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My husband was recently diagnosed with CAA while he was having a stroke in the neurologist’s office. He’s apparently had two large bleeds and a few micro bleeds and has symptoms. Does anyone have the same or similar situation?
Interested in more discussions like this? Go to the Caregivers: Dementia group.
Oh @nleejewell, if your husband was to have a stroke, how fortunate that this happen while you were with the neurologist. Allow me to bring in others to the discussion who have experience with dementia and cerebral amyloid angiopathy, like @gbiffart @nicolehf @nanatessie @jamestitus @sistertwo @larryh123 @keithl56 and @shedwina
While we wait for other to join the discussion you may be interested in this related discussion:
– Cerebral amyloid angiopathy: https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/
What was the original reason for seeing the neurologist when the stroke occurred that led to the diagnosis of CAA? How are you doing?
I have had numerous small strokes-TIA. Had an mri because of headaches, dizziness and leg weakness and was diagnosed with CAA. I have had several brain bleeds. I am taking Coumadin because of a valve replacement which makes it worse but can’t stop. I have a few symptoms like dizziness, headaches and limb weakness but none of the more serious ones. I’m in danger of dementia and Alzheimer’s but no signs yet. When I was first diagnosed, I read about it and scared myself. At least I know what could possibly happen and can watch out for it. I have an mri every 6 months unless I have problems and so far staying about the same
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Thank you for sharing. My husband was on Eliquis because he has AFib, but his neurologist and cardiologist talked quickly and agreed that he needed to stop the Eliquis immediately and avoid all blood thinners. The neurologist said taking them could result in a catastrophic stroke. The cardiologist wanted him to check out the Watchman, although acknowledging that it requires blood thinners initially too. All the doctors at the hospital said it wasn’t an option.
He has aphasia and memory loss, which is why we saw the neurologist initially. The positive for me is that he’s 80 and in good physical health, and from what I’ve read this isn’t typically a fast acting disease. Do you mind telling me how old you are? And if you know if yours is genetic, blood pressure, inflammatory related? Are you on medication?
I am 70 and was diagnosed about 5 years ago. Yes it is slow moving and that is a blessing. They are not sure what is causing it as I have so many issues. I have marfans syndrome which is a connective tissue disease and the Coumadin but with a valve replacement you cannot come off it. Marfans causes many things so every time I’m diagnosed with something the doctors always blame that. That’s a very interesting disease-if you or someone in your family don’t have it. Praying for you and your husband that nothing major happens
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