Boy with Left Ventricular Trabeculations

Posted by kathyma @kathyma, Jul 22, 2021

Hi !

Today I just took my son, 7 years old to a pediatric cardiologist due to their hearing loss diagnosis. Genetics doctor was afraid their hearing loss could be linked to something more serious like the heart or kidneys, so that’s why we were sent to the cardiologist.

Turns out … he has trabeculations on his left ventricle viewed through an echo. He had an EKG done at first, and those results were fine. Everything else looked normal with the exceptions of the trabeculations on the left ventricle. She said it was not severe enough to confirm diagnosis for LV non-compaction, but there is enough where it’s abnormal, and raises concerns.

She says according to the ekg and echo, he has excellent cardiac function right now, and will need to be monitored in 6 months and every year after if the 6 month follow up is normal. She says we will have to do follow ups until we can confirm diagnosis through MRI, which she doesn’t recommend doing right now because he’s so young

My child has no other signs or symptoms of heart problems before this. And I honestly don’t know what to think.

Any advise or recommendations would be appreciated.

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Hello @kathyma, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I know it must be difficult and a little scary to learn your son has an underlying condition and there are so many unknowns. I think it is a really good thing that it was diagnosed early. You will notice that I added a little more information to your discussion title so that others with some experience can find it and share what they have learned with you. While we wait for others to share experiences or information, you might find the following information helpful.

— What is Left Ventricular Non-Compaction Cardiomyopathy (LVNC)?: https://www.cincinnatichildrens.org/service/c/cardiomyopathy/types/left-ventricular-non-compaction-cardiomyopathy
— Left Ventricular Trabeculations in Athletes: https://www.acc.org/latest-in-cardiology/articles/2015/03/26/07/47/left-ventricular-trabeculations-in-athletes
— Left Ventricular Non-Compaction (LVNC) in Children: https://upbeat.org/pediatrics/left-ventricular-non-compaction-lvnc-in-children

Did the cardiologist share any advice or suggestions as what symptoms to look for with your son?

REPLY
@johnbishop

Hello @kathyma, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I know it must be difficult and a little scary to learn your son has an underlying condition and there are so many unknowns. I think it is a really good thing that it was diagnosed early. You will notice that I added a little more information to your discussion title so that others with some experience can find it and share what they have learned with you. While we wait for others to share experiences or information, you might find the following information helpful.

— What is Left Ventricular Non-Compaction Cardiomyopathy (LVNC)?: https://www.cincinnatichildrens.org/service/c/cardiomyopathy/types/left-ventricular-non-compaction-cardiomyopathy
— Left Ventricular Trabeculations in Athletes: https://www.acc.org/latest-in-cardiology/articles/2015/03/26/07/47/left-ventricular-trabeculations-in-athletes
— Left Ventricular Non-Compaction (LVNC) in Children: https://upbeat.org/pediatrics/left-ventricular-non-compaction-lvnc-in-children

Did the cardiologist share any advice or suggestions as what symptoms to look for with your son?

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Thank you !

Yes, she said if he experience shortness of breath, feels fatigued, and faints then to contact her right away.

Otherwise, just annual check up and follow ups.

REPLY
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