C diff

Posted by bluebanana @bluebanana, Dec 19, 2018

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

I am praying for you. I am on a Vancomycin taper now after a 3rd relapse. You are not alone!

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@denisemarys

I am praying for you. I am on a Vancomycin taper now after a 3rd relapse. You are not alone!

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@denisemarys I also did the Vanco taper after my third relapse. Not sure how long you're doing it. I was five or six weeks total and also started taking Florastor as suggested by my GI. After finishing it, I was good for 3 weeks before my 4th relapse. I was then given Dificid for ten days. I finished that on Oct. 26th. I have not had a relapse since finishing the Dificid. It's really expensive and my insurance wouldn't cover it until I had tried others meds. I did Flagyl for 10 days, Vanco for 10 days, Vanco taper and then Deficid. I've never gone through anything like this in my life. And it all started with taking Clindamycin for a sinus infection. I've had three back surgeries and those recoveries were a piece of cake compared to C.diff. I'm happy I found this site where others can share and as you said, "you are not alone." I pray the Vanco taper works for you.

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@pines

@denisemarys I also did the Vanco taper after my third relapse. Not sure how long you're doing it. I was five or six weeks total and also started taking Florastor as suggested by my GI. After finishing it, I was good for 3 weeks before my 4th relapse. I was then given Dificid for ten days. I finished that on Oct. 26th. I have not had a relapse since finishing the Dificid. It's really expensive and my insurance wouldn't cover it until I had tried others meds. I did Flagyl for 10 days, Vanco for 10 days, Vanco taper and then Deficid. I've never gone through anything like this in my life. And it all started with taking Clindamycin for a sinus infection. I've had three back surgeries and those recoveries were a piece of cake compared to C.diff. I'm happy I found this site where others can share and as you said, "you are not alone." I pray the Vanco taper works for you.

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I agree!! Its nice to share with people who get it.. Its a horrible way to live and I wouldn't wish this C DIFF on my worst enemy…

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It is the worst. I too would not wish this on my worst enemy. I only hope it ends soon

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@ngarriso

I have been through this for 2 years. Praying for it to be over soon

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Good news from my doctor. No return of CDiff!!

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@ngarriso

Good news from my doctor. No return of CDiff!!

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Still having a colonoscopy but I am so happy to be CDiff clear

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From dificid treatment. Your better??

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@losthope

From dificid treatment. Your better??

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@losthope Yes, I finished the Dificid on October 26th after my 4th relapse. It has not returned. And I knock on wood every time I say that. I'm also taking the Florastor probiotic every day faithfully. My GI recommended that since it's not affected by the acid in our stomachs and goes to the colon where the C.diff spores seem to thrive. And the Dificid only kills the spores and not your good bacteria. How are you doing? @ngarriso , I'm so happy to hear that you are doing so well. Great news.

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I’m ok just scared Hopefully getting better but Vanco doesn’t seem to be the cure. I just don’t want a relapse

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@ngarriso

Good news from my doctor. No return of CDiff!!

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Congratulations!

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@guthealth

Congratulations!

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Thank you 🙏. I am so relieved

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@sakota

@bluebanana
I had c diff three times I had it, got over it, then got it again and then one more time. The first time I was put in the hospital as I was having breathing problems too so they were thinking pneumonia. So after the third round of being on antibiotics I finally got rid of it. A lot of washing my hands, washing bedding in bleach, wearing rubber gloves when using the bathroom and staying away from people while I was contagious. Have not had it since and I would say this was 3 or 4 years ago. They put me on two antibiotics each time. Everyone always has the bacterial c diff in their gut…… its one of the bad bacterial that balances things out. I just looked that up just to see if I was remember right. Good look to those that have it and take care of yourself……… washing hands, disinfecting so that you don't get the bug again…….. Chlorox is the only thing that kills it as it can be contagious on surfaces for a few days…. I just got the chlorox wipes and kept cleaning……

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The only thing that gets rid of C-diff spores is bleach and 99% of wipes, including Clorox, don’t contain bleach anymore. I had to order Clorox Healthcare Bleach Germicidal Wipes online. I’ve been told that Sam’s Club carries them, but haven’t looked.

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First was told I had sibo then tested positive for c-diff on 9 days of vancomycin and feel horrible has anyone else had a tough time with this med

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Hi @terridrag and welcome to Connect. I moved your message about c-difficille and combined it with this existing discussion to introduce to the many members who have discussed much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

You may also be interested in this discussion:
> Groups > Digestive Health group > Trying to recover from a c.diff infection
https://connect.mayoclinic.org/discussion/i-am-trying-to-recover-from-a-c-diff-infection-this-started-with/

I'm also tagging other members who have experience with vancomycin, such as @sandyabbey @pines @sandyrb and @denisemarys

Terri, you said you feel horrible. Can you tell us more about the side effects you are experiencing? How much longer are you to take vancomycin?

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@colleenyoung

Hi @terridrag and welcome to Connect. I moved your message about c-difficille and combined it with this existing discussion to introduce to the many members who have discussed much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

You may also be interested in this discussion:
> Groups > Digestive Health group > Trying to recover from a c.diff infection
https://connect.mayoclinic.org/discussion/i-am-trying-to-recover-from-a-c-diff-infection-this-started-with/

I'm also tagging other members who have experience with vancomycin, such as @sandyabbey @pines @sandyrb and @denisemarys

Terri, you said you feel horrible. Can you tell us more about the side effects you are experiencing? How much longer are you to take vancomycin?

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I’m so bloated and can’t really eat anything without pain/nausea I have 5 more days of the vancomycin I thought I would be feeling better not worse I’m very sensitive to any meds I also have Lyme and reactive Epstein Barr it’s been really rough

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