Share this:
Wally
@wallyk

Posts: 10
Joined: Jun 24, 2017

Atypical Fibroxanthoma

Posted by @wallyk, Nov 22, 2017

I had surgery for lung cancer in July and now have been diagnosed with Atypical Fibroxanthoma. I’m wondering if others with lung cancer have also had this. Also, I’d like to hear from/about anyone who has had those even if they haven’t had lung cancer. Thanks

REPLY

Hi Wally,
I’m sorry to hear that you’ve been recently diagnosed with Atypical Fibroxanthoma (AFx) in addition to lung cancer. Here is a short video of Mayo Clinic dermatologic surgeon, Dr. Jerry Brewer discussing AFx. He tells us about the risk factors, diagnosis and treatment of this rare form of skin cancer.

Wally, will you have surgery to remove the skin cancer lesion?

@colleenyoung

Hi Wally,
I’m sorry to hear that you’ve been recently diagnosed with Atypical Fibroxanthoma (AFx) in addition to lung cancer. Here is a short video of Mayo Clinic dermatologic surgeon, Dr. Jerry Brewer discussing AFx. He tells us about the risk factors, diagnosis and treatment of this rare form of skin cancer.

Wally, will you have surgery to remove the skin cancer lesion?

Jump to this post

Colleen, Thanks for your reply. I am having my AFX surgery next week. And, of course, I hope I won’t need additional treatment. I’ll keep you posted.

@colleenyoung

Hi Wally,
I’m sorry to hear that you’ve been recently diagnosed with Atypical Fibroxanthoma (AFx) in addition to lung cancer. Here is a short video of Mayo Clinic dermatologic surgeon, Dr. Jerry Brewer discussing AFx. He tells us about the risk factors, diagnosis and treatment of this rare form of skin cancer.

Wally, will you have surgery to remove the skin cancer lesion?

Jump to this post

All the best with surgery this week, Wally. Please let us know how it goes.

Thanks so much! It ended up that I had my surgery on Friday. The tumor has(d) a lot of spindly legs coming off of it so that MOHS would not work. I now have a 2+” incision (closed) on my right forearm and am waiting for the pathology report. As we all know, the waiting is the worst. The pain from surgery subsides but the agony of not-know doesn’t until one knows. Again, that you for your caring and thoughtfulness.

@wallyk

Thanks so much! It ended up that I had my surgery on Friday. The tumor has(d) a lot of spindly legs coming off of it so that MOHS would not work. I now have a 2+” incision (closed) on my right forearm and am waiting for the pathology report. As we all know, the waiting is the worst. The pain from surgery subsides but the agony of not-know doesn’t until one knows. Again, that you for your caring and thoughtfulness.

Jump to this post

Any news to share, Wally? How are you?

@wallyk

Thanks so much! It ended up that I had my surgery on Friday. The tumor has(d) a lot of spindly legs coming off of it so that MOHS would not work. I now have a 2+” incision (closed) on my right forearm and am waiting for the pathology report. As we all know, the waiting is the worst. The pain from surgery subsides but the agony of not-know doesn’t until one knows. Again, that you for your caring and thoughtfulness.

Jump to this post

Thanks so much Colleen. You are such a good director. And, yes, the pathology report came back with clean margins and no additional treatment recommended. My surgeon’s Fellow explained why it took so long to get the report back. It seems AFX is mostly a cancer of exclusions. If it isn’t Melanoma, Sarcoma etc. and it has a stain that says it could be AFX, then it is AFX.

Please login or register to post a reply.