Calciphilaxis dialysis and Mayo

Posted by Jim McGarry @jimmcgarry, Aug 24, 2018

I am wondering if there are any Doctors at Mayo who are looking into Calciphilaxis treatment before it goes too far. I lost the use of my dominant right hand and had a valve in my heart falsify before anyone mentioned this disease and it was a nurse not my doctor who after I brought it up prescribed the sodiumthiosulfate treatments. After a 6 month quiet period I noticed it coming back and immediately had them restart the treatment. I have also seen a increase in patients who are suffering from this in my dialysis group
Please lead us to the doctor at Mayo who knows something about this insidious disease before there are more deaths and amputations

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