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Complex chronic pain

Posted by @elsa in Just Want to Talk, Jul 14, 2011

Background: I have relapsing-remitting MS which is well controlled. In July, 2009 I badly ruptured my L5-S1 lumbar disc. In January 2010 I had a laminotomy and microdiscectomy. During surgery the surgeon tore the dura (there was scar tissue surrounding the S1 nerve). Since the surgery I developed severe chronic pain which is now managed with gabapentin, a fentanyl patch and hydrocodone. I retired on a disability 6 months ago because I could no longer work with the pain and pain meds. I have taken several pain classes which focus on breathing, meditation, etc. to help manage the pain. I see an acupuncturist and chiroractor.
My question: Since I was diagnosed with MS in 2006 (late onset at age 51) I have experienced paresthias in both feet (numbness and tingling). Now I have pain in the back of my R leg and in the bottoms of both feet. The leg pain is obviously originating from my compromised S1 nerve. The foot pain feels like I'm walking on carpenter nails in my heels. I have an MS doctor and a pain doctor and they are focused on treating the pain and not with determining if the foot pain is primarily MS vs. primarily from failed back surgery syndrome. I think that knowing the source of the pain is important and I'd be glad to know the opinion of Mayo Clinic pain and MS specialists. (BTW, my GP wrote a letter to Mayo asking to take me as a patient and Mayo declined to take me.) Thanks for any advice, suggestions, information you can give me.

Tags: multiple sclerosis, chronic pain, neuropathic pain


Posted by @sarina, Jul 14, 2011

Hi Elsa, I'm sorry about your chronic pain, MS & possible surgery mishap. My heart goes out to you dear. My best friend had MS/chronic pain & I was her primary caregiver for over 2 years so I understand a little of what you're going through. We used some unconventional ways to deal with the pain. Distraction in all sorts of forms: watching comedies, floating in a warm pool, eating marijuana cookies & massage are just a few. I hope your have faith that you'll feel better soon. Please let me know if I can be of further help to you.

Peace, Sarina


Posted by @usha09, Aug 11, 2011

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