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Fleure
@fleure

Posts: 12
Joined: Nov 05, 2016

Chronic painsss + working full time

Posted by @fleure, Dec 4, 2016

I dont know how to do it, but I would like to share with u 2 photos that describe my pain really well. Others might relate to it, find it useful. And I am curious also…to hear from other people, especially those with constant painssss + working full time.

I have AS, Sjogren, psorias, migraines (rather well controlled with Botox) and neuropathic pain…am presently off work. I dont think my GP believes me. Its difficult to explain my situation here because of its complexity, but I’ve a feeling she is going to send me back to work before I am ready because she says “working distracts you from the pain” , I think she thinks I am depressed + THAT is my problem (not intending to yell here, just stressing the word “that”).
Saw psychyatrist, he says no.
I have the feeling she sees me as not motivated to go back to work, that I am lazy, too emotional. Yet my history is proof of exactly the opppiste.

It is very stressful thinking I will not have the time to land back firmly on my 2 feet before going back to work, even if I go back part-time at first.

So, is it a possibility to share a couple of photos here? If so, how?
Thanks 4 reading, looking forward to reading ur thoughts/answers.

REPLY

Hello @fleure, and thank you for sharing a bit more about yourself and asking the question about photos.

Members can share photos and other types of media on Connect. Here’s how:
1. Go to the discussion where you would like to add the images.
2. Click REPLY.
3. Click the Add media button.*
4. Choose the file or image to upload.
5. Write your text message.
6. Click POST REPLY.
* Please note that the “Add media” is not yet available on smart phones. You can add images on tablets, laptops and desktop computers.

I would like to mention that this is an open-to-public forum, so any information, photos, links, videos, etc. that you share will be viewable by anyone reading your post, not only registered members. We advise discretion on sharing personal photos that you may not want a larger audience to view. Photos and images can add to a discussion, but I just wanted to make sure, for your safety and privacy, you were aware that this is a public site.

You also mentioned a few diagnoses that you are dealing with. Here are a few discussion you may find worth your time to read through and participate in:
– Sjorgens http://mayocl.in/2gYI8Uv
– Ankylosing spondylitis http://mayocl.in/2dvmQk2
– Migraines http://mayocl.in/2d3qTUi

@fleure, I look forward to seeing more posts from you in the future. If you have any questions about the information I provided or the process of sharing media, please direct message.

Here’s how to send private message.
1. Click the member’s @username.
2. Click the envelope icon in their profile.
3. Write a subject and your message.
4. Click Send Message.

I have been to the emergency room twice and twice I was in the waiting room I have had the ambulance come to my house and look over thoroughly and ask me if I wanted to go to the hospital. I just found out last week I suffer from what they call a complex migraine with an Ora. The headache takes on a whole new form. It mimics a mini stroke. But actually you are not having a stroke but a complex migraine headache. It took me changing my doctor and going to a Neurologist to figure this out. Now I just need to get them controlled. It took the doctors over a year to figure out what was wrong. and many hospital visits. Keep your head up. Keep standing for yourself and take care of yourself. These migraines are tuff and the complications that go with them are even worse. I know when I am going to have a headache when I start tingling and it feels like a stroke. That’s when the migraine hits and I am just sitting on the couch. No warning at all. good luck.

@honeychild

I have been to the emergency room twice and twice I was in the waiting room I have had the ambulance come to my house and look over thoroughly and ask me if I wanted to go to the hospital. I just found out last week I suffer from what they call a complex migraine with an Ora. The headache takes on a whole new form. It mimics a mini stroke. But actually you are not having a stroke but a complex migraine headache. It took me changing my doctor and going to a Neurologist to figure this out. Now I just need to get them controlled. It took the doctors over a year to figure out what was wrong. and many hospital visits. Keep your head up. Keep standing for yourself and take care of yourself. These migraines are tuff and the complications that go with them are even worse. I know when I am going to have a headache when I start tingling and it feels like a stroke. That’s when the migraine hits and I am just sitting on the couch. No warning at all. good luck.

Jump to this post

@honeychild Welcome to Mayo Connect! I’m glad that you have joined our online patient support community. I appreciate your post, you have provided some new information about migraines and how they present differently in people. You have educated a lot of us! I like what you say, “Keep your head up. Keep standing for yourself and take care of yourself.” This represents the proactive approach that we all need to take when dealing with complicated medical problems. Are you getting treatment now for these stroke-like migraines? If so, would you mind sharing the meds or treatment that have helped you? Teresa

@honeychild

I have been to the emergency room twice and twice I was in the waiting room I have had the ambulance come to my house and look over thoroughly and ask me if I wanted to go to the hospital. I just found out last week I suffer from what they call a complex migraine with an Ora. The headache takes on a whole new form. It mimics a mini stroke. But actually you are not having a stroke but a complex migraine headache. It took me changing my doctor and going to a Neurologist to figure this out. Now I just need to get them controlled. It took the doctors over a year to figure out what was wrong. and many hospital visits. Keep your head up. Keep standing for yourself and take care of yourself. These migraines are tuff and the complications that go with them are even worse. I know when I am going to have a headache when I start tingling and it feels like a stroke. That’s when the migraine hits and I am just sitting on the couch. No warning at all. good luck.

Jump to this post

@honeychild Thank you for posting this information! About a month ago my husband had a very similar experience. His speech was slurred and arms felt weak. He was taken to the ER and told it was an extreme migraine. Now we have the correct name for it.
He sees his neurologist this week so I will be sure to share this with him.
I pray you get control of your migraines.
Jen

@fleure If you still have those photos to share, I would like to see them. I can relate to being forced to go back to work before you feel ready. Years ago I was in that situation and although I returned to work on shortened hours, I still had a hard time focusing on my job after the first couple of hours because of the pain. My office had a nurse so I would visit her and document my pain and concern. After 4 weeks of no being able to effectively contribute to my job I went out on short term disability again. Eventually I was not able to return and disability ended so I lost my job. I know it has been quite a while since you wrote, but I hope you will check back in.
Jen

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