Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Posted by tmmmrlts @tmmmrlts, Jan 7, 2019

My husband has been diagnosed with all four of these and I just want to understand more about what is to be expected. And what I can do to help.

Interested in more discussions like this? Go to the Lung Health group.

@tmmmrlts

Well my husband fought and struggled long enough. He went home to be with our daughter and granddaughter on 6-14-19.

Jump to this post

@merpreb Thank you for all of your help through all of this. You are a very special person.

REPLY
@tmmmrlts

Well my husband fought and struggled long enough. He went home to be with our daughter and granddaughter on 6-14-19.

Jump to this post

@tmmmrlts – I am so sorry. You fought with him for a very long time.
I hope that you will find peace now.
If I can help in anyway you just need to call out.
You are also very special. It's been an honor to stand with you.
There is a grieving site on connect. My cellphone is acting up otherwise I'd write the link.
My best to you with a warm hug.

REPLY
@merpreb

@tmmmrlts – I am so sorry. You fought with him for a very long time.
I hope that you will find peace now.
If I can help in anyway you just need to call out.
You are also very special. It's been an honor to stand with you.
There is a grieving site on connect. My cellphone is acting up otherwise I'd write the link.
My best to you with a warm hug.

Jump to this post

@tmmmrlts– Good morning. This is the site I was referring to if you need it. I hope today is a better day than yesterday.

Loss and Grief Group: mhttps://connect.mayoclinic.org/group/loss-grief/

REPLY
@merpreb

@tmmmrlts– Good morning. This is the site I was referring to if you need it. I hope today is a better day than yesterday.

Loss and Grief Group: mhttps://connect.mayoclinic.org/group/loss-grief/

Jump to this post

Yes I'm sleeping better especially when I keep my grandchildren. I guess it's just knowing someone else is here. Thank you I will go to the site you recommended. I also started going back to church.

REPLY

@tmmmrlts– Good morning. I'm so glad that your grandchildren are a comfort, and that you are sleeping at least. No matter what kind of relationship we have with a spouse, loving or otherwise, it's not easy to lose them. And time will be your best healer, and for you church and your beliefs. Other than church are you getting out at all? Are you ready for that?

REPLY
@merpreb

@tmmmrlts– Good morning. I'm so glad that your grandchildren are a comfort, and that you are sleeping at least. No matter what kind of relationship we have with a spouse, loving or otherwise, it's not easy to lose them. And time will be your best healer, and for you church and your beliefs. Other than church are you getting out at all? Are you ready for that?

Jump to this post

Yes I am going places my friends her and her husband have been there for me through all of this. we go out and eat lunch together. His cousin and I went to sikeston and went shopping together and had lunch.

REPLY

@tmmmrlts – This is great news! I'm so glad.

REPLY
@kathydyd

I am so sorry. He is so young. I smoked for 46 years. Your husband needs to choose – life or premature death. Give it up one cigarette at a time. The urge comes on so strong, but it goes away once you fight it. I love being a non-smoker. I no longer feel like I have leprosy. It has been 4 years and there are things I do miss about it, but I know/hope that my choice to stop will allow me more time with my kids and grandkids.

Jump to this post

Smoking , quitting can be done when you have a strong will to live!!

REPLY
@tmmmrlts

He has had copd since 2011, and dont know how long he has had pulmonary fibrosis, or the honey comb lung and it's been almost a year since he was diagnosed with mac bacterial infection.
I know my husband and he is not one to just sit around and do nothing. But he has been running fever in the afternoon and throwing up every day. No matter what he eats. He has lost 20 lbs in about a month. He lays down more than he ever has. I brung this up to his dr in dec and he said I will let the infectious disease dr handle it. We have used this doctor for 30+years and I dont understand him anymore.

Jump to this post

I wish you the best of luck and I would see another doctor, sounds like the one you used all these years is not what you need. Have you seen a pulmonary doctor?

REPLY

Sorry for your loss, didn't see the later posts, God bless, Sincerely Jeanette

REPLY
@merpreb

@tmmmrlts – This is great news! I'm so glad.

Jump to this post

Just letting you know I am In school i am trying to get my high school diploma. I hope and pray all of you on here are doing okay.
Still struggling. Thank you. Wishing everyone a very good Thanksgiving

REPLY
@tmmmrlts

Just letting you know I am In school i am trying to get my high school diploma. I hope and pray all of you on here are doing okay.
Still struggling. Thank you. Wishing everyone a very good Thanksgiving

Jump to this post

You are so special! Remember, one day at a time, one class at a time, one quiz at a time, one test at a time, and you will walk with pride and you will receive your deploys! Never give up and know that you are in many peoples thoughts and prayers. We would love 2 invitations to your graduation, so we can celebrate with you! You are the BEST! Never give up❤️

REPLY
Please sign in or register to post a reply.
  Request Appointment