Burning Mouth Syndrome (BMS): Anyone found any relief?

Posted by ristu @ristu, Feb 22, 2019

I have BMS 3 years now. Has anyone had pain, and inflammation relief from GABA capsules, or liquid ? Vitiman B12 ?

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??? Does Mayo Clinic answer?

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@alwhite

My BMS is terrible, had for 4 yrs it’s draining the life out of me , controlling my mind included, depression is rapid also ! Can’t seem
To get relief for pain or discomfort, also mucus in mouth constant like brain fluid leaking down through the sinuses, they are also involved in This misery, I’ve seen 7 kaiser Drs & 4 Denist all I’ve gotten is a diagnosis ! Trued gabapentin I can take is ther any help someware I’m at a desperate point with this !
Al w

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Hi @alwhite and welcome to Mayo Clinic Connect, an online network of patients. You'll notice that I moved your messages to this existing discussion about burning mouth syndrome. I did this so that you can connect with others like, @ristu @destinnana @htinlizzy @htinlizzy @meadowhouse @rgpadilla and @mamajomclane.

You may also be interested in these related discussions in the Skin Health group.
– Burning Mouth syndrome – Bloodwork Normal https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-5/
– Burning Mouth Syndrome. I have it very severe. https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-very-severe/

Al, do you know if you have primary burning mouth syndrome or secondary BMS related to other underlying conditions? What are you symptoms like?

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New to the group, have been diagnosed with primary BMS and have had for about 9months. Have been using Clonazapam oral rinse swish and spit for 3 months. It helps but still have days that are bad. Noticed people talking about vit B12. Are there studies to support its use.

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@pim9, I have burning mouth syndrome and I take 2-3 tablets of Clonazepam .5 mg. This was initially prescribed by the head of oral pathology at our local dental school. He said it was all he knew that would help. My PCP now prescribes this for me. It really does help. At first, it made me sleepy in the morning, but no longer does. I usually get by on 2 per day. I take one at lunch and one with dinner. This really has worked for me. I hope it will work for you. Best wishes, @joybringer1

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After 6 yrs I told my doctor at Mayo- Dr. C Loftus about my mouth and tongue. ( I thought I was imagining it , since occurred after ostomies) . But he wants to do blood work and said they have a burning mouth clinic at Mayo. I also have had growth of bone out in my gum line and dentist “ poo. Poos” it .And cannot drink out of any plastic without exacerbating burning mouth.

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I have had BMS (starting as OLP) for many years. Seen top oral pathologists in NYC and Boston (including one who treats BMS). What I
learned is that there is no reasonable treatment for these problems, much less a cure. It seems to be a life sentence.

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@jshdma

I have had BMS (starting as OLP) for many years. Seen top oral pathologists in NYC and Boston (including one who treats BMS). What I
learned is that there is no reasonable treatment for these problems, much less a cure. It seems to be a life sentence.

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What causes it?

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@engelee

What causes it?

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@engelee Cause of BMS / OLP is unknown. They also say there are many different causes. In India, supposedly, BMS is very common because of spicy foods. Again, medicine does not really seem to know what do say or do about this. For example, why is it much more common in women, also, in older women?

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My mouth was irritated or burning for 6 months, no doctor could figure out what I had, but I figured it out. How can I contribute, add information to the Burning Mouth Syndrome page?

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@markblade

My mouth was irritated or burning for 6 months, no doctor could figure out what I had, but I figured it out. How can I contribute, add information to the Burning Mouth Syndrome page?

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Please tell us what helped you. I have the same problem. My mouth burns, my tongue feels weird, and my palate feels numb.

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@markblade

My mouth was irritated or burning for 6 months, no doctor could figure out what I had, but I figured it out. How can I contribute, add information to the Burning Mouth Syndrome page?

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Hi Mark, I moved your message to this existing discussion about Burning Mouth Syndrome. I did this so you can connect with members like @engelee @joybringer1 @plm9 @alwhite @ristu @destinnana @htinlizzy @htinlizzy @meadowhouse @rgpadilla and @mamajomclane.

You may also be interested in these related discussions in the Skin Health group.
– Burning Mouth syndrome – Bloodwork Normal https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-5/
– Burning Mouth Syndrome. I have it very severe. https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-very-severe/

Have your doctors confirmed your suspected diagnosis of burning mouth syndrome? What helps you find relief?

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Does anyone have the same burning type pain in their throat thats been diagnosed with Burning Mouth syndrome?

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