Besides face to face support meetings and an on line group, we also have a program we call Meet Me at Mayo.
We let others with amyloidosis know when newbies or those arriving for follow ups etc will be in town so they can get together for coffee or a meal or just to talk. We want no one to feel alone. Mayo does a great job of this, but there is nothing like talking to others walking your walk. Some don’t want company and we do appreciate and respect that.
Amyloidosis Support Groups Inc. http://www.amyloidosissupport.org
Toll Free Hot/Help 866-404-7539
http://www.amyloidosisonline.com – over 1425
http://www.familialonline.com – over 175
Member NORD http://www.rarediseases.org
Ask your doctors to stop by and see us at ASH, Booth 3000, December 7-9, 2013.
“Recycle yourself, be an organ donor!”