Cost of Life With CF

On October 13 at 7pm (Eastern), the Cystic Fibrosis Foundation is offering a no-cost, peer-led CF Circle on the different costs of life with CF including paying for care, insurance, and everyday needs. All these costs can add up, and financial tradeoffs in our community are common. Join the conversation to discuss the day-to-day costs and challenges of living with CF. CF Circles provide a supportive virtual space to share experiences, exchange insights, and connect with others who understand the CF journey.

To register, go to: https://cff.zoom.us/meeting/register/JeksMf8gTAyXReaE-df0gw

I've not seen this issue addressed previously, but I can attest that dealing with the cost of having this disease is truly a challenge. Just finding ways to afford medication expenses not covered by insurance can be a nightmare. As a CF patient with heart disease, I thought I might have a heart attack when I first found out what the copay was for my monthly Trikafta prescription! I'd love to know how others are coping.