Considering going to Mayo Clinic in Arizona, need advice please!
I'm posting this to get feedback on what me and my family will be doing and also perhaps connect with someone that is going through the same thing or has a family member with the same issues as my mother.
Pardon any typos.
I have known about Mayo Clinic for sometime now but never thought about actually give it a chance (in any of the locations) until today. The reason being is that my mother has not been getting the proper treatment for her failing left kidney (or what is left of it). Due to medical negligence. It started when her gallbladder was removed back in 2009. Things have gotten worse over the past 10 years.
My mother does not have any other medical issues. She was fine until she started to vomit one evening and got very sick. She was rushed to the hospital (here in Florida.)
They told her she needed her gallbladder removed. Ever since then, she started to suffer from lower left quadrant pain. At first, it was dull pain and the general surgeon that removed her gallbladder told her that she needed hernias removed. (That was not true.) She then went to another surgeon and got some removed. That did not resolve the pain. The pain got worse over the years and later on her blood pressure started to sky rocket. Before she could control it with blood pressure medication but now not even her high dose pain medications can help.
We have gone to all different types of specialists figuring out what this was. Every single one said that either she has nothing, or throw us to another doctor. Rise and repeat.
We have seen a gastrologist, a gynecologist, a urologist and others. They all claim that her tests have come back normal and that both kidneys are fine. However she is showing signs of someone that is going through kidney failure (high blood pressure that cannot be control, pain near the area where a kidney transplant would be, difficulty with going to the bathroom, foul smell from area of pain, completely bed ridden, etc.)
My mother has gotten all sorts of tests, CT scans, Hida, MRI, and more. In most CT scan reports, they say there is scarring on the left kidney. She did a blood test that was done by a doctor a few years ago that looked at hormones produced by the left one and the blood test came back abnormal. We have stacks of medical records and reports dating back to 2009.
This has all gone on in florida, and we know for a fact that her left kidney is either dying or something else was put in there without us knowing. She needed to be admitted to the hospital a few days ago (she had to be taken to the hospital so many times throughout the years due to this.) and they properly detected her blood pressure (256/133, numbers similar to this. It is ALWAYS high.) along with running a CT scan where they said that they see a blockage near the area of the pain.
My mother needs an endoscopy done (they told her this.) and more than likely a biopsy of her lower left quadrant. (was suggested by a few doctors in the past but NOTHING was done or no follow up.)
Lower left quadrant pain. Foul smell from that area only. High blood pressure that cannot be controlled by her blood pressure pills (And any.)
Shows al signs of failing left kidney or transplanted one. Doctors in the past asked her if she received a kidney transplant due to medical history, symptoms, area of pain.
Pain and blood pressure has not gotten better.
High dose pain medication that she takes for knee replacement and ankle reconstruction surgery does not help with pain.
Doctors in Florida have not helped and claim that she is fine. She is not and is only getting worse.
Area outside of our town gave her proper treatment but cannot perform endoscopy.
This is the only good experience we have had here in Florida. My mother wants to try outside of Florida due to history.
This started in 2009 after gallbladder was removed. We have been dealing this for 10+ years now…
My question, with this information:
Would it be worth it to go to Mayo Clinic and see if they can properly treat my mother? I honestly would not be writing this out if this situation was resolved but it has not and I honestly do not know what else to do or where else to go. Every doctor comes up with an excuse to not treat my mother or forces her to go to the hospital, lower her blood pressure (it doesn't stay low for long…) then send her out with no follow up. Still in pain and high blood pressure due to pain. Only one hospital (one that we went to a few days ago) gave use a follow up. But we are very afraid of trying again in Florida.
Does the location at Phoenix, Arizona have doctors that specialize in kidney health?
We have brought all medical records, scans, cds to each and every doctor we went to, and they were ignored or not taken seriously. Will those that work at Mayo Clinic take the time to view the information on those records and listen to us?
Sorry if this is posted in the wrong group. Thank you for reading and take care.