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Autoimmune Disease

Posted by @lady1994 in About Kids & Teens, Dec 31, 2011

My daughter was diagnosed with autoimmune hepatitis when she was 2 years old. She has been taking immunosuppressant drugs for over 4 years now and has had 2 flare ups since her diagnosis.
She has recently developed some strange looking lesions about pea sized on her nose and forehead that scab over.
I had been keeping her on a gluten-free diet until the past 4 months. The doctor always told me that I was silly to restrict her diet as gluten has nothing to do with her disease.
Any experience out there with any of this?


Posted by @paja, Jan 5, 2012

Hi there, so sorry about your daughter. I have several autoimmune. I have whats called Mixed Connective Tissue Disease which is (Systemic Lupus, Polymyositis and Scleroderma) also have discoid lupus which is lesions on the skin (face, scalp, chest, arms) on top of that Sjogrens and Thyroid. I am told by some that diet helps and by my dr.s that diet has nothing to do with it, that it has not been proven. I myself have tried juicing, changed diet, the drugs and now I just deal with it. My entire digestive system is screwed as well so I can't eat healthy anyway.

Anyway, hope that helped some. I have found that you just really have to do what works for you in that way. You will several things from everyone.

Take care

RamonaB likes this

Posted by @chinooka, Jun 28, 2015

I have rashes of lesions on my face, that emit a dry gravelly substance. it gets in my eyelids and is so bad I cant see and it feels like sand in my eyes


Posted by @vmbreier, Jan 8, 2012

I have autoimmune hepatitis and then developed diabetes because of the prednisone. I see a nutritionist who has me on a carb restricted gluten free diet, because she said there is a connection between diet and autoimmune and that people with autoimmune diseases even if they don't have celiac tend to be gluten sensitive. I can tell you that I have followed this diet for 6 months and when I do eat gluten, I feel more bloated, tired,etc. I definitely feel better without the gluten.

I am so sorry about your daughter. I have three kids and have had to deal with different issues with them as well. My suggestion always is that as mothers we have good instincts. If she seems better on gluten free then you should keep her on that diet.

I find most doctors are very focused on just pumping meds into to people and are not as focused on other aspects. My suggestion is to find a pediatric nutritionist and also a pediatric hepatologist - not sure who is treating your daughter.

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