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SkaterGirl
@skatergirl

Posts: 1
Joined: Apr 23, 2012

Complex Regional Pain Syndrome (CRPS)

Posted by @skatergirl, Apr 23, 2012

Has anyone been treated at the Mayo Clinic in MN, for CRPS? I have had the condition for 2 years, and am now seeking an appointment there. I’ve done all therapies, and recently had 2 spinal cord stimulators implanted. Still having severe flares, that the stimulators do not cover. Just curious to see if anyone has had an experience with Mayo and this condition.

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Alex Simon
@alexsimon

Posts: 179
Joined: Feb 08, 2011
Posted by @alexsimon, May 16, 2012

Hi SkaterGirl -
There is some information available here:

http://www.mayoclinic.com/health/complex-regional-pain-syndrome/DS00265


lisaA
@lisaa

Posts: 24
Joined: May 23, 2012
Posted by @lisaa, Nov 2, 2012

I heard that some of the navy bases were trying “calmare therapy” for RSD?neuropathy…………ask them


lisaA
@lisaa

Posts: 24
Joined: May 23, 2012
Posted by @lisaa, Nov 2, 2012

check scrambler therapy……….it gives sites/states where studies are being done, I tried in denver and then they pulled it


ryrigrandma
@ryrigrandma

Posts: 4
Joined: May 19, 2012
Posted by @ryrigrandma, May 21, 2012

Hi! I’m so glad you posted! I just joined this site yesterday as I am calling the Mayo Clinic in the morning to inquire about getting an appointment for help with my CRPS (RSD). I have had it full body for the past seven years and have tried everything except HBOT. There HAS to be something to help live day to day with this! I’ll be eagerly watching to see other posts.


ZORONE
@zorone

Posts: 32
Joined: Jun 14, 2012
Posted by @zorone, Jun 20, 2012

Glad to hear from you. I’m interested in the Mayo Clinic Pain Relief book. I’ll see if our library has it first.
ZORONE


lisaA
@lisaa

Posts: 24
Joined: May 23, 2012
Posted by @lisaa, Nov 2, 2012

please look to see if they are offering “calmare therapy” I was told mayo was offering it for RSD/Neuropathy etc…..


ryrigrandma
@ryrigrandma

Posts: 4
Joined: May 19, 2012
Posted by @ryrigrandma, May 24, 2012

Hi SkaterGirl, I just wanted to tell you that I talked at great length today with a representative from the Jacksonville Mayo Clinic. To keep it short, because I have a seven year diagnosis of CRPS, there is a chance they would allow me into the Pain Management and possibly physical therepy programs.. I am extremely disappointed, as I have worked on “Pain Management” for seven years. There is no need for me to travel four hours for PM when I have excellent access to it right here where I live. I was so foolish to let myself have hope that there just might be some relief from this torture that I may not have known about. I was given a phone number that my doctor has to call to talk to the admissins department. He said my doctor and Admissions would work out a plan for me. MY doctor doesn’t agree with me going to the Mayo Clinic, so that’s that. Good Luck to you!


dewey066
@dewey066

Posts: 1
Joined: Jun 13, 2012
Posted by @dewey066, Jun 13, 2012

I’m new to Mayo clinic. I have been in pain management for years now and my doctor was just informed by my radiologist that I have CRPS or RSDS. I just had surgery on my foot for Norton’s Nueroma, and the pain just isn’t subsiding. Best of luck to you and if you have any suggestions for me it would be greatly appreciated.


lisaA
@lisaa

Posts: 24
Joined: May 23, 2012
Posted by @lisaa, Nov 2, 2012

dewey ask them about “calmare therapy” I heard they are using it there:)

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