Brain Fog
TIA. I've been dealing with persistent brain fog and occasional episodes of feeling almost lightheaded/near-blackout for a little over two years, and I'm trying to figure out what else I should discuss with my doctor.
The symptoms are difficult to describe. Most of the time it's a mild, persistent “fog” where I don't feel quite as mentally clear or focused as I normally would. At other times, particularly when I'm in a social situation and start feeling mentally overwhelmed, it can become much stronger. I don't actually lose consciousness, and it's not spinning/vertigo. It's more like my brain gets extremely foggy and I feel almost like I'm getting close to blacking out. Sometimes I'll need to step away or go somewhere quiet for a few minutes until I can focus again.
It seems to happen more often in social situations, although it isn't exclusively related to them. I don't always consciously feel anxious when it happens, although I have had a significant amount of family stress over the last several years. My doctor thinks anxiety may be contributing or the only factor.
I've had fairly extensive blood work, which my doctor said looked normal. This included a CBC, metabolic/chemistry panel, glucose and A1C, thyroid (TSH), iron/TIBC/iron saturation, vitamin B12, vitamin D, testosterone and several other hormone levels. My A1C was 5.2 and my recent glucose was 97. Nothing significant was identified as an explanation for the symptoms. Testosterone levels were a little low on a previous blood work but looks good now
I also tried an elimination diet for about a month without noticing a meaningful difference. I've been exercising regularly for roughly the last 4–5 months, usually around three days per week, and have lost some weight, but the brain fog hasn't noticeably improved.
A few things happened around roughly the time this originally started that may or may not be related at all, but I thought they were worth mentioning:
I moved into a house (2.5 years ago about the time this brain fog started) where mold was found in the crawl space. The landlord said it was cleaned/remediated, although I don't know how thorough it actually was. I eventually moved out about 8–9 months ago.
Around the same general period I developed gastritis/ulcers.
I was prescribed dicyclomine for the GI problems. I believe some of my worst episodes occurred at least at the start during the first week I was taking it. I remember being out getting coffee with friends and becoming extremely foggy/near-blackout and needing to step away somewhere quiet to try to get my head clear. I contacted my doctor and was taken off the medication. The symptoms continued intermittently after stopping it so not sure if this had anything to do with it or not?
Like I said this is about the time I moved into a new house and had a lot of moving stress.
I've wondered about POTS or another blood-pressure/heart-rate issue. I checked my heart rate myself using a fingertip pulse oximeter while lying down and then standing. I believe it increased only around 10-15 beats per minute and then came back down fairly quickly. I occasionally experience skipped heartbeats, sometimes more frequently, but they don't seem to occur at the same time as the brain-fog episodes.
No sure if it could be parasites or sleep may be a factor? I generally try to get 7.5–8.5 hours, although some nights are less than 7. I don't know whether I snore or have episodes of sleeping trouble.
My main question is: What other causes or evaluations would be reasonable to discuss with my doctor before assuming this is entirely anxiety-related or are there any?
I'm open to anxiety being part or all of the explanation, especially because social situations seem to make it worse, but I'd like to make sure I'm not overlooking something else as I would love to not be on anything for anxiety but still want to feel well. If you guys have any thoughts on this and what to ask the family DR? I probably forgot something. But thank you all
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You should have further testing for orthostatic hypotension.
Low BP while standing could cause your symptoms. Evaluation by a cardiologist
and neurologist are worth pursuing. Are you equipped to take your blood
pressure at home? A battery powered monitor allows you to record pulse and
BP difference from seated to standing for big swings.
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3 ReactionsYou are going through what I call a “mind-body merry go round”.
Stress, anxiety, and worry are a common formula for what you are describing.
I am right there with you.
Physical tests are normal, X-ray, MRI, CT scans are unremarkable.
My doctors are frustrated, and I am frustrated with them.
Anxiety is one of the causes of a disorder I have been diagnosed with. The symptoms are very similar to those you mentioned, brain fog, social anxiety, tremors, occasional headaches, speech problems, vision problems, and walking issues.
It’s called, Functional Neurological Disorder FND.
It’s not a disease. It is basically a disconnect between the brain and nervous system. A neurologist diagnosed me.
If you read, or watch videos about it it might help you understand if you’re experiencing FND. The treatments that are recommended consists of both physical and behavioral therapy.
Please keep in touch.
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4 ReactionsThanks for the detailed post. A few things to ask your doctor about: a sleep study (in case of sleep apnea), a heart monitor for the skipped beats, and a home BP log for lying vs. standing. A symptom diary can also help show patterns.
I had the same symptoms which began about two years ago following an infection. While the source of infection was never found, the brain fog persisted such that my entire life needed shifting to accommodate memory loss, inability to plan, multitask- even perceptions of interactions with others seemed upside down. Finally the dr ordered an MRI, and neuropsychological testing which revealed cognitive shifts such that I’m relearning how to sustainably live. Recently, the memory issues have caused a major deterrent for traveling alone, as I’ve repeatedly lost pertinent identification, sense of direction and hitting that wall of confusion. Sensory overload causes a ton of confusion, shifting me in a low interactive gear. I went from being a leader to recluse, until the isolation caused such a tremendous sense of anxiety that I spoke with my dr about it-hence the latest testing, direction for care. The MRI was normal. The cognitive testing illustrated the issues. Presumably this was an acquired brain injury from the infection, which spurred Giant cell vasculitis outbreak. Low flow to the temporal lobe. Kind of like having a concussion. This has been a surprising journey on cognition for me, one requiring medical staff, therapists and mostly an adjustment to personal expectations. Still journeying, but there’s some relief knowing the cause of the fog with strategies for avoiding that confusion wall. Talk to your dr, describe it in detail. Perhaps the cognitive function tests could help you? Wishing you the best!
So sorry of your condition and suffering. I've had brain fog most of the past year
until recently. Mine was heart related .. lack of oxygen to brain plus TIA's (mini strokes)
Sleep study and stress test found heart issues.
Pacemaker then ablation/watchman. Am slowly improving. Seems each procedure
sets one up for another round of problems. Best Wishes on your journey.