Mayo Clinic Connect
AT 85 AM WONDERING IF I CAN
TAKE THE PAIN! I HAVE BEEN ON
CHRONIC PAIN MEDICINES FOR
5 TO 10 YEARS> I AM A WIMP AND
WISH I HAVE THE GUTS TO CANCEL BLADDER REMOVAL!
Liked by swingandamiss
I had five tumors removed that were cancerous. How long before I am back to normal, if ever.
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How and what does he use to numb the area. Does he do this procedure in hisoffice? What I am worried about is the urethra blocking up completely.Didyours get any worse or has it stayed the same. Thanks for any information.
@rhafe, I don’t know what his nurse uses to numb my urethra, but I’ll try to get an answer for that. The cystoscopy is done in my HMO’s urology clinic a few doors down from his office. The nurse injects a liquid anaesthetic into the urethra’s opening in my penis and allows me to whistle with Musac for 15 minutes before she calls my urologist in for the procedure. The original procedures were a TURP (trans-urethral removal of prostate tissue) done in surgery at a major hospital and a few weeks later (in 2010) a TURB (transurethral removal of bladder tissue) done in an ambulatory surgery facility. Gratefully, no significant damage to the lining of my urethra has appeared, although some scarring is apparent in my occasional shower-head urinating. I have had special consults about 5 times since then with my urologist over occasional blood in my urine — always bright red, so it is arterial blood but not much — and he has been mindful of that when he conducts a cystoscopy, slowly checking the urethral path visually on the way into my bladder. We’re in agreement that the blood is from arteries in the prostate that were exposed to the tissue surface by the TURP, which removed about a golf-ball sized piece of prostate from inside my bladder.
I’d encourage you to maintain regular contact with your urologist, have regular cystoscopies to focus on your scars, and give him/her detailed descriptions of your symptoms every time you speak or go in for a cystoscope.
Liked by Colleen Young, Connect Director
I DID MY NAME IS CHUCK WEEKS, ON BLADDER CANCER, I CANNOT FINE IT ?
Liked by cweeks18
Hi Chuck, welcome to Connect.
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HI COLLEEN I DONT REALLY KNOW . I AM 87 YEARS OLD. A RETIRED USNAVY. ALWAYS STOOD ON MY OWN TWO FEET.
FEEL GOOD MOST OF THE TIME. HAD TWO HEART ATTACKS, AND HAVE DIABETES. BUT THIS BLADDER CANCER, UNKNOWN TO ME. THE DR. REMOVED TWO TUMORS FROM MY BLADDER TWO YEARS AGO, AND WE ARE JUST GOING TO WATCH. SO DO I JUST WAIT AND SOME DAY SAY YUP HE IS RIGHT I HAD CANCER ? VERY RESPECTBLE, CHUCK.
Chuck, when you tumors were removed, they would have examined them in the lab to determine if they were cancerous and to plan any treatment followup you may need. Did you talk about this with your surgeon after the tumors were removed?
Liked by Teresa, Volunteer Mentor
Chuck, Colleen Young has pointed out the first question that you need to have answered. Let me add some thoughts from my own experience over the last six years.
My urologist discovered a single tumor in my bladder when he operated to remove some prostate tissue that was intruding in the bladder. It was a low-grade malignancy, and fortunately it was a superficial growth on the epithelial lining of the bladder; it had not invaded deeper layers of tissue. He then recommended that we proceed with the standard treatment in such a case — regular cystoscope examinations of the bladder lining to ensure prompt discovery of any additional tumors. Within six months, 11 more tumors had popped into view — all apparently of the same superficial type — and he removed them in a walk-in surgery procedure in 2010. the laboratory said they too were malignant at a low grade. That was followed by weekly infusions of a biological agent that was proven to prevent further tumors of this kind from developing.
In over five years since then, I have undergone 8 cystoscopy examinations of my bladder, just to make sure that no new tumors were breaking out in my bladder. Not a one, and my cystoscope exams are now scheduled for once a year — indefinitely — at no signicant inconvenience for me..
Costs of all of this were covered by Medicare and supplemental insurance. I haven’t spent a dime.
As for your situation, I hope you can arrange an examination — perhaps including a cystoscopy — with a urologist. If your original specialist is not available, that may be an advantage, because a second opinion could give you more confidence. If the urologist suggests a biopsy, you should have a detailed discussion about it and get a full justification for the procedure. That will include records of any tissue examinations of cells removed in the biopsy and — if it were me — another second opinion on any diagnosis and the longer term prospects for survival and recovery.
Keep us posted so we can be ready to assist you when you need it.
@cweeks18 Hi Chuck, Colleen makes a good point. It is important to understand the type of tumors that you have. If you contact your surgeon he will be able to provide you with a copy of the pathology report. Once you have that report, you can ask questions and get more information. Best wishes.
HI THERE ,THANK YOU ALL VERY MUCH, I GOT A COPY, HERE IS THE DIAGNOSIS : BBLADDER TUMOR , TRANSURETHRAL RESECTION:
PAPILLARY UROTELIAL CARCINOMA, LOW GRADE. INVASIONOF THE SUPERFICIAL LARNINA PROPRIA IS IDENTIFIED. MUSCULARIS PROPRIA (
DETRUSOR MUSCLE) IS PRESENT. HONEST I HAVE NO IDEA WHAT THIS MEANS .I WAS A US NAVY GUNNER AND FOR ME TO TYPE IS A BIG
JOB THE KEYS SEEM TO CHANGE PLACES. VERY REPECTFULY, CHUCK.
Thanks for the added information, Chuck. Up to a point, your diagnosis is very similar to mine — papillary urotelial carcinoma, low grade, and invasion of only the superficial lining tissue of the bladder. What is unclear to me is what is meant by “muscularis propria (detrusor muscle) is present.” It may be that INVASION of the muscle is displayed on the imaging, in which case immediate and continuing treatment might have been called for over the past two years. This is a highly important question that needs to be answered, along with a full explanation from the urologist of the decision to “wait and see” what happens, as well as all decisions about diagnoses, follow-up exams, and treatments that might have been appropriate over the past two years.
In my case, I was given the six-week “wash” with a biological agent known as BCG (named for a bacterium and a couple of French doctors). The treatment was expected to neutralize (synonym for “kill”) any remaining cancer seed cells in the bladder lining, and now — six years later — I can say I think the treatment was completely effective, based on a series of 8 scheduled scans of the inside of my bladder (by cystoscope). I was advised at the outset, however, that the BCG might not be effective on any malignant tissue that had bored through the lining into the muscular wall of the bladder. Others in this conversation have faced that assessment by their medical team. At least one, has had surgery to remove metastasized cancer in the bladder and nearby organs.
It’s great that you’re almost always feeling well! That may mean that your past bladder cancer has not recurred. Wouldn’t it be great to confirm that is true?
HI MR. PREDICTABLE, I FEEL GOOD, WHEN I SAID WATCH (navy ) ,I should have said cystoscope , I did not know how to spell it. I had 3 scans,next
one due in april. 17 . I really thank you and my Doctor as I learn about this bladder cancer VERY RESPECTFUL, CHUCK.
HI MR. PREDICTABLE, CAN CANCER MOVE TO OTHER PLACES EVEN IF NNO NEW TOMORS ARE SEEN ? HOPE YOU ARE OK
AND HAD A GOOD CHRISTMAS, VERY RESPYFUL, CHUCK .
Hi, Chuck. Happy New Year. Hope you had a good month and holidays and are looking forward to the future. Cancer can and does metastasize (spread or reseed) to other locations in the body, but I think that’s unusual in the case of bladder cancer. As you know, bladder cancer can get more serious by growing down into the lining and muscle of the bladder wall and eventually through the wall, where it can spread further into other tissues. At that point, metastasis could occur, but by that time, symptoms of spreading cancer should be recognized and sending a patient to the doctor for new tests.
In my case, I think, my regular cystoscope exams have shown no such intensification or spread, and I have had no symptoms. If you sense something is amiss, your medical team will give you a once-over to check it out. They also can tell you whether you should consider one of the technologically new procedures (like a special Petscan) that can look for new malignancies elsewhere. Why are you concerned about that right now?
HI MR. PREDICTABLE, THANK YOU IN MY LAST URINE TEST, THEY FINE BLOOD, AND PUT ME ON ANTI-BYEATIC. WISH I COULD SPELL BETTER. VERY REPT. CHUCK.
Hi, Chuck. In my case, faint blood shows up in my urine about once every six or eight weeks, mainly as a result of removal several years ago of swelling prostate tissue, leaving capillaries close to the surface where they occasionally leak blood into my urine. I am given an antibiotic only just before a cystoscope is introduced into my bladder (in case the equipment isn’t completely sterile). As I mentioned before, my bladder tumors were superficial and low-grade malignancy. Are you still taking the antibiotic? Do you know what it is and why it was prescribed? Was the antibiotic prescribed in response to finding blood or were there other symptoms — like urinary tract infection (UTI)? Are you feeling better and sleeping well, getting some exercise? You deserve a long talk with your medical team, perhaps taking a friend with you as a witness to what you are told and to help you remember the points discussed.
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