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maddy32

Chiari Malformation with Syrinx Searching for someone who has had a chiari

Posted by @maddy32 in Just Want to Talk, Nov 9, 2011

Chiari Malformation with Syrinx
Searching for someone who has had a chiari malformation with the syrinx. Who went ahead with the
posterior decompression and years later is still having difficulties...head pain, neck pain. My local
neurologist wants to inject Botox into the occipital (sp?) nerve at back of head to try to block pain. I am two and
a half years post surgery and still a mess. On so many medications, some due to all the nerve damage that
took place while they tried to figure out what was wrong with me, that took almost four years. Other medicines
to try to block all the pain. I am still in physical therapy to try to strengthen neck muscles..leery of getting
injections and what side effects? Anyone with any experience with this?
Thanks

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