Considering a visit to Mayo for throat symptoms (most likely LPR)
Hi, I’ve been battling throat symptoms for several years now and have had little success correcting the issue through diet/lifestyle changes, or PPIs. I’ve had a barium study and endoscopy, and have been diagnosed w esophogitis, reflux and LPR. I’m considering an (out of pocket) visit to Mayo, in the hopes of confirming/denying the diagnosis as LPR, and coming up with a treatment plan.
For the record, specific symptoms include persistent phlegm, especially low in throat, difficulty swallowing, soreness and swollen feeling at base/back of tongue, sore throat, soreness on front of neck, voice fatigue, globus sensation, hoarseness, and occasional breathing trouble. Symptoms are worse in the daytime, especially after eating. I do not generally have heartburn or blatant regurgitation. I also have some Auto-Immune issues including Addison’s Disease, for which I’ve been on low-dose steroids for 15 yrs, and more recently Undifferentiated Connective Tissue Disease. Not sure if there’s any connection to the throat issues; my current doctors don’t communicate with each other, and nobody has been able to make any clear connection.
I wanted to ask if anyone can recommend any specific doctor or doctors at Mayo. I’m not finding any doctors on the Mayo site who specifically mention LPR as a specialty, but I know the GI clinic is very highly regarded. LPR still seems to be seen as somewhat of a fringe diagnosis in establishment medicine; if I spend a significant amount of money out of pocket to visit Mayo, I want to feel certain that the doctors there won’t attempt to lump this in as standard GERD, and will work to truly understand what’s going on, as well as be open to a variety of treatment approaches. Does anyone have specific experiences visiting Mayo for LPR or a similar situation?
THANK YOU IN ADVANCE!