness is tough one, think it’s my own doing. Would like to have more friends in this secret society of c patients to share and learn experiences and coping skills. A little off from what you expressed, however I am great full you shared this. .. jm

joan450 | @joan450 | Nov 6, 2023

In reply to @marchelle "Please forgive my late response. I have been doing chemo since July 2023. The doctors said..." + (show)

Wow! My doctor told me about the possibility of it traveling to my lungs. That scared me. So much is out of our control - very hard to accept that. Will you be doing more chemo? What is your dr suggesting?

joan450 | @joan450 | Nov 6, 2023

In reply to @naturegirl5 "@joan450 This is so difficult. Your post that follows this indicates that you will meet with..." + (show)

I’m trying to constantly acknowledge that, today, I’m completely healthy. I have my baseline of fear and anxiety, but to live in it, alone is wasting time. Literally. I want to be watched closely, now, very closely. I won’t fake positivity, but I also won’t wallow in negativity. Obviously, I’ll keep reading and asking and hope the medical community comes up with new early detection and treatment methods. Good luck to all of us.

azhotpets | @azhotpets | Nov 6, 2023

In reply to @marchelle "I started chemo a month after my diagnosis." + (show)

I was diagnosed 4/10/23 with LMS. Chemo started 7/21. I’ve had 6 treatments and a ct scan. The cancer is stage 1 and in the vaginal cuff that has shrunk 1/3 the size. However the colon has moved over near the cuff and is endangered by the cancer. Radiation along with chemo is the plan for the next 25 days.

jm | @jodimj | Nov 6, 2023

Ov can. 3b , high grade carsinoma, mid 60s, Had historectomy, then carbo taxol treatments, all ca125 back to normal. first 35, then 11 and 9, it’s beating my feet and bones up. Thinking of quitting while I’m ahead. Reduced Paxil 25% 2nd treatment and numbers are still dropping. But she did say they could fluctuate. I’m concerned that this is all protocol, the atrophy, and neuropathy is irreversible and wonder if I should quit while ahead. Can’t believe how its aged me, and brain loss lol 11 days recovery after 3rd treatment, and my emotions not alway great, negative. Feel it’s best to hide than be mean. Wish I had a c friend to compare, I do have one in much tougher shape than me. what to expect, diet… I just had a terrible sweet tooth, not me and stopped.
Also plan to get Covid and rsv shot this week before treatment, any input? Drs. Didn’t say much other do them 4 days before treatment. Any input? Thanx a little fragile, thanx

marchelle | @marchelle | Nov 6, 2023

In reply to @colleenyoung "Welcome @cjacobs99, I added your discussion to the Gynecologic Cancers group here: https://connect.mayoclinic.org/group/gynecologic-cancer/ I did this..." + (show)

Please forgive my late response. I have been doing chemo since July 2023. The doctors said they were shrinking...then I got covid the 1st week in October, so I didn't do treatment again until November 2nd. I'm praying that it didn't cause any harm. Because it spread from my uterus to my lungs, its considered stage 4. Trusting God through it all. I have been experiencing severe leg pain and swelling.