C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@ngarriso

I have almost the exact same problems. Have not been well for almost two years.. Next step is the specialist and that's Jan 3rd..
I pray this is going to help…

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Good luck prayers sent 🙏🏻

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@losthope

Good luck prayers sent 🙏🏻

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Thank you for your prayers. I am scared and nervous but I am so hopeful ❤️

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@pines

@losthope @serenityva With my first bout, I had a lot of "gel like" stools. When reading everything I could about C.diff, I also found articles with photos of exactly what my BM's were like. The "gel like" is actually puss and sloughing of the colon lining and would float in the water. I never in my like thought I would be talking to people about BM's. How things change after 4 bouts of C.diff for me. And yes, they were very narrow, almost pencil like in size.

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I have the slime too. And I too am surprised that I am talking so much about my stools and slime. But I feel grateful that others have my issues

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I have been through this for 2 years. Praying for it to be over soon

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@losthope

I will never forget the smell of cdiff. I actually work in a hospital and you sometimes smell it and gag. I nevertheless thought I would talk about my BM to anyone. I just am glad I have people to talk to it is scared and it is so life changing. I pray for everyone who has this disease and I think clindamycin should be taken off the market

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@lost hope I agree. Clindamycin needs to be taken off the market. It has almost killed me with 3 relapses of Cdiff

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I call it the devil’s antibiotic. I never knew a week’s course of antibiotics could cause so much devastation for so long. It took me three months of diarrhea, losing 20 pounds, two other rounds with other antibiotics and finally following a strict diet to finally see some improvement.

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@pines

@sandyabbey @losthope I am so encouraged to hear that you are on Dificid (fidaxamicin). That's the on RX that seems to be working for me. I've done Flagyl first, Vanco second, Vanco taper third & FINALLY Dificid with my 4th bout. I finished Dificid on 10/26 and so far…so good. This is the longest I've gone without a C.diff episode since April when I finished Clindaymycin. I'm fighting a cold now that I hope doesn't turn in to a sinus infection. I was given Clindamycin in April after my 4th sinus infection. There is no way I will take another antibiotic right now when my colon is finally functioning pretty normal. More and more physicians have stopped giving Flagyl for the first Cdiff episode. They are starting with Vancomycin and then going to Dificid earlier in the process. I realize that the cost of Dificid is prohibitive and my insurance didn't approve paying for mine until I had tried other drugs. I have a friend who was given Dificid after her second relapse and she has been free of C.diff for over two years. I, like a few of you here, will do the fecal transplant if I have another relapse. My fingers are crossed and I pray to God that Dificid worked. It's the one drug that ONLY kills the C.diff spores and leaves your good bacteria. Wishing you all a healthy 2019.

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My go won’t order it without a relapse even though I’m not getting better. Very disappointed

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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With diverticulitis I always have pain in the left side of the groin area. I’ve had c diff No suggestions as to what it could be. If it keeps on go to the dr. Best of luck. @losthope

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I have had both as well.

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@losthope

Just don’t know what to eat anymore and weight or lack of is becoming an issue. I too have a discharge and always feel like leaking rectally. Can never wipe enoughand them become irritated. So weird talking about this. Taking probiotics during danactiv kiefer and eating well but just not stoping. Very discouraged

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I agree it is embarrassing to talk about all of this but with all of you I feel like you understand

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@losthope

Just don’t know what to eat anymore and weight or lack of is becoming an issue. I too have a discharge and always feel like leaking rectally. Can never wipe enoughand them become irritated. So weird talking about this. Taking probiotics during danactiv kiefer and eating well but just not stoping. Very discouraged

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It’s hard to go through this and not get down 😢

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@pines

@sandyabbey @losthope I am so encouraged to hear that you are on Dificid (fidaxamicin). That's the on RX that seems to be working for me. I've done Flagyl first, Vanco second, Vanco taper third & FINALLY Dificid with my 4th bout. I finished Dificid on 10/26 and so far…so good. This is the longest I've gone without a C.diff episode since April when I finished Clindaymycin. I'm fighting a cold now that I hope doesn't turn in to a sinus infection. I was given Clindamycin in April after my 4th sinus infection. There is no way I will take another antibiotic right now when my colon is finally functioning pretty normal. More and more physicians have stopped giving Flagyl for the first Cdiff episode. They are starting with Vancomycin and then going to Dificid earlier in the process. I realize that the cost of Dificid is prohibitive and my insurance didn't approve paying for mine until I had tried other drugs. I have a friend who was given Dificid after her second relapse and she has been free of C.diff for over two years. I, like a few of you here, will do the fecal transplant if I have another relapse. My fingers are crossed and I pray to God that Dificid worked. It's the one drug that ONLY kills the C.diff spores and leaves your good bacteria. Wishing you all a healthy 2019.

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@pines. I’ve been finished with my Dificid for 7 days now. I’m so praying that I’m going to make it this time. I have had 3 relapses. 2 from Flagyl & the last one from vancomycin. I went 10 days off the vancomycin & thought I was ok, then I relapsed I was so sick I was taken to the hospital in am ambulance bevause I was so weak I couldn’t stand of lift my arms. I felt better after the IV’s, but was still too weak to even go anywhere within help for over a month. They put me on Dificid then. I’m 7 days finished it & my stomach still doesn’t feel right. I’m praying that it’s just part of the healing process. I haven’t had diarrhea t all. I did have 3 normal stools at first & now it seems like I have to go & it takes forever. I do go but it’s not very much & it’s small. I hope that’s not a bad sign. If I relapse again I’ll have to have the FMT transplant. I’m nervous because I’m down to 85 pounds. I was tiny to begin with. I’ve lost 25 pou in 2 mknths of this awful thing. The drug companies should be ashamed for chatgimg people thus astronomical amount for Dificid. It was 4400.00. My insurance paid it all but 1300.00. That’s horrible. I had to have it though. We are on social security & had to dip into our savings to get it. I just pray I’m ok now. I go to my GI on Friday. I hope I don’t relapse before then.

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