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#AsktheMayoMom about Hypoplastic Left Heart Syndrome (HLHS)

Posted by @Margaret_Marie in Heart & Blood Health, Mon, Jan 23 at 9:43am CST

Dr. Angela Mattke, pediatrician, and Dr. Timothy Nelson, pediatric cardiologist and director of the Todd and Karen Wanek Family Program for HLHS, discuss hypoplastic left heart syndrome (HLHS).

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Dr. Mattke and Dr. Nelson answer questions live during the broadcast. Stay up-to-date with the latest information about HLHS by reading the HLHS Cause to Cure blog.

 

 

brittagirl11

Posted by @brittagirl11, Mon, Jan 23 at 4:40pm CST

How long do you anticipate before stem cell therapy is approved by the FDA for CHD treatment? Also, is the long term goal the ability to grow new hearts from "scaffolding" with the patient's stem cells and how long do you anticipate that becoming a reality?

katherinemarie

Posted by @katherinemarie, Tue, Jan 24 at 10:34am CST

Currently you are introducing stem cells during the Glen to improve heart function. Are there any other times, like through the Fontan, or a cath procedure where this may be possible? (My son is post Glen with low function.)

colleenyoung

Posted by @colleenyoung, Tue, Jan 24 at 5:35pm CST

Welcome to Connect, @katherinemarie and @brittagirl11. Thank you for your questions in advance of the live event. They have been submitted.
In the meantime, I hope you'll take the opportunity to connect with one another and to explore the conversations on Connect.

strunkd

Posted by @strunkd, Wed, Feb 1 at 9:18pm CST

What if anything is being done post Fontan in terms of stem cell treatment?

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mschl801

Posted by @mschl801, Thu, Feb 2 at 10:03am CST

Are stem cells projected to be used just on newborns or are there other treatments for older children/young adults who have HLHS? I have heard of older children with HLHS who battle JRA, weakened immune systems, liver enlargement, and skin ailments (warts and molluscum). Do you have any research that could help clarify these other long term "side effects" of cardiac conditions?

colleenyoung

Posted by @colleenyoung, Thu, Feb 2 at 10:33am CST

Thank you for joining us for the live Video Q&A with Dr. Mattke and Dr. Nelson. For anyone who missed the live event or if you want to watch it again, the video is archived at the top of this page.

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