1. < Digestive Health

C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

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losthope | @losthope | Feb 3, 2020
In reply to @ngarriso "Yes I am realizing now my Gp just wasn’t able to get this cured. I feel..." + (show)
@ngarriso

Yes I am realizing now my Gp just wasn’t able to get this cured. I feel like I am on the way to heal. Thank you for sharing your information and I will use it❤️

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Does anyone else have a good day where they eat and the next day go to the bathroom all day. Not diarrhea just bowel movements which irritation for hour after. I am thinking it’s something other than the cdiff. Diverticulitis or colitis or irritable bowel. Any thoughts

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1 reply
guthealth | @guthealth | Feb 3, 2020
In reply to @bluebanana "I'm suffered for 7 days with what I thought was a bad case of the stomach..." + (show)
@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Could be all you mentioned but also what you ate day before. Helpful to keep food diary of trigger foods

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1 reply
ngarriso | @ngarriso | Feb 3, 2020
In reply to @losthope "Does anyone else have a good day where they eat and the next day go to..." + (show)
@losthope

Does anyone else have a good day where they eat and the next day go to the bathroom all day. Not diarrhea just bowel movements which irritation for hour after. I am thinking it’s something other than the cdiff. Diverticulitis or colitis or irritable bowel. Any thoughts

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Yes. Same for me. And a discharge 😢

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losthope | @losthope | Feb 3, 2020
In reply to @guthealth "Could be all you mentioned but also what you ate day before. Helpful to keep food..." + (show)
@guthealth

Could be all you mentioned but also what you ate day before. Helpful to keep food diary of trigger foods

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Just don’t know what to eat anymore and weight or lack of is becoming an issue. I too have a discharge and always feel like leaking rectally. Can never wipe enoughand them become irritated. So weird talking about this. Taking probiotics during danactiv kiefer and eating well but just not stoping. Very discouraged

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2 replies
serenityva | @serenityva | Feb 3, 2020
In reply to @bluebanana "I'm suffered for 7 days with what I thought was a bad case of the stomach..." + (show)
@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I have had about 3 to 4 bouts a year of Diverticulitis, but the surgeon I saw a couple years ago said pockets weren’t bad enough, in his opinion, to merit removal. My current surgeon said that with bouts so often for a few years meant get it out immediately, which I did.

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2 replies
pines | @pines | Feb 3, 2020
In reply to @serenityva "I have had about 3 to 4 bouts a year of Diverticulitis, but the surgeon I..." + (show)
@serenityva

I have had about 3 to 4 bouts a year of Diverticulitis, but the surgeon I saw a couple years ago said pockets weren’t bad enough, in his opinion, to merit removal. My current surgeon said that with bouts so often for a few years meant get it out immediately, which I did.

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@serenityva Oh my, Diverticulitis on top of dealing with C.diff. Wishing you safe travels to Thailand. Our niece spent two weeks there this past March. Loved seeing all her beautiful photos. Will you be doing Vanco every other day on your last week of Vanco taper?

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1 reply
sakota9 (Joan) | @sakota | Feb 3, 2020
In reply to @serenityva "I have had about 3 to 4 bouts a year of Diverticulitis, but the surgeon I..." + (show)
@serenityva

I have had about 3 to 4 bouts a year of Diverticulitis, but the surgeon I saw a couple years ago said pockets weren’t bad enough, in his opinion, to merit removal. My current surgeon said that with bouts so often for a few years meant get it out immediately, which I did.

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How many years did you have 3 or r bouts a year I had 4 this year but removable was only mentioned if it had gone thru my colon which it hadn’t.

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1 reply
sandyabbey | @sandyabbey | Feb 3, 2020
In reply to @losthope "I feel your pain. I to was put on clindamycin and contracted cdiff. I lost 22..." + (show)
@losthope

I feel your pain. I to was put on clindamycin and contracted cdiff. I lost 22 pounds in 2 months was hospitalized over thanksgiving. I am on danactiv and havie been on vancomycin for a long time. I had in twice in two months. I too can not tell what to eat. Sometimes ok but meat seems to make it flare up. I was told about fecal transplant and I did research and have decided if not improving by January that is what I will do. Good luck to you.

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@lilosthope

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1 reply
sandyabbey | @sandyabbey | Feb 3, 2020
In reply to @sandyabbey "@lilosthope" + (show)
@sandyabbey

@lilosthope

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I’m in the same situation. I’ve had 4 flare ups. Last weekend I was taken to The hospital by ambulance. I was very dehydrated from going to the bathroom over 20 times. I was passing out. I’m now on Dificid. I have 3 more days on it & I’m nervous because each time I’ve finished a med it comes back in about a week. First flagyl 3 times. Then Vancomycin. Now this Dificid. If I fall this, I’ll have to have the FMT.

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sandyabbey | @sandyabbey | Feb 3, 2020
In reply to @losthope "I will never forget the smell of cdiff. I actually work in a hospital and you..." + (show)
@losthope

I will never forget the smell of cdiff. I actually work in a hospital and you sometimes smell it and gag. I nevertheless thought I would talk about my BM to anyone. I just am glad I have people to talk to it is scared and it is so life changing. I pray for everyone who has this disease and I think clindamycin should be taken off the market

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I do too. That’s what gave this to me

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