My 16 yr old son was diagnosed with Multicentric Castleman’s Disease. He was found to be HIV negative and also HHV8 negative. Does anyone know the prognosis or have any experience with this disease. I’m told it’s very rare. He is undergoing chemo therapy soon. I’ve looked online and what I’ve read isn;t very comforting. The doctors don’t have a lot of info. either concerning this. Was just wondering if there are any personal experiences. Thank you.
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