Share this:
claudiabrende
@claudiabrende

Posts: 33
Joined: Jul 31, 2018

Chronic pain in the abdomen

Posted by @claudiabrende, Wed, Aug 1 9:22am

38 year old with chronic stomach infections and nothing showing up on scans. Ugh. Weight loss, nauseous, abdominal pain and cramping, bowel changes, unexplained bruising, and repeated infections in the colon, intestine, and kidneys. Please help if you have any insight.

REPLY

@claudiabrende

Welcome to the Mayo Connect community. I am a Volunteer Mentor and am not a medical professional therefore I cannot make medical diagnosis or medical solutions to problems. I can and do share my knowledge, experience, and thoughts with you and others here.

From what I read in your post, your health is waning and yet your team of physicians can't find anything wrong with you. If I were in your shoes, I would find other doctors to see if they can find the problem. If you don't have a gastroenterologist, you will need one since your stomach is where you feel the pain. If at all possible, the Mayo Clinics in Rochester MY, Jacksonville FL,and Scottsdale, AZ are considered the top diagnostic experts. Most insurance coverage works at Mayo. If you can get your doctor to call and get an appointment for you, that is usually the fastest. Or, you can go to the top of this page and click on, "Request Appointment."

If you don't mind, further information about your health would be helpful, i.e.
1. Do you take any medications? If so, which ones? (include over the counter medications, vitamins/food supplements)
2. How long have you been having your symptoms?
3. What tests have your doctors run?
4. What kinds of doctors have you been seeing?
4. What have you been doing to try to relieve the pain?

Your problem may be environmental, or a simple issue that has been missed, or it could be very serious. Without a proper and complete examination of your issues and physical condition, no diagnosis can be made. And, as you know, you remain in pain and worrying about what is wrong. Perhaps others in the community can make additional recommendations or give further information. I would like for @hopeful33250, @travelgirl, and @IndianaScott to chime in here if you have additional information that will help.

Gail
Volunteer Mentor

@gailb Oh, thank you so much for responding to me, and yes I feel frustrated and unheard by some of the doctors in town besides my regular doc and GI doctor. Its been going on for over a year but the last 4 months have been pretty bad with a large intestine infection in April after a colonoscopy, a week later I ended up testing positive for Giardia, before that I had such a severe kidney infection I was vaginal bleeding, and a few weeks ago tested positive for C.Diff for both A and B toxins. It was getting better but now I still have rectal bleeding with increased stools and severe nausea and Zofran or phergan is not helping. They have done a hida scan, gastric emptying study, ultrasound, CT scan and nothing much is showing up beside backed up stool with small bowel loops and fluid filled small bowel loops, Inguinal lymph nodes, mucus, x-ray showing rapid small bowel transit of 30 minutes. I just need so help and insight and have never joined any support group but I'm desperate. They have me on probiotics, a reflux med, abdominal cramping med, nysanta PRN.

@claudiabrende Wow girl so sorry. Sounds like you have a lot going on. I completely understand the feeling of being desperate. That is how I felt too when I had gotten sick with H-pylori. You just want to get back to normal feeling better ASAP enough is enough. It wasn't fun. It took months for the antibiotic to kick in and make me feel better.
Did they do an Endoscope on you at all? I didn't see that mentioned above. Cause I had a slew of tests done when I first got sick everything was checking out A-OK. Except for an Ulcer in the cecum and a few swollen lymph nodes in my chest.
When I look back a lot of how I was feeling had to do with the unknown of what was next? Besides the fact that my stomach hurt, my chest hurt and my throat was on fire from the acid reflex backing up. When you have a lot going on, it is down right miserable.
If I were you, I would get all my records and get second and third opinions. Even if you love the Dr's, it is always best to get 2 or 3 opinions when your feeling that bad, that long. It took me 3 Dr's and 2 yrs later to start feeling better again.
Somethings even after you finish the medicine it takes a while for the body to adjust to not being sick.
I wish you the best..
If you don't mind checking in from time to time it would be great to hear how you are doing?
Hang in there though, I know it hard but it takes time for our bodies to heal.. Try and stay busy, that is how I got through feeling horrible.
Jackie

@travelgirl

@claudiabrende Wow girl so sorry. Sounds like you have a lot going on. I completely understand the feeling of being desperate. That is how I felt too when I had gotten sick with H-pylori. You just want to get back to normal feeling better ASAP enough is enough. It wasn't fun. It took months for the antibiotic to kick in and make me feel better.
Did they do an Endoscope on you at all? I didn't see that mentioned above. Cause I had a slew of tests done when I first got sick everything was checking out A-OK. Except for an Ulcer in the cecum and a few swollen lymph nodes in my chest.
When I look back a lot of how I was feeling had to do with the unknown of what was next? Besides the fact that my stomach hurt, my chest hurt and my throat was on fire from the acid reflex backing up. When you have a lot going on, it is down right miserable.
If I were you, I would get all my records and get second and third opinions. Even if you love the Dr's, it is always best to get 2 or 3 opinions when your feeling that bad, that long. It took me 3 Dr's and 2 yrs later to start feeling better again.
Somethings even after you finish the medicine it takes a while for the body to adjust to not being sick.
I wish you the best..
If you don't mind checking in from time to time it would be great to hear how you are doing?
Hang in there though, I know it hard but it takes time for our bodies to heal.. Try and stay busy, that is how I got through feeling horrible.
Jackie

Jump to this post

@travelgirl You just gave me. Thank you!! They did an endo down my throat in April. They did find some inflammation, mucus, and bacteria in my intestine. I do have the honor to go to Mayo but not till September. I feel it's really starting to mess with and I just get depressed. How do they test for HP? I was even considering Whipple's Disease or ZENs.

@travelgirl

@claudiabrende Wow girl so sorry. Sounds like you have a lot going on. I completely understand the feeling of being desperate. That is how I felt too when I had gotten sick with H-pylori. You just want to get back to normal feeling better ASAP enough is enough. It wasn't fun. It took months for the antibiotic to kick in and make me feel better.
Did they do an Endoscope on you at all? I didn't see that mentioned above. Cause I had a slew of tests done when I first got sick everything was checking out A-OK. Except for an Ulcer in the cecum and a few swollen lymph nodes in my chest.
When I look back a lot of how I was feeling had to do with the unknown of what was next? Besides the fact that my stomach hurt, my chest hurt and my throat was on fire from the acid reflex backing up. When you have a lot going on, it is down right miserable.
If I were you, I would get all my records and get second and third opinions. Even if you love the Dr's, it is always best to get 2 or 3 opinions when your feeling that bad, that long. It took me 3 Dr's and 2 yrs later to start feeling better again.
Somethings even after you finish the medicine it takes a while for the body to adjust to not being sick.
I wish you the best..
If you don't mind checking in from time to time it would be great to hear how you are doing?
Hang in there though, I know it hard but it takes time for our bodies to heal.. Try and stay busy, that is how I got through feeling horrible.
Jackie

Jump to this post

@claudiabrende

I have had gastrointestinal problems for the past 3 years. Lots of pain in my upper stomach and chest. After my endoscopy, I was told I had esophageal inflammation and gerd (I don't feel heartburn, just pain). I now take Omeprozole, twice a day as needed. It helps me tremendously. I had gastric bypass surgery 4 years ago, so I think it's connected to that surgery. I've also had two duodenal ulcers and a hiatial hernia which was repaired. I take prebiotic as well. The ones my gastroenterologist recommended are Life Balance brand, Alpha Dolphilas. They work great. My problem comes and goes, so I don't take my medicine or prebiotic all the time.

My mother died from pancreatic cancer, so I have big fears about that illness. I know that affects my pain level and increases it. See if there is anyway your doctor can get you into Mayo sooner. I'm hoping the best for you. You're very young and have lots of good living ahead of you.

Gail
Volunteer Mentor

@gailb Me too! I was told I have acid reflux but no heartburn and my Aunt is battling pancreatic cancer, my father passed away of bladder cancer, and colon cancer in my family. I asked my doctor last week if he could try and get me in sooner bit said I had the earliest appointment. Maybe I'll just call Mayo everyday. Lol

@claudiabrende so sorry to hear of your problems ,frustration I am a retired nurse and there's alot of good advice here In particular find a new endocrinologist Ok I would look into a hematologist also .He can check your blood

@lioness Thank you so much for the advice I have not been to a doctor that specializes in blood just GI, Urology, and obgyn because I have stage 3/4 Endometriosis in my late 20s and now have had a hysterectomy and said it could come back or adhesions but they won't due exploratory surgery. I do on to Mayo but not till September.

@claudiabrende

Please keep me updated about how things are with you. Your history, plus that of your family explain why you are concerned about your symptoms. If possible, you need to find a way to relax as you are taking the right steps to find a reliable diagnosis. Your stress about the unknown isn't good for your health.
Look for a class in Meditation or Mindfulness to learn how to focus your mind and let go of your fears. I have found Meditation is extremely helpful for my fears. Over the years it has become my automatic response to fears of the unknown. You have been doing everything in your power to research your symptoms and get the help of doctors. Now, let it go and find some peace as you await further diagnosis. That's the best way to care for yourself right now.
Also, September is a few weeks away. When in September do you go to Mayo Clinic, and to which one are you going? I'm holding you in peace and love.

Gail
Volunteer Mentor

@claudiabrende

I found this link from our Moderator and thought it might be helpful right now. Thinking of you. Gail, Volunteer Mentor

MENTOR
Teresa, Volunteer Mentor
@hopeful33250

Joined: Mar 28, 2016

Posted by @hopeful33250, Fri, Jul 20 8:04am
Hello and happy Friday,

I just watched this video on the Power of Positivity and I thought some of you might enjoy it,

A Lesson on Happiness From a 92 Year Old

I agree with her 100%!

Posted by Power of Positivity on Monday, October 30, 2017

Teresa

@gailb

@claudiabrende

Please keep me updated about how things are with you. Your history, plus that of your family explain why you are concerned about your symptoms. If possible, you need to find a way to relax as you are taking the right steps to find a reliable diagnosis. Your stress about the unknown isn't good for your health.
Look for a class in Meditation or Mindfulness to learn how to focus your mind and let go of your fears. I have found Meditation is extremely helpful for my fears. Over the years it has become my automatic response to fears of the unknown. You have been doing everything in your power to research your symptoms and get the help of doctors. Now, let it go and find some peace as you await further diagnosis. That's the best way to care for yourself right now.
Also, September is a few weeks away. When in September do you go to Mayo Clinic, and to which one are you going? I'm holding you in peace and love.

Gail
Volunteer Mentor

Jump to this post

@gailb Thank you for your kind words. I do a ton of yoga, meditation, and acupuncture but is getting a bit costly. I also found out they can get me in on August 28th, wow, I'm so happy. The symptoms I am considered about is the rectal bleeding, repeated infections in my kidneys, intestines, and colon within a 4 month period, severe nausea that keeps me from eating which has caused weight loss, if I do it, it has to be a few bits because I tend to get nauseous after I try and eat, vaginal blood years after my hysterectomy, the pain sucks its gnawing, cramping sharp, sometimes sharp but is in the upper abdomen to pubic bone, pelvic pressure has started and rectal pressure. I thank you tremendously for what you and helping me I didn't know if anybody would respond and I am very grateful to you and others have. @travelgirl @hopeful33250 @lioness

@claudiabrende

@lioness Thank you so much for the advice I have not been to a doctor that specializes in blood just GI, Urology, and obgyn because I have stage 3/4 Endometriosis in my late 20s and now have had a hysterectomy and said it could come back or adhesions but they won't due exploratory surgery. I do on to Mayo but not till September.

Jump to this post

@claudiabrende, I am new to this story of your troubles with pain in your abdomen. I want you to know that I am sending all the good vibes, thoughts, and prayers that I possibly can, your way. Every one of us is different, and no one feels exactly the way we do. But I have several issues that used to cause me severe, unrelenting pain.Many, many tests were done, and after many tears and anxious moments, several diagnoses were made. Medication is available to me now that takes care of my worst symptoms. Amazingly, a change of diet and certain supplements also helped greatly. I am religious about telling my doctor every single thing that I put in my mouth. I share my story with you to give you hope that you will have a good outcome as well. I think, for me, the hardest part was not knowing what was wrong with me. Meditation and just slowing down my pace were also helpful in finding peace. Let us know how you are doing. We want to listen and share our journeys with you. We are better together.

@claudiabrende I am so glad to hear that your appointment has been moved up to 8/28. That is good news! I wish you a great appointment with lots of information to help you.

Teresa

@gailb

@claudiabrende

Please keep me updated about how things are with you. Your history, plus that of your family explain why you are concerned about your symptoms. If possible, you need to find a way to relax as you are taking the right steps to find a reliable diagnosis. Your stress about the unknown isn't good for your health.
Look for a class in Meditation or Mindfulness to learn how to focus your mind and let go of your fears. I have found Meditation is extremely helpful for my fears. Over the years it has become my automatic response to fears of the unknown. You have been doing everything in your power to research your symptoms and get the help of doctors. Now, let it go and find some peace as you await further diagnosis. That's the best way to care for yourself right now.
Also, September is a few weeks away. When in September do you go to Mayo Clinic, and to which one are you going? I'm holding you in peace and love.

Gail
Volunteer Mentor

Jump to this post

@claudiabrende

I'm so happy to hear that you've been able to get your appointment sooner at Mayo. Since I see that you live in North Dakota, I'm assuming you will be going to the Rochester clinic. I have been to Mayo for medical treatment 3 times, always in Rochester. I trust them completely. I'm also glad you already practice meditation at least with yoga. I too practiced yoga for 8 years. After back surgery, I'm now trying to get scheduled for new yoga classes this fall where we are now living.

Hang in there, it won't be so long now.

Gail
Volunteer Mentor

@gailb

@claudiabrende

Please keep me updated about how things are with you. Your history, plus that of your family explain why you are concerned about your symptoms. If possible, you need to find a way to relax as you are taking the right steps to find a reliable diagnosis. Your stress about the unknown isn't good for your health.
Look for a class in Meditation or Mindfulness to learn how to focus your mind and let go of your fears. I have found Meditation is extremely helpful for my fears. Over the years it has become my automatic response to fears of the unknown. You have been doing everything in your power to research your symptoms and get the help of doctors. Now, let it go and find some peace as you await further diagnosis. That's the best way to care for yourself right now.
Also, September is a few weeks away. When in September do you go to Mayo Clinic, and to which one are you going? I'm holding you in peace and love.

Gail
Volunteer Mentor

Jump to this post

@gailb I ended up calling Mayo and they can get me in on August 28th. Yay.

Please login or register to post a reply.