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Posts: 1
Joined: Apr 24, 2012

Congenital kidney defect/Ureterostomy

Posted by @ctjlov10, Apr 24, 2012

My son was born with a congenital kidney and ureter defect. One of his kidneys did not fully develop, and the corresponding ureter attached to the bladder but did open. As a result, no urine drained from that kidney until Jake had surgery (a ureterostomy) at 6 weeks old. The affected kidney funtions at approximately 20%. Jake will have surgery to reverse the ureterostomy when he is 19 months old. I am simply wondering if there’s anyone in this community who has had experience with this; personal or with a child. If you have any information, tips, or comforting words I would love to hear them!


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