Check in time

Posted by reibur1951 @reibur1951, Oct 17, 2020

Sorry been busy cleaning the 5.3A, cutting up & stacking the maple trunks from the Culver house, trying to keep atop of the re-build which is at a slow pace; got the 64A up for sale to cover the cost of the rebuild & hoping it sells before the end of year; trips to Indy every 2 weeks now

The radiation treatments (11 this round, the 3rd) helped the ones on his back BUT the tumor or blisters traveled under the left armpit to the front left chest and on on his very upper left arm just above the armpit ares.

Sad news is no new clinical studies for now and also down to the last treatment option has had all the recomended

Opdivo/Nuikynmab & Yervoy/Ipilimumab He gets both one week and just one of the 2 the second week He has had 2 infusions 2 weeks ago the 2 together and yesterday just the one; the have switched days starting on the 26th to Wednesdays not Fridays.

So far he is doing good on the them.

He had a CT scan when he started 2 weeks ago – its a very different format and does not c over all in wording the previous ct's of the last 3 years did… Dr. did not confer with me yesterday so do not know what was actually said and not said – the jest of the CT report is things are "stable"

Left yesterday with no appointment times so have to go in see if they set up the appointments for labs/dr/infusion for the 36th or when – its either Monday or Wednesday the nurse assigned him is not like our "Maggie" we had when we started this all Oct 25, 2017… three years down starting on the 4th….

The re-build is 2-3 months behind – have a basement – temporary electric in; the floor system has arrived and told the truses will not be there till mid-November.

Beginning to think I should of not started the house rebuild – I will either make it or loose everything unless the loan officer adds an extension or the 54A sells I am hoping for the latter as I am very unhappy over the loan officers lack of communication dragging his feet from April 28 to June 24 (the construction company was ready to start in May & June) If started by/in June was called to be 6 months was a move in by/before Christmas now I am not looking for early or late spring now; alos building materials have doubled and tripled putting doubt on the estimate given which was not full covered by my savings and the loan so it is a sink or swm situation right now – have had many sleepless nights over this.

@reibur1951– It's good to hear from you. I'm glad that your friend is stable for now. That's what I am too with my lung cancer. It's a good thing! I think that you have taken on way too much!

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Have always had full wood heat since 2004 /2005 – before that we supplemented with propane gas but it got so high here – friend who has lung cancer done the wood cutting for his mother / dad / me and then his dad / me when mother went into nursing home (dec 3 2004)- when he was diagnosed in Oct 2017 I refused to let him go over to the then 59A (33 of it woods) alone event ho his sister/brother-in-law lived over there they never checked on him

The re-build is being done by construction company all i got to do is make decisions of types windows (which has been done) kitchen cabinets/ flooring etc I pretty well have all those decisions made.

The clean-up has to be done – on the 5.3A to make it even remotely sellable. I have a friend (who was friends with the dad also) thats helping he also has helped with the splitting of the maple logs and much to my surprise friend with lung cancer I am thankful I had the logs brough out here from cutting down the maples I could possibly have enough with out buying this winter if used sparingly

The sister and brother-in-law only help in an emergency – they have never done any of the medical end of it for the mother / father / brother -that was left up to me – They only helped on occasion for firewood since father died – June 2018 but that was because had none and could not get any delivered in timely manner – I often bought the small packages you fine in grocery stores – to have heat til the ordered load arriv

I am just hoping everything works out with house – the sale of the 64A whats left after I gave 5A free and clear to the sister/brother-in-law since have lived over there since 1990 – first in a crappy mobile home and now in a modular (which In my mind is crappy now too it was put in new in Aug 1999 that makes it 21 years old they are only warrantied for 25 at most and they still has 10-11 years to pay for it – they payed not rent for the space it was on – and we payed all the property taxes on the 69+A) The 5A was promised to her by here grandmother & mother but they never done anything about it….. At times I fell like i should of not gone for adverse possession – and let it all go through the courts to the nursing home and let everyone loose everything – and father & his son would of been in nursing home then to and me out in the middle of the state highway with nothing and the sister/brother-in-law would of had to move the modular elsewhere and buy property or loose it

I guess I could throw everything up into the air after I get out of here (or before) let the place go for back property taxes and walk a way – and possibly put the firend with lung cancer into a nursing home and have time and a full life for me.

Taxes are paid up till they come due in May 2021…

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Had is radiology oncology followup for the 11 day radiation – Last night looked at all – the one under armpit on upper arm looks as if near fully open and enlarged so are the others surrounding it on th chest side… Looks as if there is a new one that is growing now on the edge of the one just finished radiation on last month and with a couple of smaller ones one the side … he said something about possible radiation treatments again – but told the radiologist no for now would see what the Opdivo/Nuikynmab & Yervoy/Ipilimumab therapy would do He goes back on Wed. the 28th will see if his regular oncologist will come out and explain more to me – he won;t but does not full understand everything either… The chemo/immunology drugs etc are effecting his memory but I do not think he want to admit it or fully recognizes it time will only tell I have firend here helping me and he called on way to Indy (via cell phone) said could not find air chuck for the compressor – he told me and the guy he did not know where it was so I bought one but the connector was missing but after we got home and told him to go find the connector he went right to it – but would not fit anyway wnt got the air chuck too and I found an extra where he got it from so i snatched it and hid it in my tool chest…. trying to understand but yet he is deterring clean-up and he does not help at all with it just sits in front of the ___ tv while I am out there busting ass with friend or laughs if so tired I drop spill my coffee all over the table… i could probably drop over out there and lay there for hours before he would even come out to look…. its beginning to get hard to try and keep the promise i made to his dad and mom and his wishes… but I am trying time will tell especially this winter not sure when house will be done but the answers will all come to a head on Dec. 24th when the promissory note comes due with basement complete I would say there is at least another 3-4 months before house will be done I was surprised he helped with the splitting of the wood but U went bought a hydraulic hand splitter and it was more like a new toy to him tho he would walk off for long periods of time, go sit in front of t v…. I know the chemo/immunology/radiation plays a toll on him but he won't tell you anything but yet he will ride 6-10 miles every day down to a country store – but he missed tonight after he got home at 4:30 Off my soapbox

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@reibur1951

Had is radiology oncology followup for the 11 day radiation – Last night looked at all – the one under armpit on upper arm looks as if near fully open and enlarged so are the others surrounding it on th chest side… Looks as if there is a new one that is growing now on the edge of the one just finished radiation on last month and with a couple of smaller ones one the side … he said something about possible radiation treatments again – but told the radiologist no for now would see what the Opdivo/Nuikynmab & Yervoy/Ipilimumab therapy would do He goes back on Wed. the 28th will see if his regular oncologist will come out and explain more to me – he won;t but does not full understand everything either… The chemo/immunology drugs etc are effecting his memory but I do not think he want to admit it or fully recognizes it time will only tell I have firend here helping me and he called on way to Indy (via cell phone) said could not find air chuck for the compressor – he told me and the guy he did not know where it was so I bought one but the connector was missing but after we got home and told him to go find the connector he went right to it – but would not fit anyway wnt got the air chuck too and I found an extra where he got it from so i snatched it and hid it in my tool chest…. trying to understand but yet he is deterring clean-up and he does not help at all with it just sits in front of the ___ tv while I am out there busting ass with friend or laughs if so tired I drop spill my coffee all over the table… i could probably drop over out there and lay there for hours before he would even come out to look…. its beginning to get hard to try and keep the promise i made to his dad and mom and his wishes… but I am trying time will tell especially this winter not sure when house will be done but the answers will all come to a head on Dec. 24th when the promissory note comes due with basement complete I would say there is at least another 3-4 months before house will be done I was surprised he helped with the splitting of the wood but U went bought a hydraulic hand splitter and it was more like a new toy to him tho he would walk off for long periods of time, go sit in front of t v…. I know the chemo/immunology/radiation plays a toll on him but he won't tell you anything but yet he will ride 6-10 miles every day down to a country store – but he missed tonight after he got home at 4:30 Off my soapbox

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Hello @reibur1951 and thanks for dropping by Connect with an update. I can hear the frustration in your post and that is certainly understandable. I hope that you are able to get some relief and help with your building project. Your words show compassion and understanding for your friend's health situation and you are to be commended for that.

I look forward to hearing from you again.

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@reibur1951

Had is radiology oncology followup for the 11 day radiation – Last night looked at all – the one under armpit on upper arm looks as if near fully open and enlarged so are the others surrounding it on th chest side… Looks as if there is a new one that is growing now on the edge of the one just finished radiation on last month and with a couple of smaller ones one the side … he said something about possible radiation treatments again – but told the radiologist no for now would see what the Opdivo/Nuikynmab & Yervoy/Ipilimumab therapy would do He goes back on Wed. the 28th will see if his regular oncologist will come out and explain more to me – he won;t but does not full understand everything either… The chemo/immunology drugs etc are effecting his memory but I do not think he want to admit it or fully recognizes it time will only tell I have firend here helping me and he called on way to Indy (via cell phone) said could not find air chuck for the compressor – he told me and the guy he did not know where it was so I bought one but the connector was missing but after we got home and told him to go find the connector he went right to it – but would not fit anyway wnt got the air chuck too and I found an extra where he got it from so i snatched it and hid it in my tool chest…. trying to understand but yet he is deterring clean-up and he does not help at all with it just sits in front of the ___ tv while I am out there busting ass with friend or laughs if so tired I drop spill my coffee all over the table… i could probably drop over out there and lay there for hours before he would even come out to look…. its beginning to get hard to try and keep the promise i made to his dad and mom and his wishes… but I am trying time will tell especially this winter not sure when house will be done but the answers will all come to a head on Dec. 24th when the promissory note comes due with basement complete I would say there is at least another 3-4 months before house will be done I was surprised he helped with the splitting of the wood but U went bought a hydraulic hand splitter and it was more like a new toy to him tho he would walk off for long periods of time, go sit in front of t v…. I know the chemo/immunology/radiation plays a toll on him but he won't tell you anything but yet he will ride 6-10 miles every day down to a country store – but he missed tonight after he got home at 4:30 Off my soapbox

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UPDATE back into radiation – his 4th this year – will be 41 days of it total Go for Verification and Pictures tomorrow had his initial consultation last week or befor – not sure days and tasks running into each other Not sure what is going on or will be going on made the trip to Indy for the labs/dr/infusion and she called me at 12:51 p.m. to cancel the 1:30 p.m. (she had just called the landline a few seconds before as firend called me to tell me he listened to the message we were not to come) and was just getting ready to turn into the Vermont Parking garage since there has been no Valet parking since mid March – gives us the half hour to trek the block up to the main entrance – answer all the Covid-19 screening Q's and trek our asses over to the Barnhill elevators and up to 2nd floor i miss the valet as it was worth the $10 if did not get a voucher ticket for it (Infusion & radiation treatments general if someone does not loose the ticket before he hands it to me)

The rebuild is on a roll picture attached kitchen cabinets will be ordered within a few days – siding is order the soffitting & trim is there on site – not made any draws on the loan as yet but coming up withing the next few days have the 64A up for sale and not sure whats going on there either – several looked on interested but he is trying to take it down below the bank appraisal for the loan – and I won't go that far – think it was $244,000 – with with that I will loose my ass with all the fees and loan payback; agent using the bank figures came up with 248 and I talked it up to 258 I said i would go lower than the later # – I had spreadsheet all made out so i went and crunched figures at all three – took off the tees etc and sent it to the agent have never heard back from him only came to get a signature to get and aerial view of the property from the Ag department – wanted a 10-year yield average again – so had to get it again this round i got quotes for every year

So with everything my temperament is on the ras edge – but i am hanging in keep repeating everything is going to be oaky and will turn out but yet scared

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@reibur1951

UPDATE back into radiation – his 4th this year – will be 41 days of it total Go for Verification and Pictures tomorrow had his initial consultation last week or befor – not sure days and tasks running into each other Not sure what is going on or will be going on made the trip to Indy for the labs/dr/infusion and she called me at 12:51 p.m. to cancel the 1:30 p.m. (she had just called the landline a few seconds before as firend called me to tell me he listened to the message we were not to come) and was just getting ready to turn into the Vermont Parking garage since there has been no Valet parking since mid March – gives us the half hour to trek the block up to the main entrance – answer all the Covid-19 screening Q's and trek our asses over to the Barnhill elevators and up to 2nd floor i miss the valet as it was worth the $10 if did not get a voucher ticket for it (Infusion & radiation treatments general if someone does not loose the ticket before he hands it to me)

The rebuild is on a roll picture attached kitchen cabinets will be ordered within a few days – siding is order the soffitting & trim is there on site – not made any draws on the loan as yet but coming up withing the next few days have the 64A up for sale and not sure whats going on there either – several looked on interested but he is trying to take it down below the bank appraisal for the loan – and I won't go that far – think it was $244,000 – with with that I will loose my ass with all the fees and loan payback; agent using the bank figures came up with 248 and I talked it up to 258 I said i would go lower than the later # – I had spreadsheet all made out so i went and crunched figures at all three – took off the tees etc and sent it to the agent have never heard back from him only came to get a signature to get and aerial view of the property from the Ag department – wanted a 10-year yield average again – so had to get it again this round i got quotes for every year

So with everything my temperament is on the ras edge – but i am hanging in keep repeating everything is going to be oaky and will turn out but yet scared

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Oh, I love this. Nice design. HAs radiation helped him recently? How does he do with it?

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@reibur1951

UPDATE back into radiation – his 4th this year – will be 41 days of it total Go for Verification and Pictures tomorrow had his initial consultation last week or befor – not sure days and tasks running into each other Not sure what is going on or will be going on made the trip to Indy for the labs/dr/infusion and she called me at 12:51 p.m. to cancel the 1:30 p.m. (she had just called the landline a few seconds before as firend called me to tell me he listened to the message we were not to come) and was just getting ready to turn into the Vermont Parking garage since there has been no Valet parking since mid March – gives us the half hour to trek the block up to the main entrance – answer all the Covid-19 screening Q's and trek our asses over to the Barnhill elevators and up to 2nd floor i miss the valet as it was worth the $10 if did not get a voucher ticket for it (Infusion & radiation treatments general if someone does not loose the ticket before he hands it to me)

The rebuild is on a roll picture attached kitchen cabinets will be ordered within a few days – siding is order the soffitting & trim is there on site – not made any draws on the loan as yet but coming up withing the next few days have the 64A up for sale and not sure whats going on there either – several looked on interested but he is trying to take it down below the bank appraisal for the loan – and I won't go that far – think it was $244,000 – with with that I will loose my ass with all the fees and loan payback; agent using the bank figures came up with 248 and I talked it up to 258 I said i would go lower than the later # – I had spreadsheet all made out so i went and crunched figures at all three – took off the tees etc and sent it to the agent have never heard back from him only came to get a signature to get and aerial view of the property from the Ag department – wanted a 10-year yield average again – so had to get it again this round i got quotes for every year

So with everything my temperament is on the ras edge – but i am hanging in keep repeating everything is going to be oaky and will turn out but yet scared

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Great looking home, @reibur1951! Your self-talk sounds great, just keep it up.

You said that the radiation is for 41 days total. Are those consecutive days?

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The 41 one days will be total when this round ends – and they look nasty the one on the upper arm has busted wide open He should of opted for the offered radiation treatment on his follow up in mid October – but i was not allowed in as caregiver and they were growing bright red then and some in closer to middle of chest – just hope radiation area is wide enough to cover all of them –

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Last day of radiation for friend was on Wed. 9th – they are looking better but by time radiation started they all had busted open – except smaller ones just starting near the chest bone – thankfully the dr. widen the area to include these as precaution by the markings. He complained when I cleaned them and then put the slave i had left from the January episode on them I just looked at him and said if you had not declined the radiation treatment when you had follow-up on Oct 20th he would of not had to gone through the pain and them all busting open – even the medium size one about the size of a nickel broke open this round which meant 5 open wounds – told him it was me or wound care – they were not gettign infected.

He did not have the Opdivo/Nuikynmab & Yervoy/Ipilimumab therapy on Nov.4th as said earlier – is scheduled for labs/dr/infusion on the 16th this coming wednesday – not heard anything of the possible clinical study – Have not been allowed to go into SImon Cancer center even tho the caregiver & he does not understand everything so i toured around Indy, got lost several times seen parts of the city I never saw before (mom & her sister always shopped L.S. Ayres, Blocks (on Washington st.)& Wasson's on the circle – was told won't be allowed in for the 16th appointment either\planning to see if i can go visit the Kurt Vonnegut Library which is only about 3 blocks to the east on SImon Center – Wednesday as it will be 3-4 hours I assume this round – radiation was 15 minutes to 1 hour if dr. saw him afterwards..

D-day is 24th Dec – not sure what going to happen – the house is not done – no walls – only framing – kitchen cabinets and bathroom vanities & countertops – picked out – stopped by today – electric is run under ground and into house – not the natural gas as yet – the start of the Generac Generator in place with the electric meter – it is "Fully Automated Digital Load Management System" have no idea the cost its above the estimate to build the house – putting in both Gas/Electric supplies for the stove/oven & clothes dryer; electric is in and there wit be internet/cable for Tv in bedrooms and living room – not sure of the kitchen dining area. The real estate agent selling the 64A seems determined to under sell the bank appraisal by $38,000 – 48,000 told him yesterday that I was not lowering if had to do that i would turn everything over to the bank and loose my as that way – I keep crunching figures to see where i stand and just get one huge headache and depressed. Got a timber guy who is going to look as the woods se if there is any timber that could be harvested and what he values woods at theres is roughly 32-33A of it Bank loan officer has been non-communicative – only ones I am please with are the construction company – they have keep in contact – and even come up with some great ideas – that varied from the original plans Clint knew my desire for my kitchen cabinets and went cabinet shopping for me ­čÖé all i had to do was go pick out the faucet and the color for the granite counter tops – while there i did the bathroom vanities and tops they all will be rustic hickory wood.

Times i wonder why i made my promise to his mom and dadt to stick with him and care for him – he thinks another will step up and do what I am doing – his own sister & brother in-law won't do it as the other sister & half-sister. Tell him no one is goign to buy all the food, gass, take off work to drive to Indy and spend 5-8 hours of their time…

Yesterday and today spent out in front where the pine trees are / were cleaning up. 16 years of neglect – they are all but gone – but it is getting to look better not a jungle of dead and live trees. Has been nice weather for it in the high 40's to low 50's unseasonable warm for December in Indiana.

Seems like its going to be a hum-bug christmas. Trying to hang in but getting harder to do it seems – I was rewarded with a high Medicare Part B premium, because I sold the 40A friends tell me if i signed up for the Medicare Advantage I would not have to pay it – but I do – and can not convince them you do have to pay it – I also should have cataract surgery on my right eye was told Sept 28th – but can't do that in case anything goes wrong as no one to take him to Indy for his treatments etc. Life is a bowl of cherries if you do not weaken…

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Check in time again The last round of radiation treatments may have gotten all t he tumors / skin blisters for now – the Radiologist did extend it into the middle of the front of chest to catch the small ones that had started He had 2st CT Scans since June or early fall things seem to be stable – scarring seen he said probably from the radiation tho there is an enlarged lymph node on the right side where the tumors / skin blisters were goign to watch it He has been back on the YERVOY┬«┬á(ipilimumab) & OPDIVO┬«┬á(nivolumab) immunology 2 one week and only 1 the next week – today was the 2 one session it was a long tiring day – cts at 11:40 labs/dr at 1 but did not get to see dr. till after 3 – then infusion and he did not get out till 6:30 p.m. with a 2 hour drive.
Go back on the 17th.

House is coming along I guess – depending on the contractors to keep on track tho behind schedule the drywall is up and primed; the flooring is there and to be installed; and the kitchen cabinets will be there friday (Feb 5) but the countertops are 8 weeks out yet – looks like will be very late spring… goign to take time moving iiin as mainly boxes and I will have to do it all and find help to move the antiques china closet; hutch, table – and 2 dressers… no other furniture will have to figure that one out… gathering money up for new appliances.

The clean-up of 5/3a coming along Dec. – to now hauled out 6 dumpsters of tin/shred & one of 2' steel…. still more to go but hopefully coming to the end
I fell last week over a frozen clump of dirt and twisted hurt my side and it still hurts but i have to keep on going just like today no one to take my place…

The sale of the 64A not goign well the real estate agent wants to under sell the appraised value for the bank loan so not happy camper and holding of till I can get some more figure crunching done and hoping I can swing everything…. because I sold the 40A for the truck & part of the house I got a whammy in that they upped my medicare premiums over $450 so that has been a set back.

Karma has hit – friends sister & brother-in-law is getting a divorce – the brother-in-law stops breathing at night been diagnosed with hypoxia not sure what's going on and do not care – only heard her side – they are ones gave 5a to to keep their house –

Going to bed & TV tired.

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Hi @reibur1951,

So good to get an update from you. I'm glad to hear that your friend's cancer appears stable at this time. How is he feeling with his treatments? Is he having many side effects from the infusions? Were the holidays good for you both?

It sounds as if your house is coming along with the regular delays and frustrations that come with dealing with contractors and waiting for materials to become available. Do you have any estimate as to the finish date?

I'm sorry to hear of your fall. Do you think you might have broken some ribs?

Take care and check in again as you are able.

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He does not say much which is frustrating – Dr. mention the enlarge lymph node on right side must be inside and he said oh yeah here grrrrr….

The contractors are wonderful – the one did my kitchen cabinet shopping comparing all i had to do was go pickout counter top cp;pr amd sty;e pf edge and faucet – while there I got the vanity tops & base as was not finding the hickory through Lowes, Home Depot Menards etc on line all came up no longer provided or out of stock – was only $80 over the budget for them so was not worth the delays and hassles

The counter tops are about 8 weeks out – so that mean s April or later – they were starting to lay the flooring when i ran into town today. I look for May and then will take my time moving stuff back that direction that brought to a storage trailer here will have to find someone to help with the furniture items here mostly dressers, a buffet, and my china hutch all antiques.

I have no bruising just sore – and if i twist or turn wrong way or pick something up that's heavy say 5 gallons of kerosene.. or fight with the wood in the wood stove i know it..

Going to see if can get a print out of the ct to see what it fully says.

Christmas was just us – the sister brother-in-law never eve n called etc. News Year eve friend came back to help with clean-up and still here will be leaving the 13th and probably way talks will be on my own for the rest unless i can find someone to help

STay warm here its to be wicked the next few days.

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