Curious if anyone is willing to share what symptoms they had leading to a NET diagnosis.
I am an 18 year old female who has been struggling with some medical issues over the past 2 years. I was initially diagnosed with epilepsy because of a couple fainting/seizing spells and severe headaches. After being put on seizure meds, these symptoms (debilitating headache, abdominal pain on Zonisamide) seemed to worsen so I chose to get a 2nd opinion from an epilepsy specialist. After a normal sleep deprived EEG, she agreed with me that she did not think this was epilepsy, but something else. After stopping the meds, I felt like a new person. However, since last summer, the issues have seemed to come back and gradually worsen. I still get occasional headaches and abdominal pain but not to the degree as when on anti convulsants. Although, I am passing out more frequently (2x in one week the beginning of this month) and have frequent cyclic episodes of nausea/vomiting. I cannot complete common tasks without feeling faint or nauseous. Just yesterday, I was pumping gas and almost fainted in the parking lot. Furthermore, GI seems to be affected and upset. I have had MRI/CT of brain and abdomen which was normal. Blood work came back normal except for cortisol which was high ~40. (May be due to birth control?)
Did anyone experience anything similar?
Liked by Teresa, Volunteer Mentor