Mayo Clinic Connect
I am dealing with conversion disorder and wonder if there is anyone else out there who may be interested in communicating about their experience
I too have been diagnosed with conversion disorder. Do you have Pseudo Seizures?
I have stroke like sx. and mobility problems, falling and unable to talk or swallow. Swallowing is a little scary, mobility problems are always present, speech problems come and go. No pseudo seizures.
My daughter has just been diagnosed with Conversion Disorder and I’m interested in finding out more about it. She was initially diagnosed toward the end of July after having two head injuries almost exactly 48 hours apart. The ER couldn’t find anything physically wrong with her despite the fact that she had paralysis in her left side and couldn’t remember the last two years of her life. Last Thursday she was starting her workout and had a very sharp pain in her head and went blind. Again, CT scan showed nothing wrong. She has regained most of her sight but hasn’t been allowed to leave the hospital, yet.
Apparently blindness is one of the common sx of conversion disorder. Have they done EEG to rule out neural problems or sz activity? How long ago was the head trauma?
She had two head traumas 48 hours apart on 7/21 & 7/23. Both were falls; the first she hit a wall with the top of her head hard enough to bounce off (we think she blacked out walking into the bathroom, which is shy her head was down in that position); the second, she fell off a float in the lake and hit her head on a rock at the bottom. Yes, they did do an EEG 2-3 days after the second trauma and it didn’t show anything. After the second head injury she had paralysis in her left side and still does not remember the last 2 years. Her knowledge is there but memories of people, events, places or how she got that knowledge is not there.
Conversion disorder is a very difficult dx. A dx. Of exclusion therefore it takes time to dx. Sounds like they did a lot of good tests. My question at this point in my experience was where to go from here.
She is having to go to a psychiatrist to work out ways to handle stress more efficiently and to break through the barriers that she has set up. She has only had one visit so far and is very set on not going back. It isn’t that the visit went bad. I thought it went very well. It’s just that she doesn’t know enough about conversion disorder and doesn’t want to accept the diagnosis. Also, most of the stress that would have caused this came in the two years that she has blocked out. The Dr. that she is seeing is supervised by a Dr. that specializes in Conversion Disorder and treats at least three cases a year, so I feel good about who she is seeing. I’m sure things will go much better when she comes to accept the diagnosis.
Sounds like an awesome Dr. I am seeing a therapist who worse with a pcychiatrist. My therapist is quite good, some weeks are more difficult than others. Sounds like you guys are on a great path to success.
The doctors are wanting to diagnose my son with the same thing- we just recently went through many many tests related to his memory loss, headache, tremors, seizure like activity, loss of feeling on his left side- no injuries, and we are having trouble pinpointing the stress in his life- we are up to see yet another Psych ( 2 already) soon. I hear that it is a tough diagnosis to make, and yet, they hopped right on this one. I am just not sure yet- I too am looking for answers, and hope that we have not missed anything otherwise.
Liked by BrittanyMccrory
It is a tough dx. Certainly warranting a second opinion. One excellent
Thing is the prognosis is potentially good. Does take commitment and work on the pt. Behalf, well worth it though. What is your sons age?
He is 15-Typically a very active, upbeat kid. He is active in band, his grades are good, and things are good with his friends. I can’t seem to come up with any life-changing events or depressive symptoms that co-incide with this dx. I am a little frustrated I guess. The first Psych that saw him in the hospital said to us not to let them “box” him in to a dx like this, to keep pushing. The second said there wasn’t any other explanation but this disorder. My son has agreed to see the 3rd Psych, to “give it a shot” so he says, wanting the pain and tics/tremors to end. I want to do whatever he needs, so if this works, I say alright! But I am a little concerned as well, hoping that we have covered everything. I hear that prognosis is usually good, especially in someone his age. Once therapy begins, is it learning to cope with anxiety/stress issues, or are they looking for a root cause?
I don’t think a good therapist has a predetermined formula that they use for everyone but rather get to know a little about the pt. First which includes a lot of observation and listening on their part. Seems to me like both would be involved though. I am currently reading an awesome book titled “Trauma and the Body” and it has really helped me have a better understanding of the mind body connection. Your son sounds like a great kid!
i was just told i have it i can’t walk it has happen to me twice in a year they have done every test i’ve seen 2 nero doc and a team in boston there the ones who say i have this what do i do know and do you know any good webs to go on that tell you about it thank u
A book I have found to be very enlightening is “Trauma and the Body” the e book is more cost efficient. This book provides a inclusive overview of CD.
We are om the process of trying to identify if my daughter has a medical condition or conversion disorder. How old are you? What are your symptoms?
version 22.214.171.124Page loaded in 5.532 seconds