Burning sensations in random locations
Ever since my craniotomy in 2014 to remove a benign brain tumor, I’ve suffered from nerve problems like Occipital Neuralgia, Trigeminal Neuralgia, Geniculate Neuralgia, and Auriculotemporal Neuralgia (which my surgeon calls temporal intersection syndrome). My eyes hurt randomly when I move them. This mess hurts! Within the last two years, I’ve started getting nerve pain or spots of heat (not hot to the touch or even red to the eye, just burning sensations) in weird spots like the middle of my right butt cheek 😅, the tops of my feet, my thighs, and right above the arch of my right foot. The burning in my feet where the skin is thinner feels like an Indian burn we used to give each other as kids. A few minutes ago, I was standing when suddenly it felt like someone branded the side of my foot. I looked down to make sure I wasn’t standing on my foot or got stung by something. Nope, I was just wearing regular socks. Took my sock off and there you have it, red as plain as day. Oh, and now that burning is gone, so is the red. I have never had redness show in the areas where the burning sensations are; this is completely new.
Med history: I have a brain lesion on the periventricular area of my brain. I suffer migraines that are untreatable by medications and surgeries, constant dizziness, tingling in hands and feet, pins and needles, numbness that moves up my legs, random numbness in fingertips, night sweats, my left leg responds slower according to my doc, white blood cell count always high – practically all signs point to MS without an additional lesion or obands. Had I not had the craniotomy in 2014 to remove one, I’d be clinically diagnosed.
I see my neuro on Monday. What should I ask him to test for? I’m really tired of being told it’s conversion disorder or something similar. At this very moment, it feels like my body is attacking itself. My right leg is very tingly from the calf down to my toes. So tingly it hurts. Harsh pins and needles. I’ve got nerve pain shooting everywhere from my head to my toes. Left foot is now getting that painful tingle in my toes only. I wish I knew what this is. It is terrible.