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Retina growth causing blindness - Need advice

Posted by suejj @suejj, Feb 25, 2022

Hi everyone! My eyesight went from do-able with +1.75 cheaters to impossible to read sometimes even with glasses this year. A few weeks ago, I had sleepers. As I closed one eye at a time to fix that, I realized that my one eye was fine while my other one was unable to see more than smudges except for peripherally. I set up an appointment and saw an optometrist on Tuesday. She took a ton of pictures and told me my retina was growing. What should look like two hills with a gradual valley in both eyes looks normal in one eye and like a kaleidoscope. With the abnormal eye, I can't even read the big E! She referred me on to a specialist, but I am concerned about what lies next, if I will see again, what is this called, why did it happen, etc. Can anyone help me out? Furthermore, I live in ND. How far away do I need to go to find a doctor who has experience with this condition? I am a half-blind teacher concerned for my future. Please advise if you can.

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bcw08209 | @bcw08209 | Sep 10, 2018

Vision in one of my eyes is deteriorating quickly due to a tissue growth covering the retina. My vision has gone from 20/20 to 20/65 (corrected) over the past 9 months. My doctor is recommending surgery to remove the tissue but indicates that there is a 30% chance that the surgery could damage the retina making the vision even worse. Additionally, it is not possible to predict how much the vision will be improved if the surgery is successful. If anyone who has had this problem and had the surgery can provide input as to the results I would appreciate it.

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1 reply
suejj | @suejj | Feb 25, 2022
In reply to @bcw08209 "Vision in one of my eyes is deteriorating quickly due to a tissue growth covering the..." + (show)
@bcw08209

Vision in one of my eyes is deteriorating quickly due to a tissue growth covering the retina. My vision has gone from 20/20 to 20/65 (corrected) over the past 9 months. My doctor is recommending surgery to remove the tissue but indicates that there is a 30% chance that the surgery could damage the retina making the vision even worse. Additionally, it is not possible to predict how much the vision will be improved if the surgery is successful. If anyone who has had this problem and had the surgery can provide input as to the results I would appreciate it.

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I also have this problem. I can't even read the large E. Did you find a treatment? Who is your doctor? Are you happy with the outcome? Please do let me know. I am feeling alone in my one-eyed'ness

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Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 25, 2022
In reply to @suejj "I also have this problem. I can't even read the large E. Did you find a..." + (show)
@suejj

I also have this problem. I can't even read the large E. Did you find a treatment? Who is your doctor? Are you happy with the outcome? Please do let me know. I am feeling alone in my one-eyed'ness

Jump to this post

Hi @suejj, welcome to the Eye Conditions group. I merged the 2 discussion about retina growth into one.

I can imagine this is very concerning especially as a teacher. I'm tagging @trellg132 @rosemarya @dsh33782 to bring them into this discussion. While they may not have the exact same thing as you, they understand the fear of losing one's eyesight and retinal issues.

Sue, might you be referred to a retina specialist? What specialist did the optometrist refer you to?

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