Conolidine has not helped me at all for peripheral neuropathy

Posted by lorirenee1 @lorirenee1, Dec 21, 2019

Some folks here were interested to know if Conolidine helps for neuropathic pain. I have tried it for about one week, and it has not helped in the slightest bit. I am returning it to the company I got it from. Lori Renee

@lisalucier

Hi, @lorirenee1 – thanks for sharing your experience with the conolidine. I believe @rwinney @wilcy @klro0001@jimhd and others may be interested to hear about your experiences with this compound.

Another resource on conolidine may also be of interest: a publication a few years back, but in a prestigious scientific journal on conolidine https://www.nature.com/articles/news.2011.313

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@lisalucier I want to help as much as I can, and will always post about things I have tried. This is one despicable illness. Thanks so much for your comments. We are all in this together. Lori Renee

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@ronva2co

Just a question, how do i opt out of Mayo all together ? im getting 20 to 30 emails each day, more than what i anticipated.

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Just stop FOLLOWING the sites you don’t want in your email. Hope this helps.

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@klro0001

Hi, @lorirenee1

Thanks so much for asking. Interestingly, my right leg is much better. My left leg is the one that experienced the initial symptoms and it’s still more symptomatic, but not as much. Symptoms include the water dripping sensation, tight skin feeling, swollen feeling, and a random shooting pain around my ankle. However, these sensations have significantly reduced and some days I dont feel anything at all. 🤷🏾‍♀️

I drastically changed my diet about two months ago. I changed my diet to include more whole foods, I eliminated red meat, sugar, and dairy, and I limit carbs. The low carb aspect has been very difficult for me because I had a very intimate relationship with pasta. I replaced pasta with zucchini noodles but it’s not the same. I also take R-ALA, Omega 3, and Magnesium (which I think eliminated the cramping that I sometimes experienced in my left leg in the morning). I honestly don’t know if any of the aforementioned diet changes and supplements are really helping or if my body is just going it’s own thing. But, I’ll keep at it and report back.

I had a neurology appointment on December 4th but when I got there, I was told that the doctor had an emergency so my appointment was moved to January 16th, which is during the week that I’m scheduled to have jury duty. 😕 It’s like the universe doesn’t want me to find out what’s wrong with me. But, I am wise enough to count my blessings and limit complaints because things could always be worse.

Have you given any more thought to the spinal cord stimulator? I know that surgery scares you and I can relate to that fear because my symptoms started after a foot surgery.

Kia

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@kiro0001, had a good chuckle over your comment about having a "very intimate relationship with pasta." I used to also & still do love a treat of a good pasta at times. I do believe that your changed dietary pattern of eating is probably helping you greatly. What you are doing is most likely helping you reduce inflammation in your tissues all over your body, that you can't necessarily see but can feel. Keep up the good work in that area because back sliding only brings back the inflammation & pain… I speak from experience. I do understand that seeing a neurologist is good but remember that doctors have very little training in nutrition, unless they have functional medicine/integrative medicine training. Don't let a conventionally trained doctor discourage you from following your dietary pattern improvements, if the neurologist does so (not all will but some may out of lack of training in their education in that area). Many prayers for you.

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@ampenny3

@kiro0001, had a good chuckle over your comment about having a "very intimate relationship with pasta." I used to also & still do love a treat of a good pasta at times. I do believe that your changed dietary pattern of eating is probably helping you greatly. What you are doing is most likely helping you reduce inflammation in your tissues all over your body, that you can't necessarily see but can feel. Keep up the good work in that area because back sliding only brings back the inflammation & pain… I speak from experience. I do understand that seeing a neurologist is good but remember that doctors have very little training in nutrition, unless they have functional medicine/integrative medicine training. Don't let a conventionally trained doctor discourage you from following your dietary pattern improvements, if the neurologist does so (not all will but some may out of lack of training in their education in that area). Many prayers for you.

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Hello @ampenny3, Welcome to Connect. Thanks for sharing your experience and the role our diet plays in inflammation and pain. Do you mind if I ask what information you were looking for when you found Mayo Clinic Connect?

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Information on Conoldine .

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@ampenny3

Information on Conoldine .

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@ampenny3 Did you see this older article from 2011 earlier in the description? It has some good information on Conoldine.

Compound offers pain relief without the complications: https://www.nature.com/news/2011/110523/full/news.2011.313.html

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