Brain fog or migraine

Sensitivity to light and sound are normal with fibromyalgia, we have sensory issues much like autism . With brain fog and often cannot find words or say what I need to say , difficult to put words in a sentence. Difficulty remembering what a bird is called (sounds funny but true ) that thing that flys . I don't who the heck came up with the name "fibromyalgia" but the are WAY OFF on that one . Mialgia means pain .. what about the blurred vision, hearing comes and goes. Often times sounds like people are talking jiberish or marbles in their mouth. And so many more symptoms. This is all do insane and frustrating. Currently about to lose my mind with the lovely post nasal drip and chest congestion for months now it's not allergies, allergie medicine won't work and neither does a decongestant or Mucinex... thanks for listening to me vent. Been dealing with this 30 long years 🙃

One of the main things I started with was migraines (sensitivity to light, unmanageable pain, so intense it was difficult to think) would get the “auras” too sometimes which really scared me but got used to them. Migraines were disabling. Was given migraine medicine and told “try not to take it”. But it works. Was offered Botox but prefer to try the migraine medicine first. Then suddenly they were gone. Get them now maybe twice a year. The other day I didn’t get migraine but just the “auras”. Read up on it and it’s possible even to have a migraine without pain. Besides the pain fatigue, etc, I too have blurry vision, memory/cognitive problems so bad that I decided to get off the Cymbalta and Gabapentin I had been taking for over 15 years. Not knowing I never should have taken them that long. I’m very frustrated with the way my brain is working (or not working) now. Im also hurting myself (burns when cooking, cutting myself when using kitchen knives, hitting head on cabinet that has always been there) AND LATELY dropping things. I can’t tell you how many dishes I have dropped and broken in the last 2 weeks. I’m taking LDN and was doing better, however I’ve been having constant stress lately and I’m dealing with a bad fibromyalgia flare up accompanied by an ear infection, headaches (on side of the infected ear) and kidney stone. The fun never stops. I’m pretty sure brought on by stressful situation. Also keep in mind that some medications can cause headaches. I tend to zoom out watching TV or sleeping by taking something natural, sleep tea, magnesium glycinate, or sleep aides which I only use when I’m so exhausted from not sleeping well. (These meds also could cause memory/dementia symptoms). So may not be very healthy but I’d rather be by myself when having worse symptoms BUT the fact is distraction ( by making yourself socialize, go shopping, etc may really help. I know it’s difficult especially when you’re fatigued. Just remember, we can and will also have good days. Peace and love.

Thanks. I appreciate the advice and sharing of your situation. I was so upset. I couldn't come back to look at replies until now. God bless everyone who supports others here.

Sounds like an atypical migraine, which I have. It was misdiagnosed for 20 years as sinusitis. I would see a neurologist at a research hospital if you can. Part of my problem was traditional practices missed all my fibro symptoms. Had to get to Mayo to be correctly diagnosed and treated. Migraines and fibro are triggered by the same part of the brain, so it all goes hand in hand. Good luck!

So I found pushing through tends to make it worse like a snow ball. We just pay for it more on the weekends or evenings recovering.

I’m working full time right now and currently on FMLA and looking at going on disability.

I too have both migraines with sensitivity to light, and Fibromyalgia, IBS, and more… It is a rough up hill battle, I’m the bread winner of my family, I love my job my teams, but I hate the weekly recovery cycle I’m in. No time for family no time for fun. Lately I can’t even do much of my job.

So after many many months of this instead of a traditional retirement, I will have to sink into more of a lesser tail behind my legs type retirement…

Anyways that’s how I feel right now about it all. It’s pretty rough. Financially I’ll be okay. I mean I could be better but I have some nest eggs in place that will bless my family through all of this, so we will be blessed if we live within our means.

@jeannesf1

I have been dropping things and/or knocking things over for more than 2 years now. No doctor can tell me why. I'm going to be rude for a second... Doctors easily have a $300,000+ education, and the best they can do is say "I don't know" They paid all that money for an education that clearly wasn't enough. I'd go back to where I went to Med School and ask for a refund. The answer should be "I don't know, but I am going to send you to another Doctor who is better equipped to figure out what is going on than I am." But in my case it didn't work. I saw 2 Neurologists who both said "We can't find anything functionally wrong to explain everything you are going through."