Check in time

Posted by reibur1951 @reibur1951, 6 days ago

Sorry been busy cleaning the 5.3A, cutting up & stacking the maple trunks from the Culver house, trying to keep atop of the re-build which is at a slow pace; got the 64A up for sale to cover the cost of the rebuild & hoping it sells before the end of year; trips to Indy every 2 weeks now

The radiation treatments (11 this round, the 3rd) helped the ones on his back BUT the tumor or blisters traveled under the left armpit to the front left chest and on on his very upper left arm just above the armpit ares.

Sad news is no new clinical studies for now and also down to the last treatment option has had all the recomended

Opdivo/Nuikynmab & Yervoy/Ipilimumab He gets both one week and just one of the 2 the second week He has had 2 infusions 2 weeks ago the 2 together and yesterday just the one; the have switched days starting on the 26th to Wednesdays not Fridays.

So far he is doing good on the them.

He had a CT scan when he started 2 weeks ago – its a very different format and does not c over all in wording the previous ct's of the last 3 years did… Dr. did not confer with me yesterday so do not know what was actually said and not said – the jest of the CT report is things are "stable"

Left yesterday with no appointment times so have to go in see if they set up the appointments for labs/dr/infusion for the 36th or when – its either Monday or Wednesday the nurse assigned him is not like our "Maggie" we had when we started this all Oct 25, 2017… three years down starting on the 4th….

The re-build is 2-3 months behind – have a basement – temporary electric in; the floor system has arrived and told the truses will not be there till mid-November.

Beginning to think I should of not started the house rebuild – I will either make it or loose everything unless the loan officer adds an extension or the 54A sells I am hoping for the latter as I am very unhappy over the loan officers lack of communication dragging his feet from April 28 to June 24 (the construction company was ready to start in May & June) If started by/in June was called to be 6 months was a move in by/before Christmas now I am not looking for early or late spring now; alos building materials have doubled and tripled putting doubt on the estimate given which was not full covered by my savings and the loan so it is a sink or swm situation right now – have had many sleepless nights over this.

@reibur1951– It's good to hear from you. I'm glad that your friend is stable for now. That's what I am too with my lung cancer. It's a good thing! I think that you have taken on way too much!

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Have always had full wood heat since 2004 /2005 – before that we supplemented with propane gas but it got so high here – friend who has lung cancer done the wood cutting for his mother / dad / me and then his dad / me when mother went into nursing home (dec 3 2004)- when he was diagnosed in Oct 2017 I refused to let him go over to the then 59A (33 of it woods) alone event ho his sister/brother-in-law lived over there they never checked on him

The re-build is being done by construction company all i got to do is make decisions of types windows (which has been done) kitchen cabinets/ flooring etc I pretty well have all those decisions made.

The clean-up has to be done – on the 5.3A to make it even remotely sellable. I have a friend (who was friends with the dad also) thats helping he also has helped with the splitting of the maple logs and much to my surprise friend with lung cancer I am thankful I had the logs brough out here from cutting down the maples I could possibly have enough with out buying this winter if used sparingly

The sister and brother-in-law only help in an emergency – they have never done any of the medical end of it for the mother / father / brother -that was left up to me – They only helped on occasion for firewood since father died – June 2018 but that was because had none and could not get any delivered in timely manner – I often bought the small packages you fine in grocery stores – to have heat til the ordered load arriv

I am just hoping everything works out with house – the sale of the 64A whats left after I gave 5A free and clear to the sister/brother-in-law since have lived over there since 1990 – first in a crappy mobile home and now in a modular (which In my mind is crappy now too it was put in new in Aug 1999 that makes it 21 years old they are only warrantied for 25 at most and they still has 10-11 years to pay for it – they payed not rent for the space it was on – and we payed all the property taxes on the 69+A) The 5A was promised to her by here grandmother & mother but they never done anything about it….. At times I fell like i should of not gone for adverse possession – and let it all go through the courts to the nursing home and let everyone loose everything – and father & his son would of been in nursing home then to and me out in the middle of the state highway with nothing and the sister/brother-in-law would of had to move the modular elsewhere and buy property or loose it

I guess I could throw everything up into the air after I get out of here (or before) let the place go for back property taxes and walk a way – and possibly put the firend with lung cancer into a nursing home and have time and a full life for me.

Taxes are paid up till they come due in May 2021…

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Had is radiology oncology followup for the 11 day radiation – Last night looked at all – the one under armpit on upper arm looks as if near fully open and enlarged so are the others surrounding it on th chest side… Looks as if there is a new one that is growing now on the edge of the one just finished radiation on last month and with a couple of smaller ones one the side … he said something about possible radiation treatments again – but told the radiologist no for now would see what the Opdivo/Nuikynmab & Yervoy/Ipilimumab therapy would do He goes back on Wed. the 28th will see if his regular oncologist will come out and explain more to me – he won;t but does not full understand everything either… The chemo/immunology drugs etc are effecting his memory but I do not think he want to admit it or fully recognizes it time will only tell I have firend here helping me and he called on way to Indy (via cell phone) said could not find air chuck for the compressor – he told me and the guy he did not know where it was so I bought one but the connector was missing but after we got home and told him to go find the connector he went right to it – but would not fit anyway wnt got the air chuck too and I found an extra where he got it from so i snatched it and hid it in my tool chest…. trying to understand but yet he is deterring clean-up and he does not help at all with it just sits in front of the ___ tv while I am out there busting ass with friend or laughs if so tired I drop spill my coffee all over the table… i could probably drop over out there and lay there for hours before he would even come out to look…. its beginning to get hard to try and keep the promise i made to his dad and mom and his wishes… but I am trying time will tell especially this winter not sure when house will be done but the answers will all come to a head on Dec. 24th when the promissory note comes due with basement complete I would say there is at least another 3-4 months before house will be done I was surprised he helped with the splitting of the wood but U went bought a hydraulic hand splitter and it was more like a new toy to him tho he would walk off for long periods of time, go sit in front of t v…. I know the chemo/immunology/radiation plays a toll on him but he won't tell you anything but yet he will ride 6-10 miles every day down to a country store – but he missed tonight after he got home at 4:30 Off my soapbox

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@reibur1951

Had is radiology oncology followup for the 11 day radiation – Last night looked at all – the one under armpit on upper arm looks as if near fully open and enlarged so are the others surrounding it on th chest side… Looks as if there is a new one that is growing now on the edge of the one just finished radiation on last month and with a couple of smaller ones one the side … he said something about possible radiation treatments again – but told the radiologist no for now would see what the Opdivo/Nuikynmab & Yervoy/Ipilimumab therapy would do He goes back on Wed. the 28th will see if his regular oncologist will come out and explain more to me – he won;t but does not full understand everything either… The chemo/immunology drugs etc are effecting his memory but I do not think he want to admit it or fully recognizes it time will only tell I have firend here helping me and he called on way to Indy (via cell phone) said could not find air chuck for the compressor – he told me and the guy he did not know where it was so I bought one but the connector was missing but after we got home and told him to go find the connector he went right to it – but would not fit anyway wnt got the air chuck too and I found an extra where he got it from so i snatched it and hid it in my tool chest…. trying to understand but yet he is deterring clean-up and he does not help at all with it just sits in front of the ___ tv while I am out there busting ass with friend or laughs if so tired I drop spill my coffee all over the table… i could probably drop over out there and lay there for hours before he would even come out to look…. its beginning to get hard to try and keep the promise i made to his dad and mom and his wishes… but I am trying time will tell especially this winter not sure when house will be done but the answers will all come to a head on Dec. 24th when the promissory note comes due with basement complete I would say there is at least another 3-4 months before house will be done I was surprised he helped with the splitting of the wood but U went bought a hydraulic hand splitter and it was more like a new toy to him tho he would walk off for long periods of time, go sit in front of t v…. I know the chemo/immunology/radiation plays a toll on him but he won't tell you anything but yet he will ride 6-10 miles every day down to a country store – but he missed tonight after he got home at 4:30 Off my soapbox

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Hello @reibur1951 and thanks for dropping by Connect with an update. I can hear the frustration in your post and that is certainly understandable. I hope that you are able to get some relief and help with your building project. Your words show compassion and understanding for your friend's health situation and you are to be commended for that.

I look forward to hearing from you again.

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