@maggiek
I agree about going to the neurologist probably not the smartest move on my part. All of the rheumatologists I’ve gone to have passed on or retired so tomorrow morning I’ll have to start that search. Even if it was a seizure it was just an aura (Focal Aware seizure) no biggie.
Jake

@maggiek

I certainly have made an independent way of life for myselkf! I lived in a rural area in Pennsylvania. I needed my independence and I lived too close to my mother to get any. Twenty two years ago I moved to the city of Baltimore all on my own for the sake of independence and other factors. Now I have a new life and I can utilize my independence in many ways. MY WAY

Hi Jake, just read your text. This really worries me… Hope you are feeling better & I hope you went to see the doctor. May not be epilepsy related. Thinking about you will lift you up..

Hi, Jake,
I am so sorry that all this happened. Epilepsy is a drag. Thinking of you with positive thoughts.
Pam Stewart

@caseybach
Thank you
I’m getting a bit worried about it too. I fell down at least 11 times today and haven’t been up very much at all I don’t mind the falling down but the only tragedy was I broke two candy dishes. People familiar with me know that’s the worst disaster that could ever happen although I was able to rescue the candy, what a relief, so it wasn’t a total loss. One day I fell outside and a neighbor came over and help me back in the house but today nobody saw me and I didn’t I couldn’t get up so I crawled in on my hands and knees. There is a type of epilepsy associated with Epilepsy, also dizziness can be a precursor of a seizure but I don’t think that’s happening but who knows. It doesn’t seem reasonable to me since it goes on for days that it’s some type of seizure activity unless it’s Nonconvulsive Status Epilepticus which I never had. I’ve only had convulsive status.
Oh well maybe I’ll just let the doctors guess what what it might be. My kidney doc wants a ct Thursday. With all these test everybody’s been ordering I feel like I have Munchhausen syndrome, lol.
Jake

@pamelastewart5
Thank you for your positive thoughts. I don’t really care what it might be I just don’t want it to be a reoccurrence of epilepsy. Like you say it is indeed a drag!!!
Jake

I was just wondering if it could have been another episode of Episodic ataxia which I had once before but then I was only able to walk around in a circle always going to the left. Had no balance problem then. Not much protein I suppose in guessing what it could be although doctors often don’t know for sure either so you never know when they know or when they’re guessing. I suppose the important thing is that it happened and now it’s better.
Jake

Jake.

This occurrence has been very upsetting to you. You are letting it bother you too much! You must think more positive and calm down.
We must realize things happen in lfe, they happen. You have no control over what has occurred. Things will eventually change for the better. We must have patience.
See a rheumatologist to rule things out.

Take care,
Laurie

@isittll
I’m not obsessed about it I’m just concerned about what caused it. I believe that’s reasonable. A rheumatologist isn’t going to be able to answer all my questions but he may be able to rule out one or two. Even if I knew exactly what it was I may not be able to do anything about it the future but even so I’d like to know. Who knows perhaps it was something that could be treated. Maybe it was something that could’ve been prevented. Fortunately I’m not the kind of person who believes every word that comes out of a medical person’s mouth, if I were I’d have been dead long before now. Just the fact that someone is a doctor doesn’t make them right and I have proven that numerous times in and out of court. You’re right sometimes things do change but not always for the better and I want to know why. I’m much better today. I haven’t fallen and my balance is much better, I still sway some when I walk but that’s my normal. I’m a very big believer that a person has to deal with whatever bumps come along in the road of life. If something happens it happens you have to deal with it but I don’t believe in ignoring things in the hope things will always get better.
Thanks for writing take care,
Jake

You’re A Peach Mxy! I’m so very happy I found my way here.

Sorry to hear that! Keep us posted!

Hi, Jake, You may have already considered this, but could the dizziness be a side effect from your medication? My son had dizziness as a side effect of some of his early meds.
Pam