How many of you suffer with this disorder as I do? Very severe PAIN ALL DAY LONG. Do you have it too?
Hello Nanette I am a sufferer of BMS and have been getting treatment at the Mayo, AZ. the doctors understands the syndrome, my pain has gone from extreme to moderate. There are many test to go through but this Dr. Yiannias is a miracle man. I have been trying several medicines, an nothing has cured it but it has taken the sting out of the mouth.
I'm back I've been diagnosed with BMS. A Pain Management clinic put me on hydromorphone, vicodin for my back, gamapentin 1200 mg a day for BMS and Baclofen for BMS,but dont know if Baclofen does anything, just read about it in an article. I chew sugarless gum Trident only all day and one piece in my mouth when I sleep. Must be sugarless Trident, it helps take the pain away. This answer is to ALL of you. I tried to get into Mayo Clinic in AZ., they REFUSED ME BECAUSE I WAS ON MEDICARE. MAYO CLINIC YOU SUCK. I found a specialist finally on the disease Dr. Joel Epstein. He seems very famous. Takes Medicare patients. He works out of Mt. Sinai Hospital, and flys to Chicago, Bellingham, Wa., by my house and Vancouver, Canada. In his article he lists all the medications and the correct doses to take to control or remove BMS. So, please look up his article and take it to your doctor and get on the medications. If you have a problem finding call me at 360-333-1771.PLEASE READ IT!!! IMPORTANT
I just came back from the Mayo Clinic. Gave me a mouth wash, said to stay away from all caffeine,chocolate,popcorn, raw vegetables. The mouthwash numbs your mouth. I thought they could give some kind of a shot in my mouth and all this pain would go away. I was wrong. The Dermatologist in Rochester said she has 300 patients all over the country with this. Nobody I know has ever even heard of it.
I feel for you.I am an 18yr. sufferer.I have been to three neurogilists,oral specialist.I have depression along with anxiety over this condition.I have tried many medications,the only one that gives me temporary comfort is clonazapam.I had accupuncture as well.I'm considering Mayo Clinic.I live in the Boston area where we have the best Dr's ,unfortunatly no one has been able to help me.I have thought about ending my life,but i don't want to do that to my family whom i love deeply..i would love to hear from you.
I too just woke up with this condition. I took all the tests…cat scan, blood work…and tried all the homeo remedies. Then my neurologist prescribed Lyrica and I have been (almost) pain free since the second day. It is expensive. About $1 per day. But you can order from SL tablets from Canada and split them. I just thank God I found the cure because I was ready to commit suicide if the condition turned out to be permanent. Hope this helps.