is there a moderator on this site ?

Greetings @ronva2co, I hope you are feeling well today. @lisalucier is the moderator for Neuropathy. Chris

Just a question, how do i opt out of Mayo all together ? im getting 20 to 30 emails each day, more than what i anticipated.

@ronva2co, the Get Started on Connect user guide has step by step instructions for how to stop or restart all notifications, as well as, other tasks for using Connect — https://connect.mayoclinic.org/get-started-on-connect/

Here's the topic in the Get Started on Connect guide for How to Stop or Restart all Notifications:
— https://connect.mayoclinic.org/get-started-on-connect/#stop-restart-notifications

You might try one of the following also just to get rid of ones you don't want to see:

How to Subscribe or Unsubscribe from a Discussion – https://connect.mayoclinic.org/get-started-on-connect/#subscribe-unsubscribe-discussion
How to Set Notification Preferences – https://connect.mayoclinic.org/get-started-on-connect/#notification-preferences

@ronva2co, Thank you @johnbishop for the information sources. Sometimes I can do it myself but cannot tell someone else how it is done. On another note @rnva2co, I have been so impressed with your responses, your tell it like it is approach to playing with the cards we have been dealt. I hope you can find a way to reduce the email impact and contribute when you have something to share. Have a restful sleep. Chris

Hi, @lorirenee1 – thanks for sharing your experience with the conolidine. I believe @rwinney @wilcy @klro0001@jimhd and others may be interested to hear about your experiences with this compound.

Another resource on conolidine may also be of interest: a publication a few years back, but in a prestigious scientific journal on conolidine https://www.nature.com/articles/news.2011.313

@lorirenee1

Thank you for letting us know. I’m so sorry that it didn’t work for you. I’m still hoping that you find effective pain relief.

Kia

I always turn off all notifications to online sites. Other terminology used for the setting results is: Push or Pull. When you have notifications turned on, every post made on that site is 'pushed' out to you. If notifications are turned off – you have to go in and 'pull' each post to have a look at it. I like to scroll through the notifications on the site itself. That way I can read the ones that interest me, and mark items as read (click on the check mark) individually when they do not interest me.

Here, here Chris!

@kiro0001 Thanks so much, Kia. You are kind. Conolidine did nothing. How are your legs? Any changes? Lori R

Hi, @lorirenee1

Thanks so much for asking. Interestingly, my right leg is much better. My left leg is the one that experienced the initial symptoms and it’s still more symptomatic, but not as much. Symptoms include the water dripping sensation, tight skin feeling, swollen feeling, and a random shooting pain around my ankle. However, these sensations have significantly reduced and some days I dont feel anything at all. 🤷🏾‍♀️

I drastically changed my diet about two months ago. I changed my diet to include more whole foods, I eliminated red meat, sugar, and dairy, and I limit carbs. The low carb aspect has been very difficult for me because I had a very intimate relationship with pasta. I replaced pasta with zucchini noodles but it’s not the same. I also take R-ALA, Omega 3, and Magnesium (which I think eliminated the cramping that I sometimes experienced in my left leg in the morning). I honestly don’t know if any of the aforementioned diet changes and supplements are really helping or if my body is just going it’s own thing. But, I’ll keep at it and report back.

I had a neurology appointment on December 4th but when I got there, I was told that the doctor had an emergency so my appointment was moved to January 16th, which is during the week that I’m scheduled to have jury duty. 😕 It’s like the universe doesn’t want me to find out what’s wrong with me. But, I am wise enough to count my blessings and limit complaints because things could always be worse.

Have you given any more thought to the spinal cord stimulator? I know that surgery scares you and I can relate to that fear because my symptoms started after a foot surgery.

Kia

Hi Kia, It does sound like you keep getting the kabash about seeing a neurologist. Just bad luck. However, you don't sound like you are doing quite as bad as you were, symptom wise, so that is very good. I remember the water dripping sensations so well, but they were many years ago. Then the water just stopped dripping. So you will finally see a neurologist after jury duty. It is good to know what is going on with yourself. As far as a spinal cord stimulator for me, I really do not want one. However, if nothing else works, I cannot live in pain everyday, and I pretty much am. Kratom takes away pain quite well, but it should not be used every day, so I will see. I may have to toughen up. and try the trial of a stimulator, at least…… Merry Christmas, with as little pain as possible……Lori Renee

@lisalucier I want to help as much as I can, and will always post about things I have tried. This is one despicable illness. Thanks so much for your comments. We are all in this together. Lori Renee

Just stop FOLLOWING the sites you don’t want in your email. Hope this helps.

@kiro0001, had a good chuckle over your comment about having a "very intimate relationship with pasta." I used to also & still do love a treat of a good pasta at times. I do believe that your changed dietary pattern of eating is probably helping you greatly. What you are doing is most likely helping you reduce inflammation in your tissues all over your body, that you can't necessarily see but can feel. Keep up the good work in that area because back sliding only brings back the inflammation & pain… I speak from experience. I do understand that seeing a neurologist is good but remember that doctors have very little training in nutrition, unless they have functional medicine/integrative medicine training. Don't let a conventionally trained doctor discourage you from following your dietary pattern improvements, if the neurologist does so (not all will but some may out of lack of training in their education in that area). Many prayers for you.