Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms group.

With all aneurysms keeping Blood pressure down is supposed to be good for not enlarging the problem area

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@ken82

With all aneurysms keeping Blood pressure down is supposed to be good for not enlarging the problem area

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Thank you. Is stress an issue? I work with children. Many with extreme behavior issues which are often out if anyone else’s control, including administration. Schools are a toxic environment these days with no governmental support in the national, state and county levels.

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@wvsongbird

Thank you. Is stress an issue? I work with children. Many with extreme behavior issues which are often out if anyone else’s control, including administration. Schools are a toxic environment these days with no governmental support in the national, state and county levels.

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My heart goes out to you. As a retired teacher and principal, I can say that you are under enormous pressure and stress. It can't be helpful for good health. PS: Your pay should be doubled!

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My celiac artery aneurysm is on a wait and see. They will revisit in two years. This makes me nervous to be honest. It’s always in the back of your mind. I have been told the only symptoms of change are extreme pain. And that could be too late. So it is nerve wracking. Those of you who have had it fixed. I hope that worry is now gone for you. Blessings to all of us with this rare condition.

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I was diagnosed with this in 2016. My doctor’s notes suggest:

Better redemonstration and confirmation of 2.1 cm fusiform aneurysmal dilatation of the celiac artery. Associated occlusive dissection with thrombus formation likely within the false lumen involving the celiac artery, proximal common hepatic artery, and origin splenic artery. Etiology of this is unclear. This can be seen in association with underlying vasculitis. No other findings to suggest vasculitis as far as visualized.

I presented with similar symptoms, severe pain in low back with nausea. From onsite of initial pain (while sitting in my barber’s chair hoping he would finish quick because I needed to vomit) until the time I ended up in the ER was 90 minutes. Was on a Friday night. ER doctor sent me home, couldn’t find any reason for the pain. I suffered thought the Memorial Day week and was first in line to see my primary care doctor on Tuesday. He immediately sent me to a general surgeon who admitted me to the hospital (same one I had gone to on the Friday).

I was lucky that the general surgeon was a very experienced doctor with 40+ years of medical practice. He had seen this before and knew what to test and sent me to the vascular surgeon who explained to me “it is like you have wallpaper in the walls of your arteries. For some reason, the wallpaper is peeling from the top and blood is getting behind the wallpaper causing the issue”. Great explanation. The pain was explained as my spleen dying from lack of blood flow. Don’t know if that is a common symptom.

Was in hospital for four days, started on blood thinners (stayed on for 6 months) and re-scanned with no issues. Follow up visit in 2019, no issues.

If I can be of help to anyone here, please let me know.

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@janet26

My celiac artery aneurysm is on a wait and see. They will revisit in two years. This makes me nervous to be honest. It’s always in the back of your mind. I have been told the only symptoms of change are extreme pain. And that could be too late. So it is nerve wracking. Those of you who have had it fixed. I hope that worry is now gone for you. Blessings to all of us with this rare condition.

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To be honest, I don’t think of it much at all.

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@tvickey

I was diagnosed with this in 2016. My doctor’s notes suggest:

Better redemonstration and confirmation of 2.1 cm fusiform aneurysmal dilatation of the celiac artery. Associated occlusive dissection with thrombus formation likely within the false lumen involving the celiac artery, proximal common hepatic artery, and origin splenic artery. Etiology of this is unclear. This can be seen in association with underlying vasculitis. No other findings to suggest vasculitis as far as visualized.

I presented with similar symptoms, severe pain in low back with nausea. From onsite of initial pain (while sitting in my barber’s chair hoping he would finish quick because I needed to vomit) until the time I ended up in the ER was 90 minutes. Was on a Friday night. ER doctor sent me home, couldn’t find any reason for the pain. I suffered thought the Memorial Day week and was first in line to see my primary care doctor on Tuesday. He immediately sent me to a general surgeon who admitted me to the hospital (same one I had gone to on the Friday).

I was lucky that the general surgeon was a very experienced doctor with 40+ years of medical practice. He had seen this before and knew what to test and sent me to the vascular surgeon who explained to me “it is like you have wallpaper in the walls of your arteries. For some reason, the wallpaper is peeling from the top and blood is getting behind the wallpaper causing the issue”. Great explanation. The pain was explained as my spleen dying from lack of blood flow. Don’t know if that is a common symptom.

Was in hospital for four days, started on blood thinners (stayed on for 6 months) and re-scanned with no issues. Follow up visit in 2019, no issues.

If I can be of help to anyone here, please let me know.

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I noticed someone else here suggested they were Factor V Leiden (Factor 5 Leiden). Anyone else told this?

REPLY
@tvickey

I was diagnosed with this in 2016. My doctor’s notes suggest:

Better redemonstration and confirmation of 2.1 cm fusiform aneurysmal dilatation of the celiac artery. Associated occlusive dissection with thrombus formation likely within the false lumen involving the celiac artery, proximal common hepatic artery, and origin splenic artery. Etiology of this is unclear. This can be seen in association with underlying vasculitis. No other findings to suggest vasculitis as far as visualized.

I presented with similar symptoms, severe pain in low back with nausea. From onsite of initial pain (while sitting in my barber’s chair hoping he would finish quick because I needed to vomit) until the time I ended up in the ER was 90 minutes. Was on a Friday night. ER doctor sent me home, couldn’t find any reason for the pain. I suffered thought the Memorial Day week and was first in line to see my primary care doctor on Tuesday. He immediately sent me to a general surgeon who admitted me to the hospital (same one I had gone to on the Friday).

I was lucky that the general surgeon was a very experienced doctor with 40+ years of medical practice. He had seen this before and knew what to test and sent me to the vascular surgeon who explained to me “it is like you have wallpaper in the walls of your arteries. For some reason, the wallpaper is peeling from the top and blood is getting behind the wallpaper causing the issue”. Great explanation. The pain was explained as my spleen dying from lack of blood flow. Don’t know if that is a common symptom.

Was in hospital for four days, started on blood thinners (stayed on for 6 months) and re-scanned with no issues. Follow up visit in 2019, no issues.

If I can be of help to anyone here, please let me know.

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@tvickey Welcome to Mayo Clinic Connect and thank you for telling your story of celiac artery aneurysm. That explanation by your doctor comparing the dissection to wallpaper is the best I have heard! Did you have surgery then?
I had MALS – median arcuate ligament syndrome- the celiac artery was compressed by a ligament. I’m sure the symptoms are similar. Do you still have your spleen?

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@tvickey

I noticed someone else here suggested they were Factor V Leiden (Factor 5 Leiden). Anyone else told this?

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It might have been me.

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In reply to @susangourdlady "It might have been me." + (show)
@susangourdlady

It might have been me.

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Indeed, @susangourdlady. Would you mind repeating your experience with Factor V Leiden?

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@astaingegerdm

@tvickey Welcome to Mayo Clinic Connect and thank you for telling your story of celiac artery aneurysm. That explanation by your doctor comparing the dissection to wallpaper is the best I have heard! Did you have surgery then?
I had MALS – median arcuate ligament syndrome- the celiac artery was compressed by a ligament. I’m sure the symptoms are similar. Do you still have your spleen?

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No surgery. Was on meds for 6 months and follow up. Second visit showed a smaller dissection. No idea how that happened.

My doc is awesome. I switched health insurance, he was out of network. I was prepared to pay for my annual follow up visit out of pocket (he is good and expensive).

HE WAIVED HIS FEE!

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@colleenyoung

Indeed, @susangourdlady. Would you mind repeating your experience with Factor V Leiden?

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My doctor told me that whenever I have surgery that I must always tell the doctors about the Factor 5 – don't know why it is important but I tell them.

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